Category Archives: Juvenile Arthritis

Amy and Kylie McCormick

Champions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis

When you meet Amy McCormick and her daughter, Kylie, of Hauppauge, New York, you instantly feel as though you’ve known them for years. They both consistently greet you with warm smiles and joyful hellos, chatting about their love of Hamilton, the arts and their newly adopted rescue puppy named Autumn.
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Louisiana Walk To Cure Arthritis

Volunteer Kick-Starts Successful Louisiana Walk To Cure Arthritis Event

Born on July 4, Geoff and Sara Morthland called red-haired Ellery their “firecracker,” but at 19 months old, only Ellery’s knees were inflamed. They soon discovered the reason: juvenile arthritis (JA).

“I felt so powerless, Sara Morthland, Ellery’s mother, said. “I couldn’t make it go away.”

The Baton Rouge, Louisiana resident turned emotion into action and searched for a fundraiser supporting an arthritis cure. When she discovered Walk to Cure Arthritis, Sara was elated—only to learn Louisiana did not have a Walk.
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Meaghan Victory Nursing Career

Champion of Yes: Meaghan Victory Uses Patient Experience to Propel Nursing Career Dreams

Meaghan Victory grew up in an active family that spent their summers camping and hiking, and winters in the snowy mountains next to their Issaquah, Washington home.

When she was around eight years old, Meaghan was involved in a sledding accident and sprained her right wrist. For six months after the accident, the pain in her wrist never went away. While on vacation in the summer, her mother was putting sunscreen on her arm and noticed Meaghan in significant pain. Unsure of what was going on, her pediatrician referred Meaghan to Seattle Children’s Hospital where she was diagnosed with juvenile rheumatoid arthritis at the young age of nine years old.
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Max Larsen Jingle Bell Run

Unique Fundraiser Pays Off for National Jingle Bell Run Youth Honoree Max Larsen

Jingle Bell Run Max Larsen
Max Larsen

When Max Larsen wants to raise funds to cure arthritis, he goes all out. As the 2016 National Jingle Bell Run Youth Honoree, Max and Team to the MAX held one of his largest and the nation’s most unique fundraisers on October 8. Max’s annual fundraiser, Big Ox Plop Bingo, raised funds to get him closer to his $50,000 fundraising goal and 75 people joined his team!
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Logan Lentini Parker Lentini Juvenile Arthritis

Super Siblings Play An Important Role for Their Families

This summer at the 2016 National Juvenile Arthritis Conferences, a charismatic young man proudly wearing a bright orange University of Florida Gators shirt walks briskly and with purpose throughout the conference areas. As he turns the corner, you can see the back of his shirt reads something unexpected. It’s not a last name like you might normally see on a Gators shirt – but the words “Parker’s Brother”, clear as day.
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Arthritis Foundation NYC Marathon

NYC Marathon Runner Helps Fight Juvenile Arthritis One Step at a Time

Tom Neville will be running his second TCS New York City marathon this fall. He describes his first marathon in 2015 as exhilarating and beautiful but painful. So why will Tom be running a second marathon? He is running in honor of his niece Brielle, only 5 years-old, who has juvenile arthritis.
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Polyarticular JIA story

Iowa Teen with Arthritis is an Ace on and Off the Tennis Court

You would never know by watching Kyle Elmore’s backhand shot that the 14-year-old athlete from Iowa has polyarticular juvenile idiopathic arthritis (JIA). Kyle was diagnosed with JIA two years ago, but he decided that he was not going to let arthritis stop him from doing what he loves.

The Elmore family’s journey to a diagnosis was long and frustrating. “I remember experiencing a lot of pain in my knees and ankles, especially in the morning,” says Kyle. “My knees were so swollen that you couldn’t see my knee caps!”
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Noah Juvenile Arthritis

Impossible? Not to Bicyclist Noah Jones, Who Won’t Let Arthritis Hold Him Back

There are days when it’s impossible for 12-year-old Noah Jones to walk. Or feel like eating. Or doing anything else, for that matter. Then there are days when ‘impossible’ isn’t in Noah’s vocabulary. The days when the only thing he thinks about is getting on his BMX bicycle and riding with his friends, doing slides and jumps, wheelies and whips, twists and turns.
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Ellie Pruitt Juvenile Arthritis

Meet the Pruitts, Warriors Against Juvenile Arthritis: “We’ve got to be upbeat and positive”

Until last summer, Ellie Pruitt was your typical little girl who loved to swing, draw with chalk on the driveway and feed the fish and turtles in the pond at the back of her house in Canton, Georgia, a suburb north of Atlanta. She was funny, smart and especially witty for a soon-to-be 4-year-old (and soon-to-be big sister).

But almost a year ago, Ellie started complaining about her legs hurting all the time and feeling tired. She started playing with her toys at the kitchen table because it was too painful to play on the floor. She couldn’t sit with her legs and feet crossed, unable to bend her knees 90 degrees. Her parents thought it might just be growing pains.
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Kristen McAllister Juvenile Arthritis

More than Just Aches and Pains – Kmac Fights her Biggest Battle with Arthritis Yet

152. That’s the number of days Kristen McAllister, also known as Kmac, spent in the hospital in 2015. That’s 152 days out of school, away from friends and way out of her comfort zone. But, 152 days represents a mere fraction of the battle Kristen, now 21 years old, has been fighting since she was child.

At just 10 years old, Kristen faced her first surgery to remove rheumatoid nodules from her knee and hand. By the time she turned 11, Kristen had several painful joints, was often fatigued and dealt with unexplained fevers. A three-month course of antibiotics seemed to resolve her symptoms — temporarily.

“Kristen was doing so well for awhile that she made the middle school dance team as a rising sixth grader,” recalls Michele McAllister, Kristen’s mother. “We assumed her middle and high school years would always include dance team, competitive cheerleading, church activities and school clubs. But we were wrong.”

Another knee surgery relieved much of Kristen’s pain, but the fevers, joint aches and extreme fatigue returned. Like it is for many children, the road to diagnosis was a long and winding one.
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