Category Archives: Research

CARRA study enrollment complete

New Large-scale Study to Make Personalized Medicine a Reality for Kids With JIA

Personalized treatments for children with arthritis will soon be a reality, thanks to a new research study supported by the Arthritis Foundation.

The study, the largest of its kind, is being done by the Childhood Arthritis and Rheumatology Research Alliance (CARRA), a North American research network that conducts collaborative research to find treatments and a cure for pediatric rheumatic diseases. The Arthritis Foundation has worked closely with CARRA since it was formed in 2002. Together, we’ve aligned our scientific agendas, and the Foundation has committed millions of dollars toward expanding juvenile arthritis research through CARRA.

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2018 fellow recipient Margaret Guthrie

Meet Dr. Guthrie: One of Our Newest Foundation-Sponsored Fellows!

Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. In June, we announced five new fellowship awards for 2018. One of those grant awards was offered to the University of Alabama at Birmingham (UAB) adult rheumatology program. Doctors at UAB help their community in several ways, including pilot programs in telecare, disease specific clinics, and a clinic for uninsured patients. Continue reading Meet Dr. Guthrie: One of Our Newest Foundation-Sponsored Fellows!

2018 Fellow recipient Dr. Sani

Meet Sara Sani: One of Our Newest Foundation-Sponsored Fellows!

Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. In June, we announced five new fellowship awards for 2018. One of those grant awards was offered to the University of California, San Francisco’s (UCSF) adult rheumatology program. This globally recognized program serves more than 6,000 arthritis patients each year. Continue reading Meet Sara Sani: One of Our Newest Foundation-Sponsored Fellows!

acr 2018

Patients Report on the Final ACR Conference Sessions

More than 15,000 doctors, nurses, physical therapists, researchers, scientists and others with interest and/or expertise in rheumatology gathered in Chicago in late October for the American College of Rheumatology’s Annual Meeting. The Arthritis Foundation had a contingent of “patient representatives” attending to  provide the perspective and voice of people living with arthritis. They fanned out to attend sessions, view and present posters and collect information about exciting new developments in the field. Here are their notes from the final sessions of the meeting.

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juvenile idiopathic arthritis pfdd announcement

PARTNERS Pediatric Learning Health System: New JIA Project Focuses on Improving Outcomes for Children

The Patients, Advocates, and Rheumatology Teams Network for Research and Service (PARTNERS) consortium was selected to receive a 2-year grant to implement a Pediatric rheumatology Learning Health System (LHS) that will work with networks in the Patient-Centered Outcomes Research Institute (PCORI) PCORnet Learning Healthcare System Collaborative.

The PARTNERS Pediatric LHS will provide support for patients with juvenile idiopathic arthritis (JIA) and their families to actively engage in care and self-management activities. JIA is a rare disease, making it difficult to study. Currently there is no cure for JIA. Recent advances in drug development have resulted in many therapies, including biologics. However, there remain many unanswered questions about how to use available therapies. While early diagnosis and initiation of treatment have proven to improve outcomes, variation exists in treatment patterns across providers, medical centers, and geographic locations.

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arthritis clinical trials

Arthritis-Specific Clinical Trials, at Your Fingertips

Clinical trials are an important step in testing the effects of new treatments on health outcomes. Did you know that one of the most challenging aspects of the drug approval process is finding people to take part in clinical trial studies? It’s true, and we believe one of those reasons is because patients don’t know what is available to them. That’s why we’ve created an easy-to-use search tool– the Arthritis Trial Finder – so you can easily find clinical trials that meet your needs!

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rheumatology funding

Closing the Gap on the Nation’s Rheumatologist Shortage

Many of us know that access to care isn’t always a guarantee. All too often, seeing a rheumatologist includes traveling out of state because of the severe rheumatologist shortage. Last year we committed to closing this gap by offering Fellowship grants to universities in underserved areas. After careful consideration, we recently selected five schools to receive fellowship grants to help doctors advance in this specialty field. The institutions were offered $150,000 to launch new slots for established fellowship programs.

We are thrilled to be able to offer these awards because of the impact the newly funded positions will have on their communities. Executive Director Kelsey Woods told us this of the grant given to a school in her area, “The University of Washington has long been a partner of the Arthritis Foundation in the fight to both control and cure this debilitating disease. We are so proud to continue to fund a rheumatology fellowship right here in Seattle at the UW. Healthcare access is and must continue to be a top priority in the region, and this investment is confirmation that we will continue to fight for that.”

Three adult and two pediatric rheumatology fellowships have been offered and accepted by the follow programs:

Continue reading Closing the Gap on the Nation’s Rheumatologist Shortage

carra grants 2018

Spring 2018 Childhood Research Grants Announced

We recently gave approximately $160,000 toward childhood arthritis research in the form of research grants. The grants are funded through the Childhood Arthritis and Rheumatology Research Alliance (CARRA); small grants were given to pediatric rheumatologists and fellows small grant research awards were given to third year fellowship students.

Continue reading Spring 2018 Childhood Research Grants Announced