“Anyone can live with a little soreness.”
For as long as Laniese Penner can remember, friends, classmates and complete strangers have been encouraging her to “buck up” and “push through” what they think is just a little stiffness and soreness. Little do they know what this talented high school senior experiences as a teenager living with arthritis. Continue reading Stronger Than Arthritis
“Kids don’t get arthritis.”
That’s the first thing Chrissy and Jason Rose said when the doctor told them their 13-month-old son had juvenile arthritis.
“As an infant, Carson was a cranky baby,” Chrissy explains. “He would scream and cry and didn’t sleep through the night until he was more than a year old. He would lay on the floor and pull at his legs. We didn’t know what was going on and were kind of going crazy. Continue reading Wait, Kids Get Arthritis?
“The pain is just in your head.”
That’s what doctors and family members told Renee Cafaro most of her life.
“No one understood how I could be involved in so many activities one day and unable to walk the next. I was accused of making up my pain. I didn’t even feel my parents supported me.” Continue reading It’s Not in Your Head
“I don’t know anyone with arthritis.”
This is the most common answer we heard when we recently asked Americans: How many people do you know who are living with arthritis ?
Ten years ago, Raquel Masco didn’t think she knew anyone with arthritis either. That’s when she began experiencing unusual symptoms. Continue reading It Doesn’t Have to Be Visible to Be Real
Reesa Partida grasps and loops a dangling swath of fabric, places her foot against it and lithely climbs up before swooping into an aerobatic dance of twists, splits and perfectly pointed toes – a demonstration of grace and strength. “I think I was inspired by Cirque du Soleil,” Reesa says with a laugh. “I thought it looked like a lot of fun, so I started by taking a class three and a half years ago.” Continue reading Defying Gravity: Athlete and Dancer Reesa Partida Takes RA in Stride
Join the Live Yes! Arthritis Network and Live Your Best Life!The Live Yes! Arthritis Network connects you to your best life through a powerful network of support for registered members. While each person’s experience with arthritis is different, we want to make sure you have the right information and support you need to live life to the fullest. Continue reading Join the Live Yes! Arthritis Network and Live Your Best Life!
To fans of Wonder Woman, Aquaman and other superhero movies that she produced, Deborah Snyder might seem a little larger than life herself. Perceptive, energetic and determined, she has a career beyond most people’s dreams, a lovely home near Los Angeles and a supportive family and husband, Zack Snyder, who’s also her business partner.
But every superhero has a villain, and Deborah’s is adult-onset Still’s disease, a rare form of autoimmune arthritis. It left her with hip damage that made even walking difficult for years.
Seeing her relaxing with one leg tucked under her – something she never could have done a few years ago – it’s impossible to tell that she has arthritis, or that she still takes medication and has had both hips replaced. Continue reading Movie Maker Deborah Snyder Knows What Real Super Power Is
Nothing holds Daniel Ortman back. Not the arthritis that has challenged him for two decades. Not the major brain surgery he endured nine years ago. Nor any of the other obstacles he and his family have faced along the way. Continue reading Arthritis Warrior Crosses the Finish Line After Years of Obstacles
Together we are empowered to Live Yes! Your story can move mountains. You have the power to influence your elected officials and break down barriers to the care everyone deserves. By sharing with and educating your lawmakers, you can break down barriers for people with arthritis. Join us in Washington, DC at the 2019 Advocacy Summit on March 11-12, 2019 to make these goals a reality.
The Summit is a forum for volunteers who are dedicated to making a long-term commitment to leadership in Arthritis Foundation advocacy. It is an opportunity to both build meaningful relationships with your elected officials and cultivate the skills to empower and engage other people in your community who are impacted by arthritis. This year’s event will be our opportunity to introduce a new Congress to the many faces of arthritis and the issues most important to the arthritis community.
The best part about this year’s Advocacy Summit is that participants will leave Washington feeling Empowered to Live Yes! This two-day event can serve as an on-ramp to advocacy excellence for all of our participants. You’ll go home with the confidence to share your story and make a difference throughout the year on important legislative issues like reforming step therapy. Everyone, of all ages, backgrounds, and advocacy skill levels—including children and teenagers—are welcome at the 2019 Advocacy Summit.
“We can help improve the lives of the children and adults that are living with arthritis by taking action and letting our elected officials know what matters to us,” says April McCaslin, Platinum Ambassador from New York. “Advocating for arthritis is important because it gives us the opportunity to take control over a disease that we otherwise have no control over.”
Advocacy Summit registration closes on Monday, February 4, 2019. For more information contact Julie Eller at email@example.com. Register today to secure your spot!
For more information on this event and how to carry your new skills with you into a year of continued engagement with your new (or returning!) legislators, visit our website arthritis.org/AdvocacySummit!
Major victory for Ohioans as the “lame duck” legislative session concluded! On January 4, Governor John Kasich signed Senate Bill 265 into law. Ohio now joins 18 other states that have enacted laws that regulate the use of step therapy. With over 2.5 million Ohioans with doctor-diagnosed arthritis, this law will lead to a safer and more effective step therapy process for physicians and patients alike. Continue reading Long Awaited Victory in Ohio – Step Therapy Reform Enacted