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This SJIA Family Thrives in a New Setting

This SJIA Family Thrives in a New Setting

Juvenile idiopathic arthritis (JIA) is the most common type of arthritis in children and teens. Between 10% to 20% of children with JIA have a rare and serious subtype called systemic juvenile idiopathic arthritis (SJIA). Symptoms of this rare disease can include overactivation of a type of immune cells called macrophages (MAS), unremitting fever, liver and spleen enlargement, abnormal bleeding, central nervous system dysfunction and other potential complications. Read about one family’s plight. Today, 9-year-old Cohen is having the time of his life. He is “president” of the barn on the ranch where his family now lives in New Mexico. He takes ...more
Men In Chronic Pain: Being a Dad With Arthritis

Men In Chronic Pain: Being a Dad With Arthritis

By Pete Scalia Hi! My name is Pete. I was diagnosed with severe rheumatoid arthritis when I was 30 years old. I had my symptoms under control for a number of years, until my wife and I decided we wanted to start a family. For me, that meant pausing my treatments while we tried to conceive. Unfortunately, it took much longer than we had planned. After months of not taking my regular medications, our first pregnancy ended in a miscarriage. Ultimately, through the miracle of IVF, we were finally able to conceive our first daughter, Lola. But by then, my body had changed, ...more
Get the Facts on Gout — A Painful Disease That Targets Men

Get the Facts on Gout — A Painful Disease That Targets Men

There are more than 100 forms of arthritis. Together, they affect more than 54 million people in the United States. While some forms of the disease are more common than others, each affects people in different ways. For men, one of the more common forms can be an excruciatingly painful type called gout. Affecting more than 9 million Americans, a gout flare can cause intense pain and immobility. And thanks to hormones, men are four times as likely to live with gout than women. In layman’s terms, gout is caused by elevated levels of uric acid (hyperuricemia). In the average person, ...more
Young Adult Spotlight: Shane Cox – A Voice for the Invisible

Young Adult Spotlight: Shane Cox – A Voice for the Invisible

A junior at Chico State University in California, Shane Cox might appear like just your average 20-year-old student. But when you take a closer look, you’ll notice something different about him. It’s not the handicapped plate on his pickup truck or the Humira injections he gives himself that really sets Shane apart from his peers. Instead, it’s his dedication to giving other kids with JA hope for their future that really makes him special. It’s his pay-it-forward attitude that made it easy to convince him to be the 2021 National JA Conference chair. And to make it even better, he’s ...more
The Arthritis Champions Scholarship is OPEN!

The Arthritis Champions Scholarship is OPEN!

The Arthritis Foundation is proud to announce that the 2021-2022 Arthritis Champions Scholarship application is open! The Arthritis Champions Scholarship is generously funded by Dr. & Mrs. Walter J. Winterhoff, Dr. Smriti Bardhan and Alpha Omicron Pi. The Arthritis Champions Scholarship of $5,000 per academic year is awarded annually to deserving students with arthritis or a related rheumatic disease who: Impact the arthritis community, serving as positive role models and leaders Live their best life while empowering others to do the same Since 2010 the Arthritis Champions Scholarship has supported 51 college students, awarding nearly $570,000 altogether in scholarship awards. Each eligible ...more
State Victories for Advocacy 2020

State Victories for Advocacy 2020

2020 has been a year that has brought a number of unforeseen challenges. Throughout these difficult times, Advocates continually raised their voices in support of legislation that makes a difference for people with arthritis. COVID-19 has shined a light on issues within our healthcare system that disrupt care. On a state level, the pandemic required many state legislative sessions to end early, meet very rarely, or adapt to virtual sessions. For the states that continued to meet this year, many legislative bodies condensed their work to COVID-19 legislation and budget issues. Accordingly, the Arthritis Foundation, our coalition partners, and our legislative ...more
Chef Michael Symon’s Recipe for Easing Arthritis Pain

Chef Michael Symon’s Recipe for Easing Arthritis Pain

On cooking shows like The Chew and Burgers, Brew and Que, the charismatic Chef Michael Symon, with his signature bald head and contagious smile, whips up mouth-watering dishes with what seems like boundless energy and enthusiasm. What’s not so apparent are his painful hands, aching knees and ankles, and lurking fatigue. Symon, 51, was diagnosed in his 20s with rheumatoid arthritis (RA) and discoid lupus, a form of lupus that primarily affects the skin, but also the joints. “Literally one morning I woke up with these two enormous butterfly splotches under my eyes,” Symon recalls. At first, he and his dermatologist focused ...more
Arthritis Champions Scholarship

Arthritis Champions Scholarship

November is National Scholarship Month and the Arthritis Foundation is proud to offer the Arthritis Champions Scholarship to deserving students across the country who exemplify the Champion of Yes can-do spirit. The Arthritis Champions Scholarship program is generously funded by the Walter J. and Kathryn M. Winterhoff Endowed Scholarship Fund, Dr. Smriti Bardhan College Scholarship Fund and Alpha Omicron Pi (AOII). Walter J. and Kathryn M. Winterhoff Endowed Scholarship Fund Walter J. and Kathryn M. Winterhoff Endowed Scholarship Fund was created to provide an educational scholarship program for students with rheumatic diseases. Walter and Kay Winterhoff were Tucson residents and had passion for the work of the Arthritis Foundation. This ...more
#LiveYes & Fight for Better Access to Care

#LiveYes & Fight for Better Access to Care

By Sarah Cloud It’s tough to fight an unseen battle from an uneven playing field. My son was diagnosed 11 years ago with juvenile idiopathic arthritis (JIA), my husband four years ago with ankylosing spondylitis (AS), and myself a few years ago with rheumatoid arthritis (RA). We are active every day in changing the platform for families like ours to gain knowledge on how to access and receive care in non-urban areas. In 2018, I decided to enroll in college. That was a massive step for this JIA mom and wife. I need to know how to fight for my family in ...more
Making Copays Count in Your State

Making Copays Count in Your State

Written by Ryan Precht In the arthritis community, we know that medications can be expensive. I have had arthritis since I was just 2 years old, and my treatments have run the gamut of costs. From $20,000 for an in-office infusion, to $4,000 for at home infusions, I’ve seen it all. As an adult, I treat my arthritis with home infusions, which cost around $5,000. Fortunately, I learned about a manufacturer copayment assistance program that covers most of that cost, leaving me with a manageable $50 payment each month. Without this program, affording my treatment would be impossible. Learning about this program ...more