volkenburg brothers arthritis foundation fundraising

Brothers Battle Gigantic Duck and 5 Foot Waves in Record Setting Swim Across Lake Erie

They said they were going to do it and, by golly, they did it – in record time!

Earlier this year, brothers Tom and Greg Van Volkenburg decided they were going to swim across Lake Erie, a distance of 24.3 miles, in honor of their mom, Debbie, who has battled rheumatoid arthritis (RA) for most of her life.

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maude lewis

“Maudie” Stuns and Inspires Audiences

Juvenile arthritis awareness is in high gear – with Juvenile Arthritis Awareness month and two JA Conferences being held between July and August, this is the perfect time for director Aisling Walsh’s movie “Maudie” to hit theaters in most major markets.

“Maudie,” based on the true story of Maud Lewis, follows Maudie’s debilitating experience with arthritis throughout her life. Set in 1937, the movie begins with Maudie painting flowers on a wall with great difficulty. Sally Hawkins’s portrayal of Maud Lewis shines, as she next contorts her body to seem very small as Maudie sits smoking on the porch of her shrewd Aunt Ida’s house (Aunt Ida is played by Gabrielle Rose). Upon learning that the house will go under construction, Maudie is quick to find an opportunity as a live-in maid in a tiny shack with a gruff man named Everett (played by Ethan Hawke). And though rocky at first, the optimist and the pessimist, both social outcasts in their respective ways, begin a relationship.

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arthritis foundation mini grand prix

Racing for a Cure: Drivers Burn Rubber for Mini Grand Prix Crown

Turning into the straightaway you quickly push the pedal to the floor. The engine roars to life as you accelerate down the track. Up ahead is your next challenge – a hairpin turn that requires carefully calculated breaking and precise steering, otherwise you might spin out and lose your position. Your tires are just inches away from the car next to you. With a little luck and skill, you might outmaneuver the other driver and come out ahead without wrecking.

Tom Boehland can’t get enough of this. He grew up a race fan and for years has known legendary IndyCar driver and team owner Bobby Rahal. Today he roots for Bobby’s son, Graham, who currently competes in the IndyCar Series.

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volkenburg brothers arthritis foundation fundraising

Brothers to Swim Across Lake Erie in Honor of their Mother and to Support the Arthritis Community

Competitive swimming is a difficult sport. Athletes spend hours every day going back and forth in a pool with their heads mostly under water honing their skills and techniques hoping to shave tenths of a second off their times.

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Arthritis Today Bloggers

Voices: Are You a Self-Care Slacker?

Q. Are you a slacker when it comes to self-care?

Taking care of yourself is so important, but who hasn’t dealt with the self-care burnout that comes with having a chronic condition?

For the first in a new series featuring some of the leading social media voices on life with arthritis, we asked these bloggers about their struggles with self-care.

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alex jacobson

Climbing Mountains to Conquer Arthritis

People climb mountains for many reasons. For some, it’s a test of physical strength and endurance. For others, it’s for the rush and exhilaration. For Alex Jakobson, it was to prove to himself that he can overcome the pain and limitations of arthritis.

Alex was living a great life when arthritis reared its ugly head. He was 35 years old, married to his sweetheart and living in France where he enjoyed a very social and active lifestyle.
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2017 Walk to Cure Arthritis National Youth Honoree Mariah

A Dream Come True – Meet Our 2017 National Youth Honoree Mariah Aquino-Truss

When Mariah Aquino-Truss was just five years old, she was in so much pain each day she told her mom, Tory, that she “didn’t want to be here anymore.” Imagine hearing such an admission from your young daughter who was newly diagnosed with a form of juvenile arthritis (JA) known as polyarticular spondyloarthropathy.

Polyarticular spondyloarthropathy is a juvenile form of ankylosing spondylitis, a chronic, long term disease that affects the joints, ligaments, tendons and entheses. Shocked, saddened and ferociously determined to help Mariah and her family, Tory set out to find help – a road that led her to the Arthritis Foundation.
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