It’s early morning in Los Angeles, and actress Kathryn Leigh Scott, despite a long flight from New York the day before, has finished her morning walk before heading to wardrobe for her new film, The Eleventh Green. At 74, she exercises every day, which has helped her stay fit – and recover quickly after two hip replacements.
While Kathryn is often remembered for her roles in the television soap opera Dark Shadows, a cult hit that ran from 1966 to 1971, her acting career spans over 50 years, with a wide range of roles in television and movies. In addition, she has authored six books, both fiction and nonfiction.
Continue reading Kathryn Leigh Scott: Out of the Shadows
Anna Neu is 8 years old and holds a title she’d rather not have – the youngest person ever diagnosed with ankylosing spondylitis (AS). She can’t remember a time when she wasn’t plagued by pain in her spine and hips, the telltale sign of her disease. Diagnosed as a toddler, Anna has good days and bad, but often, she’s sidelined by a form of arthritis most people don’t even realize affects children.
“Anna started complaining of bugs biting her back and waking up screaming in the middle of the night when she was just 2 years old,” says her mom, Emily. “She would stop and sit when the family was out for a walk around the block and say, ‘I have no more runs left’ or ‘my engine ran out.’”
Despite the pain, she’s a brave girl, working hard to help doctors learn more about her disease and how to best treat it. A regular study participant at the National Institutes of Health, Anna is hoping she will help researchers find better treatments, and one day a cure, for AS.
Continue reading Anna Neu: Fighting for Childhood
After the heartbreak of 2017’s disasters, we all need a mental health break. What will you do in 2018 to increase your happiness?
Continue reading Voices: How Will You Embrace Joy in 2018?
Each year as the leaves begin to fall and the weather gets a few degrees cooler, Peyton Holstein of Lake Oswego, Oregon, along with her older brother, Tobias and four of their cousins, begin researching both local and national charity organizations. While it is easy to assume this is for a school assignment, it’s not. Each cousin is readying their pitch for a unique family Thanksgiving tradition.
Approximately eight years ago, Peyton and Tobias’ great uncle Ron began donating to different charities in the six cousins’ names for Christmas. When the kids were younger, he chose a charity and presented each child with the donation made in their name along with an explanation of how their charitable gift will help the organization. One year it was a donation of goats to a village in Africa that would help provide the village with milk and fertilizer for crops and gardens. Another year after the earthquake in Haiti, it was a gift of water and rice to fulfill the basic needs of a devastated community.
As the kids grew older, Uncle Ron asked each of them to find their own cause and research the organization – from an organization’s mission to charity rating, how much per dollar is invested to how they intend to use the donation, and make their pitch at the family Thanksgiving get together. The six cousins, ages 10-24 years old, listen to one another, embark on a discussion, make ballots and vote between themselves. The Arthritis Foundation was the overwhelming choice for this year’s donation!
Continue reading A Generation of Giving
We know, it sounds like a crazy question. But some people say they’ve found unexpected reasons to actually be grateful for their diagnosis. Here’s what three bloggers wrote.
Continue reading Voices: Are You Grateful for Your Arthritis?
From Kate Wingate
My name is Kate Wingate and I’m from Greensboro, North Carolina. On the outside, I look like a normal 13-year-old girl, but I have juvenile arthritis (JA). Arthritis is a disease that doesn’t present in a way that you might think, and unless I’m having a flare, no one would ever know. I’ve had JA since I was 18-months-old, so I can’t remember what it feels like to not have pain in my joints.
Continue reading Kate Wingate, Jingle Bell Run National Youth Honoree
Charcandrick West has juvenile arthritis. Now he’s dodging tackles in the NFL.
It’s a scene fans of the Kansas City Chiefs football team know well: Charcandrick West crashes into a tackler, spins and breaks free, then shifts into high gear as he races downfield. Yet Charcandrick, now in his fourth season as a running back for the Chiefs, never forgets that he has faced a more challenging opponent: systemic juvenile idiopathic arthritis (sJIA). It appeared at age 14, and symptoms became so severe that one doctor predicted the teen might never walk again, much less play football.
Continue reading Unstoppable: Charcandrick West’s Story
For 17-year-old Allison Alberts of Sturgeon Bay, Wisconsin, waking up with pain is an everyday occurrence for her. Some days the pain is manageable and can be helped along by a hot shower or a run to loosen up her body. Other days, Allison might struggle to get out of bed and looks to her father, Jamie, to help her walk or give her joints a comforting massage.
“There are many days I wish I could be normal, let alone feel normal for a day – a day without any pain, “says Allison. “But complaining does nothing. Complaining won’t take away the pain and complaining won’t allow my fingers to look normal. The way I go about my day is to let my arthritis and my body know that they will not stop me.”
Continue reading Champion of Yes: A Three Sport Athlete, Allison Alberts Charges Forward Through Arthritis Pain
When Kevin Gadd was born, roughly 51 years ago, an unexpected and unwelcomed guest joined his family.
“My mom was diagnosed with rheumatoid arthritis (RA) in her hands just after I was born,” explained Kevin. “We called it Arthur, like Arthur-itis. We were always mad at Arthur because he brought pain to my mom and made it difficult for her to do the things she loved. Arthur was a bad dude.”
Continue reading Getting Rid of Arthur, the Uninvited Guest
American chefs Ruth Graves Wakefield and Sue Bridges invented the chocolate chip cookie in 1938 and served them as a sweet snack and dessert at the Toll House Inn in Whitman Massachusetts. Little did they know the impact their invention would have on a little girl from Greensboro, North Carolina some 67 years later.
Continue reading The Secret Power of Chocolate Chip Cookies