Tag Archives: Arhritis Foundation Juvenile Arthritis Camp

Amy and Kylie McCormick

Champions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis

When you meet Amy McCormick and her daughter, Kylie, of Hauppauge, New York, you instantly feel as though you’ve known them for years. They both consistently greet you with warm smiles and joyful hellos, chatting about their love of Hamilton, the arts and their newly adopted rescue puppy named Autumn.
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Ana Villafañe Juvenile Arthritis

Ana Villafañe- “JA Doesn’t Define Me”

Ana Villafañe has come a long way since she first belted out the Gloria Estefan song, “Reach” at the Arthritis Foundation’s juvenile arthritis camp, Camp Funrise, in Miami, Fla., at the age of 9. The rising star, now 26, is portraying Estefan in a new Broadway musical, “On Your Feet!” about the legendary singer’s life. If that weren’t enough, she’s also appearing in the summer movie, “Max Steel,” as well as the new Hulu series, “South Beach.”

Her mother, Carmen Villafañe, never anticipated such success when Ana battled her first systemic onset of life-threatening symptoms at age seven. “She had a fever of unknown origin, as high as 106, 107 degrees, consistently, for a month-and-a-half,” she says. “She also contracted secondary issues; her organs were shutting down. Finally, her rheumatologist Dr. Rafael Rivas-Chacon told me, ‘If you ever see a swollen joint, call me immediately.’ The day we were leaving the hospital, Ana said, ‘Mom, look at my knee,” and sure enough, it had blown up. Dr. Rivas-Chacon was back in ten minutes. That’s how she was finally diagnosed.”

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