Tag Archives: Advocacy Summit

Empowered to Live Yes! Registration for the 2019 Advocacy Summit is Open!

Together we are empowered to Live Yes! Your story can move mountains. You have the power to influence your elected officials and break down barriers to the care everyone deserves. By sharing with and educating your lawmakers, you can break down barriers for people with arthritis. Join us in Washington, DC at the 2019 Advocacy Summit on March 11-12, 2019 to make these goals a reality.

The Summit is a forum for volunteers who are dedicated to making a long-term commitment to leadership in Arthritis Foundation advocacy. It is an opportunity to both build meaningful relationships with your elected officials and cultivate the skills to empower and engage other people in your community who are impacted by arthritis. This year’s event will be our opportunity to introduce a new Congress to the many faces of arthritis and the issues most important to the arthritis community.

The best part about this year’s Advocacy Summit is that participants will leave Washington feeling Empowered to Live Yes! This two-day event can serve as an on-ramp to advocacy excellence for all of our participants. You’ll go home with the confidence to share your story and make a difference throughout the year on important legislative issues like reforming step therapy.  Everyone, of all ages, backgrounds, and advocacy skill levels—including children and teenagers—are welcome at the 2019 Advocacy Summit.

 “We can help improve the lives of the children and adults that are living with arthritis by taking action and letting our elected officials know what matters to us,” says April McCaslin, Platinum Ambassador from New York. “Advocating for arthritis is important because it gives us the opportunity to take control over a disease that we otherwise have no control over.”

Advocacy Summit registration closes on Monday, February 4, 2019. For more information contact Julie Eller at jeller@arthritis.org. Register today to secure your spot!

For more information on this event and how to carry your new skills with you into a year of continued engagement with your new (or returning!) legislators, visit our website arthritis.org/AdvocacySummit!


One Story Can Change Everything: Visit Gives an Inside Look of the NIH

Lexi Narotzky: National Institutes of Health“Totally amazing!” says 17-year-old Lexi Narotzky.

She’s not talking about her recent prom or even her summer plans to study in California. She’s talking about last week’s visit to the National Institutes of Health (NIH).

Lexi, who was diagnosed with polyarticular juvenile rheumatoid arthritis at three years old, found her way to the NIH after she shared her story with Congressman Rodney Frelinghuysen (R – NJ) at the Arthritis Foundation’s Advocacy Summit back in March. Struck by her narrative, Frelinghuysen invited Lexi and her entire group to visit the NIH and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) so that they could see firsthand the research that is being done to combat arthritis.
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