Patient Story - Karen Lomas

Nurse With Psoriatic Arthritis: “Take Care of Yourself”

As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Karen Lomas, 65, who works full-time as a nurse. Following, in her own words, is Karen’s story about living with psoriatic arthritis (PsA), which she was diagnosed with several years ago, and how the statistics she reviewed in Arthritis by the Numbers relate to her personally. Continue reading Nurse With Psoriatic Arthritis: “Take Care of Yourself”

kathy geller patient story

Rethinking Life With Severe Osteoarthritis

As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Kathy Geller, who touched many lives during the years she spent as an Arthritis Foundation exercise trainer and education program presenter – a role model for successful self-management. Following, in her own words, is Kathy’s story about living with severe degenerative osteoarthritis (OA) and how the statistics she reviewed in Arthritis by the Numbers relate to her personally.

Continue reading Rethinking Life With Severe Osteoarthritis

liz morasso patient story

Liz Morasso: Support Networks Helped Her Adjust to a New Life

As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Liz Morasso, a licensed clinical social worker at UCLA’s department of radiation oncology who has volunteered for the Arthritis Foundation since 2002. That’s when, at age 16, she was diagnosed with systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA). Over the years, she has immersed herself in leadership roles with the Foundation and speaks nationwide to inspire patients living with chronic illness.

Following, in her own words, is Liz’s story about living with these conditions and how the statistics she reviewed in Arthritis by the Numbers relate to her personally. Continue reading Liz Morasso: Support Networks Helped Her Adjust to a New Life

eileen schneider patient story

Patient Partner’s Words of Wisdom About Living With RA

As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how the disease changes and challenges everyday living.

Meet Eileen Schneider, who is a registered nurse and has a passion for patient advocacy. Following, in her own words, is her story about living with rheumatoid arthritis (RA) and how the statistics she reviewed in Arthritis by the Numbers relate to her personally.

Continue reading Patient Partner’s Words of Wisdom About Living With RA

bloggers arthritis communication

Voices: Have You Ever Hidden Your Arthritis?

Three influencers explain why they are outspoken about their rheumatoid arthritis (RA).

Thérèse HumphreyThérèse Humphrey

@TerezHumphrey; TerezFreemanHumphrey

Diagnosed in 1986, I kept my RA to myself because no one understood. There weren’t any treatments to stop the progression, and my doctor told me I could end up in a wheelchair. I was scared, and I wasn’t sure myself what was going on, so why burden others? Maybe if I didn’t talk about it, it would just go away.

Keeping it to myself only made me feel more isolated. In 2011, I started using social media to find others with RA. It is there I found my voice. By talking about the reality of living with RA, I finally felt validated, and more importantly, I was giving others – especially the newly diagnosed – encouragement and hope. It took me a long time to realize that being open to others is vital to teaching them the reality and impact of RA. Today, I am a passionate patient advocate and want to educate everyone who’s willing to care and listen about RA.

Continue reading Voices: Have You Ever Hidden Your Arthritis?

sharae mansfield

Benched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

ShaRae Mansfield vividly remembers getting the call 17 years ago saying the Houston Comets had drafted her to play in the Women’s National Basketball Association (WNBA). For the Western Kentucky University (WKU) student, the chance to play professional basketball was a dream come true.

But her WNBA career was short-lived. While she had mad skills on the court, excelling at both points and rebounds, she also had frequent pain in her shoulders, hips and especially her left knee, made worse by a torn anterior cruciate ligament (ACL). ShaRae had undergone six surgeries on it, but her continued knee problems led the Comets to release her before she completed even her first season.

Continue reading Benched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

rheumatoid arthritis patient stories

Life Doesn’t Stop with RA: How Three People Keep Doing What They Love

Mark Rucker: “Adopt a healthier lifestyle”

mark ruckerWhen Mark Rucker was diagnosed in 2015 with rheumatoid arthritis (RA) at 44, he had mixed emotions. He was glad to know what had been causing the often unbearable pain in his hands, feet, jaw and toes for the past year. But, he recalls, “I always thought RA was a disease that only affected elderly women, not someone who was in the midst of training for their second Ironman competition.”

A real estate attorney in Lexington, Kentucky, Mark in the past had been a self-described “385-pound couch potato.” Being told in 2011 that he was too big to ride on the rollercoaster with his kids spurred him to change his lifestyle. He traded in sugary sodas for water, cut processed sugar and added fruits and vegetables to his diet, and began to walk a mile each day during his lunch hour. He lost 135 pounds, and those lifestyle changes led him in 2013 to complete his first Ironman – a 2.4-mile swim, 112-mile bike ride and a 26.2-mile marathon.

Continue reading Life Doesn’t Stop with RA: How Three People Keep Doing What They Love

meg maley dating arthritis

Dating with Arthritis: Reality Couple Get ‘Real’ About What Works

Reality-star couple and Arthritis Foundation fundraisers Meg Maley, CBS’ “Big Brother” Season 17 houseguest and person with psoriatic arthritis (PsA), and Mike Holloway, winner of CBS’ “Survivor” Season 30, share the real deal of their experience dating with arthritis as the third wheel.

Continue reading Dating with Arthritis: Reality Couple Get ‘Real’ About What Works

charcandrick west jia

Every Catch Deserves a Touchdown Dance

Charcandrick West, professional football player with Louisiana roots, gets real about what keeps him going, how no hurdle is too high and why he likes to win on and off the field.

Q1: When did you realize you wanted to play football professionally?

I don’t remember the first moment I grasped a football, but the second I did, probably around age 6, I was hooked. I still remember being a kid, looking up from the field and seeing my mom and dad cheer me on. It was a thrill to know I was making people in the stands happy by giving the game my all.

I knew that I had the “it” factor – and my parents believed in me, too, which made all the difference in the world. My goal was to leave my legacy in my hometown of Cullen, Louisiana, and graduate to the “bigs.”

Continue reading Every Catch Deserves a Touchdown Dance