If you’re a runner AND a parent, we’ve got the ideal opportunity for you to let off some steam, keep the kids entertained and do good for a great cause – Jingle Bell Run! Here are six reasons why it’s the perfect run for you and the kids.
The Patients, Advocates, and Rheumatology Teams Network for Research and Service (PARTNERS) consortium was selected to receive a 2-year grant to implement a Pediatric rheumatology Learning Health System (LHS) that will work with networks in the Patient-Centered Outcomes Research Institute (PCORI) PCORnet Learning Healthcare System Collaborative.
The PARTNERS Pediatric LHS will provide support for patients with juvenile idiopathic arthritis (JIA) and their families to actively engage in care and self-management activities. JIA is a rare disease, making it difficult to study. Currently there is no cure for JIA. Recent advances in drug development have resulted in many therapies, including biologics. However, there remain many unanswered questions about how to use available therapies. While early diagnosis and initiation of treatment have proven to improve outcomes, variation exists in treatment patterns across providers, medical centers, and geographic locations.
It’s a common question: “Do I need a will?” The simple answer is: Yes. Without a properly drawn will, the state in which you reside determines how your assets are distributed, including who will take care of your minor children. The only way for your wishes to be carried out after you are gone is through a properly executed will that is recognized as valid in your state.
Building Momentum for the Arthritis Movement
Bringing people with arthritis together has been an Arthritis Foundation specialty for 70 years. Helping them make connections with each other and with the experts and resources they need can change their lives.
This November, we’ll renew our promise to empower people with arthritis to live their best life at the 2018 Live Yes! Conference of Champions. Hundreds of Arthritis Foundation staff members, passionate volunteers and generous partners from around the country will descend on Baltimore to focus on “The Power of Connections.”
Arthritis is painful … and it’s relentless. The Arthritis Foundation knows the pain our community endures. Based on a survey of arthritis patients, we know that:
- The #1 goal of arthritis treatment is to “reduce pain.”
- The #1 motivator for seeking out information is “I experienced pain.”
Pain is not an easy topic to discuss, but if we bring it out of the shadows, we believe the result will be eye-opening for everyone – and uplifting in mind, body and soul for the 54 million Americans who suffer from arthritis pain. The Arthritis Foundation is advancing a national conversation about the true pain – physical and emotional – that arthritis causes.
Clinical trials are an important step in testing the effects of new treatments on health outcomes. Did you know that one of the most challenging aspects of the drug approval process is finding people to take part in clinical trial studies? It’s true, and we believe one of those reasons is because patients don’t know what is available to them. That’s why we’ve created an easy-to-use search tool– the Arthritis Trial Finder – so you can easily find clinical trials that meet your needs!
Most Arthritis Foundation donors want to make the greatest impact on the arthritis community through their current and future giving. However, some feel that family responsibilities limit their ability to give. This video shares the story of how Sam, with proper, thoughtful planning, was able to keep an important promise while making a gift to charity more powerful than he imagined.
Research shows that setting goals and connecting with others to help you achieve your goals can improve your health.
As a result, the Arthritis Foundation has launched the NEW Set Share Celebrate program, sponsored by Amgen, which is another source of empowerment and connection.
Many of us know that access to care isn’t always a guarantee. All too often, seeing a rheumatologist includes traveling out of state because of the severe rheumatologist shortage. Last year we committed to closing this gap by offering Fellowship grants to universities in underserved areas. After careful consideration, we recently selected five schools to receive fellowship grants to help doctors advance in this specialty field. The institutions were offered $150,000 to launch new slots for established fellowship programs.
We are thrilled to be able to offer these awards because of the impact the newly funded positions will have on their communities. Executive Director Kelsey Woods told us this of the grant given to a school in her area, “The University of Washington has long been a partner of the Arthritis Foundation in the fight to both control and cure this debilitating disease. We are so proud to continue to fund a rheumatology fellowship right here in Seattle at the UW. Healthcare access is and must continue to be a top priority in the region, and this investment is confirmation that we will continue to fight for that.”
Three adult and two pediatric rheumatology fellowships have been offered and accepted by the follow programs:
Arthritis is an invisible disease that affects more than 54 million Americans. The pain of arthritis can often keep people from doing the things they truly love, such as hiking or dancing, but it can also rob them of life’s simple pleasures and most basic joys, like picking up your child.
Everyone needs to know that arthritis is THE #1 disability in the United States and countless Americans are waiting for a cure. This Arthritis Awareness Month, we launched the #LetsGripArthritis campaign to put a spotlight on the brutal realities of arthritis so we can get a grip on this debilitating disease once and for all.
To show people how challenging it can be to live with arthritis, we asked our arthritis community to share their stories. This is what you shared with us.