Since age 7, Iris Jordan has been living and thriving with polyarticular juvenile idiopathic arthritis, along with other medical conditions that were diagnosed when she was 9: Ehlers-Danlos hypermobility syndrome and pain amplification syndrome. Now 15 and a high school sophomore, Iris endures what most teens can’t even imagine. Yet despite her daily challenges, she has exceptional tenacity, pursuing the things that give her joy while navigating unpredictable pain and fatigue. Continue reading Iris Jordan – 2019 Jingle Bell Run National Youth Honoree
Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. Stanford University recently announced the recipient of the Arthritis Foundation’s Jessica Saal Bequest. This 2019-20 award is specifically awarded to a pediatric fellowship student at Stanford University. Congratulations to recipient Uptej Khalsa, MD! Continue reading Meet Uptej Khalsa: One of Our Newest Foundation-sponsored Fellows!
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Although arthritis is one of the most common diseases in the world, most people haven’t heard much about it. Or they don’t know what it really is or how it affects those who live with it. In a Harris Poll of 2,000 adults in the U.S. on behalf of the Arthritis Foundation, only 7% of them knew that arthritis is the country’s #1 cause of disability. A whopping 85% said the disease needs more attention.
As someone who lives with arthritis every day, you can help elevate arthritis awareness on Oct. 12 — World Arthritis Day. While arthritis is 24/7/365, this is a special day to remember the disease’s far-reaching impact. Continue reading World Arthritis Day 2019
Bonnie Simpson Mason, MD, faces the conference room in a power pose, hands on hips, and the medical students rise from their seats to copy her stance. Poised and confident, genial but firm, she shares her tips for success: “Be an initiator. Be a problem-solver. Be resourceful. Be that person who’s there early, who stays late, who’s always enthusiastic.” Continue reading Bonnie Simpson Mason Used to Mend Bones. Now She Nurtures Dreams.
Hi! I’m Tara, and I’m a social worker for the Arthritis Foundation Helpline. When I’m not at work, you can usually find me in the garden. Over more than 20 years as a social worker, I’ve had many roles helping people. At the Arthritis Foundation. I’ve answered thousands of questions about arthritis, how to manage it and the best ways to get and pay for care. Continue reading Open Enrollment: Q&A to Help You Get Ready
Developing new treatments for kids with arthritis is challenging. Drugs that work for adults may not work the same way in children. Ask any pediatrician and they will remind you that kids are not just small adults. Children are still growing and developing. They are different sizes and at different stages of development, which makes dosing and safety considerations more challenging. The types of additional medical conditions children experience may be very different from the conditions seen in adults. Continue reading Developing New Treatments for Kids With Arthritis
The Arthritis Foundation announces funding opportunities for two of our scientific pillar programs. These programs use patient and peer review committees for their decision-making process. Researchers and fellowship directors interested in applying for these awards should view the full application on .
Advancing Osteoarthritis (OA) Treatments:
Clinical Trial Network Request for Proposals (RFP)
The first opportunity for funding is extended to researchers through the OA virtual Center of Excellence (OA vCOE). The center oversees our Clinical Trial Network, bringing together researchers interested in finding new treatments and cures for osteoarthritis, which is the most prevalent form of the disease. The OA vCOE is seeking proposals for research projects aimed at post-traumatic OA (PTOA), the type of OA that is caused by bone or joint injuries.
Competitive proposals from independent researchers and research institutions will be considered that aim to better understand how to prevent and treat PTOA. The focus of this RFP is on clinical research that ultimately, whether directly or indirectly, impacts patient care and identifies ways to meaningfully improve health-related outcomes for patients with PTOA. The deadline for applications is November 1, 2019.
Cultivating A New Generation of Rheumatologists:
Request for Applications (RFA)
The second funding opportunity is extended to clinical rheumatology training institutions. Fellowship directors from qualified institutions — with programs that are establishing new post-residency fellowship positions in clinical rheumatology adult and/or pediatric programs — are eligible to apply. This award will provide a grant offering up to three years of initial support, for a maximum of $150,000. Grants will be awarded to programs that meet the established criteria. The deadline for applications is December 16, 2019.
The things that matter most to you in your journey with arthritis help pave the way to the education, resources and research that are needed to help you live your best life.
The Arthritis Foundation’s Patient Leadership Council (PLC) serves as the voice of people living with various types of arthritis, representing what matters most to people like you. Each of the 12 members of the PLC has a form of arthritis – OA, RA, JIA, lupus, scleroderma. They hail from all over the United States, from New York to Washington, California to Indiana, Kansas to Texas. Each of them has their own compelling story to tell. Continue reading Meet YOUR Patient Leadership Council
You may have noticed that CBD-based products have become almost as mainstream and as ubiquitous as pumpkin spice is this time of year. Touted as the magic ingredient in beauty products and snack foods, CBD (cannabidiol) seems to offer something for everyone. People with arthritis pain want to know: Is there something in it for me?
Driven almost exclusively by marketing and word of mouth, with very little science to back it up, CBD has become the buzz among people with arthritis looking for pain relief.
That’s what got the attention of Natalie Azar, MD, a rheumatologist and medical contributor for NBC News. She learned that people with arthritis were asking the Arthritis Foundation: Should I try CBD? Will it work for me?
The Arthritis Foundation recently consulted leading arthritis and CBD experts to find out what you should know about this compound, which is typically extracted from the hemp plant. The result is the Arthritis Foundation CBD Consumer Guidance for Adults with Arthritis.
We want you to be in the best position to make an informed decision with your doctor about trying CBD.
More on CBD from the Arthritis Foundation:
- Patients Tell Us About CBD Use, a July 2019 survey of 2,600 people with arthritis
- Arthritis Foundation comment letter to FDA on CBD, and the urgent need for research and product regulation
GIVE JUST 10 MINUTES. Tell us what matters most to you.
By taking part in the Live Yes! INSIGHTSSM assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others.
The 2019 Live Yes! Conference of Champions — held in Atlanta, Sept. 13-15 — highlighted the life-changing resources and powerful connections the Arthritis Foundation makes possible in the fight against arthritis. Continue reading 2019 Live Yes! Conference of Champions — Looking Out for Arthritis Patients