Tag Archives: juvenile arthritis

maude lewis

“Maudie” Stuns and Inspires Audiences

Juvenile arthritis awareness is in high gear – with Juvenile Arthritis Awareness month and two JA Conferences being held between July and August, this is the perfect time for director Aisling Walsh’s movie “Maudie” to hit theaters in most major markets.

“Maudie,” based on the true story of Maud Lewis, follows Maudie’s debilitating experience with arthritis throughout her life. Set in 1937, the movie begins with Maudie painting flowers on a wall with great difficulty. Sally Hawkins’s portrayal of Maud Lewis shines, as she next contorts her body to seem very small as Maudie sits smoking on the porch of her shrewd Aunt Ida’s house (Aunt Ida is played by Gabrielle Rose). Upon learning that the house will go under construction, Maudie is quick to find an opportunity as a live-in maid in a tiny shack with a gruff man named Everett (played by Ethan Hawke). And though rocky at first, the optimist and the pessimist, both social outcasts in their respective ways, begin a relationship.

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2017 Walk to Cure Arthritis National Youth Honoree Mariah

A Dream Come True – Meet Our 2017 National Youth Honoree Mariah Aquino-Truss

When Mariah Aquino-Truss was just five years old, she was in so much pain each day she told her mom, Tory, that she “didn’t want to be here anymore.” Imagine hearing such an admission from your young daughter who was newly diagnosed with a form of juvenile arthritis (JA) known as polyarticular spondyloarthropathy.

Polyarticular spondyloarthropathy is a juvenile form of ankylosing spondylitis, a chronic, long term disease that affects the joints, ligaments, tendons and entheses. Shocked, saddened and ferociously determined to help Mariah and her family, Tory set out to find help – a road that led her to the Arthritis Foundation.
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Amy and Kylie McCormick

Champions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis

When you meet Amy McCormick and her daughter, Kylie, of Hauppauge, New York, you instantly feel as though you’ve known them for years. They both consistently greet you with warm smiles and joyful hellos, chatting about their love of Hamilton, the arts and their newly adopted rescue puppy named Autumn.
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Louisiana Walk To Cure Arthritis

Volunteer Kick-Starts Successful Louisiana Walk To Cure Arthritis Event

Born on July 4, Geoff and Sara Morthland called red-haired Ellery their “firecracker,” but at 19 months old, only Ellery’s knees were inflamed. They soon discovered the reason: juvenile arthritis (JA).

“I felt so powerless, Sara Morthland, Ellery’s mother, said. “I couldn’t make it go away.”

The Baton Rouge, Louisiana resident turned emotion into action and searched for a fundraiser supporting an arthritis cure. When she discovered Walk to Cure Arthritis, Sara was elated—only to learn Louisiana did not have a Walk.
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Logan Lentini Parker Lentini Juvenile Arthritis

Super Siblings Play An Important Role for Their Families

This summer at the 2016 National Juvenile Arthritis Conferences, a charismatic young man proudly wearing a bright orange University of Florida Gators shirt walks briskly and with purpose throughout the conference areas. As he turns the corner, you can see the back of his shirt reads something unexpected. It’s not a last name like you might normally see on a Gators shirt – but the words “Parker’s Brother”, clear as day.
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Arthritis Foundation NYC Marathon

NYC Marathon Runner Helps Fight Juvenile Arthritis One Step at a Time

Tom Neville will be running his second TCS New York City marathon this fall. He describes his first marathon in 2015 as exhilarating and beautiful but painful. So why will Tom be running a second marathon? He is running in honor of his niece Brielle, only 5 years-old, who has juvenile arthritis.
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Ellie Pruitt Juvenile Arthritis

Meet the Pruitts, Warriors Against Juvenile Arthritis: “We’ve got to be upbeat and positive”

Until last summer, Ellie Pruitt was your typical little girl who loved to swing, draw with chalk on the driveway and feed the fish and turtles in the pond at the back of her house in Canton, Georgia, a suburb north of Atlanta. She was funny, smart and especially witty for a soon-to-be 4-year-old (and soon-to-be big sister).

But almost a year ago, Ellie started complaining about her legs hurting all the time and feeling tired. She started playing with her toys at the kitchen table because it was too painful to play on the floor. She couldn’t sit with her legs and feet crossed, unable to bend her knees 90 degrees. Her parents thought it might just be growing pains.
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Parket Lentini Arthritis Foundation

Their Unshakable Spirit: Why Parker and His Family Walk to Cure Arthritis

To say that Parker Lentini’s life has been like riding a roller coaster the past few years may be an understatement. He and his family have endured more nerve-wracking ups and downs than most people experience in a lifetime. Yet it’s their hope and faith, and trying to hold on to the highs they encounter along the way, that help them get through the low spots, when it feels like their lives have been turned upside down. Again.

Parker, who’s 16 and lives with his family in Tampa, has been hospitalized more than two dozen times since he was diagnosed six years ago with systemic onset juvenile arthritis (sJA) – with “overlapping conditions,” as well as hypogammaglobulinemia, severe allergies and asthma.
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Animals for Arthritis Charity

Crocheting for a Cause: Juliette Harrison Handcrafts Animals for Children with Arthritis

When you’re feeling down, almost nothing feels better than a snuggle with your favorite friend. Nobody knows that better than Juliette Harrison.

At just eleven years old, Juliette was diagnosed with juvenile arthritis (JA), an inflammatory disease that affects nearly 300,000 children in the United States. With the telltale red joints and persistent pain, she was forced to scale back on many of the activities she loves, like horseback riding and running. Understandably, Juliette was sad and in need of a special friend to take with her to all of the doctor’s appointments in her future. But, it couldn’t be just any friend. This friend needed to be like Juliette. She needed to have arthritis, too.

Juliette’s mom went on a search to find a doll or stuffed animal that Juliette wanted. There were animals with glasses or braces. There were even dolls with casts or in wheelchairs. But there wasn’t the one doll Juliette needed. Fortunately, Calesta, Juliette’s mom, found a vendor on Etsy who was willing to custom make a doll for Juliette. The doll, named Love, began accompanying Juliette to every appointment with her pediatric rheumatologist.
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