Everyone needs to ask for help occasionally, but when you have a chronic condition, asking for and accepting help can be especially fraught. Here’s what three bloggers have learned.
Juvenile arthritis awareness is in high gear – with Juvenile Arthritis Awareness month and two JA Conferences being held between July and August, this is the perfect time for director Aisling Walsh’s movie “Maudie” to hit theaters in most major markets.
“Maudie,” based on the true story of Maud Lewis, follows Maudie’s debilitating experience with arthritis throughout her life. Set in 1937, the movie begins with Maudie painting flowers on a wall with great difficulty. Sally Hawkins’s portrayal of Maud Lewis shines, as she next contorts her body to seem very small as Maudie sits smoking on the porch of her shrewd Aunt Ida’s house (Aunt Ida is played by Gabrielle Rose). Upon learning that the house will go under construction, Maudie is quick to find an opportunity as a live-in maid in a tiny shack with a gruff man named Everett (played by Ethan Hawke). And though rocky at first, the optimist and the pessimist, both social outcasts in their respective ways, begin a relationship.
Q. Are you a slacker when it comes to self-care?
Taking care of yourself is so important, but who hasn’t dealt with the self-care burnout that comes with having a chronic condition?
For the first in a new series featuring some of the leading social media voices on life with arthritis, we asked these bloggers about their struggles with self-care.
Actor Clark Middleton has spent a lifetime defying limits and arthritis.
Art imitates life imitates art. Actor Clark Middleton, of NBC’s The Blacklist and Hulu’s The Path, is keenly aware of the parallels between his on-camera and off-camera lives.
When Mariah Aquino-Truss was just five years old, she was in so much pain each day she told her mom, Tory, that she “didn’t want to be here anymore.” Imagine hearing such an admission from your young daughter who was newly diagnosed with a form of juvenile arthritis (JA) known as polyarticular spondyloarthropathy.
Polyarticular spondyloarthropathy is a juvenile form of ankylosing spondylitis, a chronic, long term disease that affects the joints, ligaments, tendons and entheses. Shocked, saddened and ferociously determined to help Mariah and her family, Tory set out to find help – a road that led her to the Arthritis Foundation.
Continue reading A Dream Come True – Meet Our 2017 National Youth Honoree Mariah Aquino-Truss
Dina discovered that she had healing hands when her sister was diagnosed with multiple sclerosis.
“I would always give my sister massages at home to help with her pain,” recalls Dina. “I was working a job in sales, and my sister said, ‘you ought to go to massage school.’”