Arthritis patients have spoken: “We want safer, more effective, easier-to-use and less-painful-to-administer treatments that are less likely to cause potential long-term side effects. We need solutions to the challenges of dealing with comorbidities and multiple treatment changes.” Continue reading What’s Important to Juvenile Idiopathic Arthritis (JIA) Families: the JIA Voice of the Patient Report
Last year we introduced you to Dr. Xiaojuan Li and her Osteoarthritis (OA) Center of Excellence demonstration research project. The project, “Multi-site Multi-Vendor Cross-validation of Cartilage T1rho and T2 imaging”, was completed by investigators from four sites: the Cleveland Clinic Foundation (CCF) in Ohio; the University of California, San Francisco; the University of Kentucky; and the Montefiore Hospital and Albert Einstein College of Medicine in New York. They worked to quantify biomarker assessments in cartilage images obtained through magnetic resonance imaging (MRI). Continue reading Researchers on the Path to a Cure – Spotlight on Dr. Xiaojuan Li
Lupus, a chronic, systemic, autoimmune disease, can affect many parts of the body. It affects people of all races and far more women are affected than men. Lupus nephritis (kidney disease) is seen to some degree in about 60% of lupus patients and can lead to kidney failure and the need for dialysis if not treated appropriately. Continue reading Decision Aid for Women With Lupus Nephritis
The Arthritis Foundation’s California Coast Classic (CCC) Bike Tour was recently named Best Charity Bike Tour by the Gran Fondo Guide! Continue reading California Coast Classic Named Best Charity Bike Tour
The Arthritis Foundation has just launched new “lesson plans” to help improve patient outcomes. The initiative was based on patient and provider surveys and focus groups, which showed that patients want information and support to improve their physical health, emotional health and experience of care. Continue reading New “Lesson Plans” Designed to Improve Patient Outcomes
Since January 2019, the Centers for Disease Control and Prevention (CDC) has reported nearly 850 cases of measles in 23 states – the largest number of measles infections since 1994. Most people who have been infected were unvaccinated. Although measles was declared eliminated in the United States in 2000, it has made a recent comeback, thanks to travelers bringing the virus in from other countries and a growing population of unvaccinated Americans. How worried should you be? Continue reading Protect Yourself From the Measles
A big part of our Collaborating With Patients for Better Health scientific initiative has been development of the Rheumatology Learning Health System (RLHS) in collaboration with some of our major partners. The goal of RLHS is to improve quality of care for pediatric and adult arthritis patients.
Continue reading Our Rheumatology Learning Health System Is Starting to Attract Attention!
We’ve waived registration fees and are offering limited travel awards this month only!
Registration is now open for this year’s Live Yes! Conference of Champions, which will happen in Atlanta, Sept. 13-15, 2019. Continue reading Registration Now Open for Our 2019 Live Yes! Conference of Champions
The Food and Drug Administration (FDA) recently approved romosozumab (Evenity), a new drug for osteoporosis. Unlike osteoporosis medicines called bisphosphonates, romosozumab doesn’t just stop bone loss; it also helps build new bone. It’s approved for postmenopausal women who have fractures, are at very high risk for fractures or haven’t responded to other treatments. The drug comes with an FDA warning for an increased risk of heart attack, stroke and cardiovascular death. Continue reading FDA Approves New Bone-Building Drug for Osteoporosis
“I don’t know many people with arthritis.”
“It’s a disease that affects older people.”
“Anyone can live with a little joint pain.”
“Are you sure what you’re experiencing isn’t just in your head?”
From coast to coast, this is what we hear about arthritis every day. Although more Americans are living with arthritis than those with breast cancer, diabetes, Alzheimer’s and autism combined, most people know very little about this debilitating disease. In fact, only 7% of Americans realize it’s the No. 1 cause of long-term disability in the United States. Continue reading Revealing the Truth About Arthritis During Arthritis Awareness Month