All posts by Arthritis Foundation

2019 Evening of Honors: Best of the Best Among Arthritis Volunteers

The 2019 Live Yes! Conference of Champions, Sept. 13-15, sparked conversation, learning and celebration. Many Arthritis Warriors joined top volunteers, partners and other supporters of the arthritis movement to move our crucial work ahead. Ultimately, this ongoing work will help even more people with arthritis live their best life.

As a highlight of the conference, the Arthritis Foundation’s 2019 Evening of Honors was held in Atlanta on Sept. 13. There, we recognized Champions of Yes who have demonstrated what’s possible. The special evening was hosted for the second year in a row by Pete Scalia, co-anchor of WBNC 10TV’s “This Morning” news program in Columbus, Ohio. Pete has been very open about living with RA and highly engaged in local Arthritis Foundation activities. Continue reading 2019 Evening of Honors: Best of the Best Among Arthritis Volunteers

Help Elevate the Gravity of Arthritis During Pain Awareness Month

Arthritis is painful … and relentless. No one knows that better than those who suffer from it. Perhaps that’s you or someone you love.

An Arthritis Foundation survey shows that:

  • The #1 goal of arthritis treatment is to “reduce pain.”
  • The #1 motivator for seeking out information is “I experienced pain.”

For many, pain isn’t easy to talk about, especially during a flare. Not only does arthritis cause physical pain, but the mental and emotional pain that often goes with it can take a heavy toll, too. Continue reading Help Elevate the Gravity of Arthritis During Pain Awareness Month

So, She Rode Her Bike Down the California Coast

Last September, Nancy Travis, the actress famous for leading roles in the film “So I Married an Axe Murderer,” the Fox TV show “Last Man Standing” and the Golden Globe-winning Netflix series “The Kominsky Method,” rode her bicycle from San Francisco to Los Angeles in support of the Arthritis Foundation.

“How hard could it be?” the spirited 57-year-old asked herself when she signed up in March 2018. Continue reading So, She Rode Her Bike Down the California Coast


UCLA Fellows: Meet Samira Nazzar and Stephen Wong, Jane Wyman Foundation-sponsored Fellows

Because access to care is not always guaranteed, the Arthritis Foundation has been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. Through generous donations from the Jane Wyman Trust, we have been able to fund two pediatric fellowships at the University of California, Los Angeles (UCLA). Continue reading UCLA Fellows: Meet Samira Nazzar and Stephen Wong, Jane Wyman Foundation-sponsored Fellows

Developing the Rheumatology Learning Health System – A Patient’s Story

A big part of our Collaborating With Patients for Better Health scientific initiative has been creating the Rheumatology Learning Health System (RLHS) in collaboration with major partners. The goal of RLHS is to improve quality of care by enhancing communication between patients and their doctors through electronic dashboards.

These dashboards support meaningful conversations and shared decisions about care and treatment plans. They include patient-reported outcomes (PROs), enabling patients to list questions and concerns in advance of a clinical visit. Patients and doctors can turn on/off different data elements to focus on the most meaningful data.

During the pilot phase of this project, the group created and tested paper-based versions of the dashboard at three pediatric sites. In the next phase, electronic versions of the dashboards are being created, and adult sites are being added. Jennifer is helping us make this project successful.

Jennifer is a member of the Dartmouth-Hitchcock Adult Pilot Site Team. She was diagnosed with rheumatoid arthritis (RA) 10 years ago. While being treated with methotrexate, she started experiencing flares. Her doctor prescribed a short course of prednisone.

Reviewing the RLHS dashboard (like the one below) with her doctor helped them both see the visual of her joint count increasing in her RAPID3 scores. This led to her trying a new medication. Seeing Jennifer’s data at a point-in-time, and then over time, helped her and her doctor see how her RA disease activity needed a different treatment approach.

Jennifer says, “In the past, when thinking about a change in therapy, I’ve had some hesitation. It involves weighing how well I’m currently doing against things like possible side effects. What impact will the new medication have? Will I feel better? And equally important, what’s the added cost of a new medication?”

The dashboard helps focus conversations between patients and doctors. Asking patients like Jennifer the “Why” behind the reluctance or hesitation about changing medications invites a conversation about patient preferences and whatever extra help they may need.

“We’re trying to improve patient care by helping patients and doctors prepare for office visits, working together as a team, and improving communication between visits,” explains Arthritis

Foundation Senior Vice President Guy Eakin, PhD. “This is a difficult experiment, and exactly the type of challenge we’re proud to be working with patients and professionals to accomplish. We are thankful for the generosity of our donors for making this project possible.”

The Arthritis Foundation is working with the following partner organizations: Childhood Arthritis and Rheumatology Research Alliance (CARRA); the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN); Understanding Childhood Arthritis Network – Canadian/Dutch Collaboration (UCAN, CAN-DU); and the American College of Rheumatology (ACR). The Dartmouth Institute for Health Policy & Clinical Practice facilitates the group by providing strategic oversight and support for the RLHS.

Paying It Forward to Solve Osteoarthritis

Osteoarthritis (OA) isn’t just a disease that affects older adults; it’s the most common form of arthritis, affecting more than 30 million Americans. Anyone who injures or overuses their joints, including athletes, military members and people who work physically demanding jobs, may be more susceptible to developing this disease as they age. Continue reading Paying It Forward to Solve Osteoarthritis

Meet Matthew Clark: One of Our Newest Foundation-Sponsored Fellows!

Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative . In June, we announced four new fellowship awards for 2019. One of those grants was offered to Vanderbilt University Medical Center, which recently announced a three‑year pediatric fellowship to Dr. Matthew Clark. Continue reading Meet Matthew Clark: One of Our Newest Foundation-Sponsored Fellows!