Join the Live Yes! Arthritis Network and Live Your Best Life!The Live Yes! Arthritis Network connects you to your best life through a powerful network of support for registered members. While each person’s experience with arthritis is different, we want to make sure you have the right information and support you need to live life to the fullest. Continue reading Join the Live Yes! Arthritis Network and Live Your Best Life!
To fans of Wonder Woman, Aquaman and other superhero movies that she produced, Deborah Snyder might seem a little larger than life herself. Perceptive, energetic and determined, she has a career beyond most people’s dreams, a lovely home near Los Angeles and a supportive family and husband, Zack Snyder, who’s also her business partner.
But every superhero has a villain, and Deborah’s is adult-onset Still’s disease, a rare form of autoimmune arthritis. It left her with hip damage that made even walking difficult for years.
Seeing her relaxing with one leg tucked under her – something she never could have done a few years ago – it’s impossible to tell that she has arthritis, or that she still takes medication and has had both hips replaced. Continue reading Movie Maker Deborah Snyder Knows What Real Super Power Is
Nothing holds Daniel Ortman back. Not the arthritis that has challenged him for two decades. Not the major brain surgery he endured nine years ago. Nor any of the other obstacles he and his family have faced along the way. Continue reading Arthritis Warrior Crosses the Finish Line After Years of Obstacles
Together we are empowered to Live Yes! Your story can move mountains. You have the power to influence your elected officials and break down barriers to the care everyone deserves. By sharing with and educating your lawmakers, you can break down barriers for people with arthritis. Join us in Washington, DC at the 2019 Advocacy Summit on March 11-12, 2019 to make these goals a reality.
The Summit is a forum for volunteers who are dedicated to making a long-term commitment to leadership in Arthritis Foundation advocacy. It is an opportunity to both build meaningful relationships with your elected officials and cultivate the skills to empower and engage other people in your community who are impacted by arthritis. This year’s event will be our opportunity to introduce a new Congress to the many faces of arthritis and the issues most important to the arthritis community.
The best part about this year’s Advocacy Summit is that participants will leave Washington feeling Empowered to Live Yes! This two-day event can serve as an on-ramp to advocacy excellence for all of our participants. You’ll go home with the confidence to share your story and make a difference throughout the year on important legislative issues like reforming step therapy. Everyone, of all ages, backgrounds, and advocacy skill levels—including children and teenagers—are welcome at the 2019 Advocacy Summit.
“We can help improve the lives of the children and adults that are living with arthritis by taking action and letting our elected officials know what matters to us,” says April McCaslin, Platinum Ambassador from New York. “Advocating for arthritis is important because it gives us the opportunity to take control over a disease that we otherwise have no control over.”
For more information on this event and how to carry your new skills with you into a year of continued engagement with your new (or returning!) legislators, visit our website arthritis.org/AdvocacySummit!
Major victory for Ohioans as the “lame duck” legislative session concluded! On January 4, Governor John Kasich signed Senate Bill 265 into law. Ohio now joins 18 other states that have enacted laws that regulate the use of step therapy. With over 2.5 million Ohioans with doctor-diagnosed arthritis, this law will lead to a safer and more effective step therapy process for physicians and patients alike. Continue reading Long Awaited Victory in Ohio – Step Therapy Reform Enacted
Support the Arthritis Foundation and the 54 million Americans with arthritis.
Meet Shane Cox
When you meet Shane Cox of Petaluma, California, his quiet, calm demeanor gives little away about this young man. But whether he is speaking as an honoree at his local Jingle Bell Run or at the California Coast Classic, it’s easy to realize he has experienced more in his young life than most his age. Continue reading No One Should Be in Debilitating Pain, Especially at 10 Years Old
As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how arthritis changes and challenges everyday living.
Meet Craig Buhr, who is challenged by gout and OA. Following, in his own words, are his thoughts about the statistics he reviewed in Arthritis by the Numbers – and how they relate to him personally.
Support the Arthritis Foundation and the 54 million Americans with arthritis.
Meet Cassidy Middleton
Cassidy Middleton is a happy, thriving 8-year-old who has a loving affinity for Minnie Mouse and spending her days horseback riding in the warm, Tucson, Arizona, sun.
In December 2013, Cassidy was diagnosed with autism, and that’s when the Middleton family’s world changed. Most weeks were filled with therapists and appointments, and just when things started to settle down, Cassidy’s mother, Kari, noticed Cassidy was a “bit knock-kneed” and “walking funny” for a 3-year-old. After consulting with their pediatrician, who referred the family to a pediatric rheumatologist, Cassidy was diagnosed with juvenile arthritis (JA). Continue reading No One Should Be in Debilitating Pain, Especially at 8 Years Old
Studying abroad can be an exciting but nerve-wracking experience. The comfort zones you are so used to back home become non-existent as you make your way through an unknown country meeting new people and immersing yourself into different cultures. For a college student with Rheumatoid Arthritis, there are a few extra challenges I have to face and while doing so, I often question if choosing to travel for a semester was the best option for me. As someone who has Arthritis in all of their joints and still undergoing surgical procedures, the idea of being in an unfamiliar place away from my family and doctors was downright scary. What if my joints got worse or something happened with my medications? What if I decide midway I can’t put my body through this anymore? These questions often swirl around in my head as the activities become difficult or the field trips become too strenuous that I am left lying in bed the next day. When I do ask myself these questions though, I reflect on why I chose to study abroad in the first place. Continue reading Alayna Travaglione: Her Dreams of Studying Abroad Came True
Among patient partners who reviewed Arthritis by the Numbers – a collection of verified arthritis facts and figures – was the Soler family of Georgia. Robin Soler has been active with the Arthritis Foundation ever since her younger daughter, Isabela, was diagnosed with juvenile idiopathic arthritis (JIA). At the time she was one of the youngest children in the state to be diagnosed with JIA at just 12 months old.
Over the past 15 years, mother and daughter have seen about 50 different doctors and scores of other medical experts. Isabela has taken at least 20 different types of prescription drugs – consuming more than 15,000 pills in her lifetime, not including antibiotics and other normal childhood drugs. She has missed countless parties and playdates, and one recent semester had to skip 7th period 21 times for doctor’s appointments.
Isabela’s mother, Robin, is a developmental psychologist and senior scientist at the Centers for Disease Control and Prevention in Atlanta. Robin has had her own personal experience with arthritis, diagnosed with fibromyalgia when she was 26, though her chronic pain goes back to her mid-teens.
After reviewing arthritis statistics we’ve collected, Robin’s main takeaway: “I am happy to know there is information out there, but I’m concerned about the pictures the numbers paint for parents. We and our children need to be hopeful.”