Tag Archives: Childhood Arthritis and Rheumatology Research Alliance

What’s Important to Juvenile Idiopathic Arthritis (JIA) Families: the JIA Voice of the Patient Report

Arthritis patients have spoken: “We want safer, more effective, easier-to-use and less-painful-to-administer treatments that are less likely to cause potential long-term side effects. We need solutions to the challenges of dealing with comorbidities and multiple treatment changes.” Continue reading What’s Important to Juvenile Idiopathic Arthritis (JIA) Families: the JIA Voice of the Patient Report

Our Rheumatology Learning Health System Is Starting to Attract Attention!

A big part of our Collaborating With Patients for Better Health scientific initiative has been development of the Rheumatology Learning Health System (RLHS) in collaboration with some of our major partners. The goal of RLHS is to improve quality of care for pediatric and adult arthritis patients.
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CARRA Conference Arthritis Foundation

Groups Collaborate to Improve Future for Children Living with Arthritis

For the next five days, more than 430 people who aim to improve the lives of children with arthritis — including physicians, nurses, parents, patients, and representatives from advocacy organizations — will gather in Toronto for Childhood Arthritis and Rheumatology Research Alliance’s (CARRA) annual meeting, marking the largest gathering in the meeting’s 12-year history. Their common goal? To advance research projects that will uncover the answers to specific questions about rheumatic diseases in children.
Continue reading Groups Collaborate to Improve Future for Children Living with Arthritis