Wait, Kids Get Arthritis?

“Kids don’t get arthritis.”

 That’s the first thing Chrissy and Jason Rose said when the doctor told them their 13-month-old son had juvenile arthritis.

“As an infant, Carson was a cranky baby,” Chrissy explains. “He would scream and cry and didn’t sleep through the night until he was more than a year old. He would lay on the floor and pull at his legs. We didn’t know what was going on and were kind of going crazy. Continue reading Wait, Kids Get Arthritis?

Defying Gravity: Athlete and Dancer Reesa Partida Takes RA in Stride

Reesa Partida grasps and loops a dangling swath of fabric, places her foot against it and lithely climbs up before swooping into an aerobatic dance of twists, splits and perfectly pointed toes – a demonstration of grace and strength. “I think I was inspired by Cirque du Soleil,” Reesa says with a laugh. “I thought it looked like a lot of fun, so I started by taking a class three and a half years ago.” Continue reading Defying Gravity: Athlete and Dancer Reesa Partida Takes RA in Stride

Join the Live Yes! Arthritis Network and Live Your Best Life!

Join the Live Yes! Arthritis Network and Live Your Best Life!The Live Yes! Arthritis Network connects you to your best life through a powerful network of support for registered members. While each person’s experience with arthritis is different, we want to make sure you have the right information and support you need to live life to the fullest. Continue reading Join the Live Yes! Arthritis Network and Live Your Best Life!

Movie Maker Deborah Snyder Knows What Real Super Power Is

To fans of Wonder Woman, Aquaman and other superhero movies that she produced, Deborah Snyder might seem a little larger than life herself. Perceptive, energetic and determined, she has a career beyond most people’s dreams, a lovely home near Los Angeles and a supportive family and husband, Zack Snyder, who’s also her business partner.

But every superhero has a villain, and Deborah’s is adult-onset Still’s disease, a rare form of autoimmune arthritis. It left her with hip damage that made even walking difficult for years.

Seeing her relaxing with one leg tucked under her – something she never could have done a few years ago – it’s impossible to tell that she has arthritis, or that she still takes medication and has had both hips replaced. Continue reading Movie Maker Deborah Snyder Knows What Real Super Power Is

Empowered to Live Yes! Registration for the 2019 Advocacy Summit is Open!

Together we are empowered to Live Yes! Your story can move mountains. You have the power to influence your elected officials and break down barriers to the care everyone deserves. By sharing with and educating your lawmakers, you can break down barriers for people with arthritis. Join us in Washington, DC at the 2019 Advocacy Summit on March 11-12, 2019 to make these goals a reality.

The Summit is a forum for volunteers who are dedicated to making a long-term commitment to leadership in Arthritis Foundation advocacy. It is an opportunity to both build meaningful relationships with your elected officials and cultivate the skills to empower and engage other people in your community who are impacted by arthritis. This year’s event will be our opportunity to introduce a new Congress to the many faces of arthritis and the issues most important to the arthritis community.

The best part about this year’s Advocacy Summit is that participants will leave Washington feeling Empowered to Live Yes! This two-day event can serve as an on-ramp to advocacy excellence for all of our participants. You’ll go home with the confidence to share your story and make a difference throughout the year on important legislative issues like reforming step therapy.  Everyone, of all ages, backgrounds, and advocacy skill levels—including children and teenagers—are welcome at the 2019 Advocacy Summit.

 “We can help improve the lives of the children and adults that are living with arthritis by taking action and letting our elected officials know what matters to us,” says April McCaslin, Platinum Ambassador from New York. “Advocating for arthritis is important because it gives us the opportunity to take control over a disease that we otherwise have no control over.”

Advocacy Summit registration closes on Monday, February 4, 2019. For more information contact Julie Eller at jeller@arthritis.org. Register today to secure your spot!

For more information on this event and how to carry your new skills with you into a year of continued engagement with your new (or returning!) legislators, visit our website arthritis.org/AdvocacySummit!

Long Awaited Victory in Ohio – Step Therapy Reform Enacted

Major victory for Ohioans as the “lame duck” legislative session concluded!  On January 4, Governor John Kasich signed Senate Bill 265 into law. Ohio now joins 18 other states that have enacted laws that regulate the use of step therapy. With over 2.5 million Ohioans with doctor-diagnosed arthritis, this law will lead to a safer and more effective step therapy process for physicians and patients alike. Continue reading Long Awaited Victory in Ohio – Step Therapy Reform Enacted