Everyone needs to ask for help occasionally, but when you have a chronic condition, asking for and accepting help can be especially fraught. Here’s what three bloggers have learned.
Juvenile arthritis awareness is in high gear – with Juvenile Arthritis Awareness month and two JA Conferences being held between July and August, this is the perfect time for director Aisling Walsh’s movie “Maudie” to hit theaters in most major markets.
“Maudie,” based on the true story of Maud Lewis, follows Maudie’s debilitating experience with arthritis throughout her life. Set in 1937, the movie begins with Maudie painting flowers on a wall with great difficulty. Sally Hawkins’s portrayal of Maud Lewis shines, as she next contorts her body to seem very small as Maudie sits smoking on the porch of her shrewd Aunt Ida’s house (Aunt Ida is played by Gabrielle Rose). Upon learning that the house will go under construction, Maudie is quick to find an opportunity as a live-in maid in a tiny shack with a gruff man named Everett (played by Ethan Hawke). And though rocky at first, the optimist and the pessimist, both social outcasts in their respective ways, begin a relationship.
Turning into the straightaway you quickly push the pedal to the floor. The engine roars to life as you accelerate down the track. Up ahead is your next challenge – a hairpin turn that requires carefully calculated breaking and precise steering, otherwise you might spin out and lose your position. Your tires are just inches away from the car next to you. With a little luck and skill, you might outmaneuver the other driver and come out ahead without wrecking.
Tom Boehland can’t get enough of this. He grew up a race fan and for years has known legendary IndyCar driver and team owner Bobby Rahal. Today he roots for Bobby’s son, Graham, who currently competes in the IndyCar Series.
Competitive swimming is a difficult sport. Athletes spend hours every day going back and forth in a pool with their heads mostly under water honing their skills and techniques hoping to shave tenths of a second off their times.
Q. Are you a slacker when it comes to self-care?
Taking care of yourself is so important, but who hasn’t dealt with the self-care burnout that comes with having a chronic condition?
For the first in a new series featuring some of the leading social media voices on life with arthritis, we asked these bloggers about their struggles with self-care.
Actor Clark Middleton has spent a lifetime defying limits and arthritis.
Art imitates life imitates art. Actor Clark Middleton, of NBC’s The Blacklist and Hulu’s The Path, is keenly aware of the parallels between his on-camera and off-camera lives.
People climb mountains for many reasons. For some, it’s a test of physical strength and endurance. For others, it’s for the rush and exhilaration. For Alex Jakobson, it was to prove to himself that he can overcome the pain and limitations of arthritis.
Alex was living a great life when arthritis reared its ugly head. He was 35 years old, married to his sweetheart and living in France where he enjoyed a very social and active lifestyle.
Continue reading Climbing Mountains to Conquer Arthritis
When Mariah Aquino-Truss was just five years old, she was in so much pain each day she told her mom, Tory, that she “didn’t want to be here anymore.” Imagine hearing such an admission from your young daughter who was newly diagnosed with a form of juvenile arthritis (JA) known as polyarticular spondyloarthropathy.
Polyarticular spondyloarthropathy is a juvenile form of ankylosing spondylitis, a chronic, long term disease that affects the joints, ligaments, tendons and entheses. Shocked, saddened and ferociously determined to help Mariah and her family, Tory set out to find help – a road that led her to the Arthritis Foundation.
Continue reading A Dream Come True – Meet Our 2017 National Youth Honoree Mariah Aquino-Truss
Kathryn Sundquist is 16 years old, lives in Brainerd, Minnesota and has juvenile rheumatoid arthritis. To say she and her family live active lifestyles would be an understatement. Her mom enjoys yoga, running and participating in triathlons. Her dad is an avid biker. Her adult brothers enjoy 4-wheeling, hunting, fishing, and tennis. They all enjoy any reason to be outside!
Continue reading Fundraising is a Family Endeavor for Kathryn Sundquist, Our 2017 Walk to Cure Arthritis National Young Adult Honoree
As a believer in living a full life and being a Champion of Yes, we asked Tom Walker – who has experienced highs and lows and endured it all – a few lighthearted, personal questions.
Continue reading Up Close and Personal with our Walk to Cure Arthritis National Adult Honoree Tom Walker