Meet Shannan O’hara-Levi
When Shannan O’hara-Levi was only 7 months old, her mother noticed that she would wake up from naps crying and grabbing at her knees. Mrs. O’hara took her to the doctor, only to be brushed off and told it was just “growing pains” that would eventually go away. Ironically, a few years later at a routine checkup, the pediatrician asked Mrs. O’hara why Shannan wasn’t brought in earlier for her red, swollen knees. That’s when Shannan was finally diagnosed with juvenile arthritis (JA). Continue reading No One Should Be in Debilitating Pain, Especially at 3 Years Old
World Arthritis Day is Oct. 12. That’s the day when we come together from around the globe to raise awareness about arthritis, the world’s most prevalent disease. It’s the day we tell the world how arthritis ruthlessly robs quality of life, keeping many people from doing simple, everyday tasks, and often from doing the things they love.
World Arthritis Day is extra special this year because the Arthritis Foundation is officially launching our Live Yes! Arthritis Network. We’ve been working behind the scenes over the past year to create a vibrant, enriching experience for people with arthritis – to help them live their best lives..
Continue reading Launching the Live Yes! Arthritis Network on World Arthritis Day
If you’re a runner AND a parent, we’ve got the ideal opportunity for you to let off some steam, keep the kids entertained and do good for a great cause – Jingle Bell Run! Here are six reasons why it’s the perfect run for you and the kids.
Continue reading 6 Reasons Why JBR is the Perfect Fun Run for Families
Building Momentum for the Arthritis Movement
Bringing people with arthritis together has been an Arthritis Foundation specialty for 70 years. Helping them make connections with each other and with the experts and resources they need can change their lives.
This November, we’ll renew our promise to empower people with arthritis to live their best life at the 2018 Live Yes! Conference of Champions. Hundreds of Arthritis Foundation staff members, passionate volunteers and generous partners from around the country will descend on Baltimore to focus on “The Power of Connections.”
Continue reading 2018 Live Yes! Conference of Champions
Research shows that setting goals and connecting with others to help you achieve your goals can improve your health.
As a result, the Arthritis Foundation has launched the NEW Set Share Celebrate program, sponsored by Amgen, which is another source of empowerment and connection.
Continue reading Set, Share, Celebrate – Feel Empowered and Reach Your Goals
Many of us know that access to care isn’t always a guarantee. All too often, seeing a rheumatologist includes traveling out of state because of the severe rheumatologist shortage. Last year we committed to closing this gap by offering Fellowship grants to universities in underserved areas. After careful consideration, we recently selected five schools to receive fellowship grants to help doctors advance in this specialty field. The institutions were offered $150,000 to launch new slots for established fellowship programs.
We are thrilled to be able to offer these awards because of the impact the newly funded positions will have on their communities. Executive Director Kelsey Woods told us this of the grant given to a school in her area, “The University of Washington has long been a partner of the Arthritis Foundation in the fight to both control and cure this debilitating disease. We are so proud to continue to fund a rheumatology fellowship right here in Seattle at the UW. Healthcare access is and must continue to be a top priority in the region, and this investment is confirmation that we will continue to fight for that.”
Three adult and two pediatric rheumatology fellowships have been offered and accepted by the follow programs:
Continue reading Closing the Gap on the Nation’s Rheumatologist Shortage
Order your phone grip by March 31, 2018 to support the Arthritis Foundation!
Though National Arthritis Month isn’t until May, the Arthritis Foundation is already putting an even brighter spotlight on America’s #1 cause of disability.
Continue reading Getting a Head Start on Arthritis Awareness Month: PopSockets Is Helping Move the Needle
Arthritis might be far more common in the United States than previously thought, especially among adults younger than 65. That’s according to a new study published online in Arthritis & Rheumatology in November.
Researchers at Boston University School of Medicine (BUSM) undertook the study because they suspected the current estimate from the Centers for Disease Control and Prevention (CDC) – which puts the number of adults with arthritis in the U.S. at around 54 million – might be too low.
Continue reading Study Finds Many More U.S. Adults Have Arthritis Than Previously Thought
It’s 500 miles door to door. Sixteen hours of driving time roundtrip, sometimes in treacherous conditions. Three days lost … at least twice every year.
That’s what Mason Merager and his mom have experienced over the past decade, just so they could see a specialist trained to treat childhood arthritis. They’ve had to plan their trips to coincide with summer school breaks and end-of-year holidays. Without financial support, they would have had to sacrifice Mason’s health because of the overwhelming costs.
Continue reading Three Days Lost and 1,000 Miles to See a Doctor
Last week at the Conference of Champions, Andrea Avery, author and Arizona-based Foundation volunteer, shared her gripping story, intertwining her love for piano and the reality of her arthritis. Beyond sharing her personal story with hundreds of volunteers in Phoenix, she also met and performed with her inspiration, Byron Janis, master and renowned pianist. See below for an excerpt from her book, Sonata: A Memoir of Pain and the Piano.
Continue reading Andrea Avery: Composing My Life