Lupus is a chronic, autoimmune disease and affects a wide part of the body, including the joints, kidneys, skin, blood, brain and other organs. One of our six Delivering on Discovery projects focuses on Lupus and lung disease. “Lupus is a complex disease. It affects many organs. The number of lupus patients with lung inflammation is probably underestimated. Yet it negatively impacts the quality of life in these patients,” explained Dr. Caroline Jefferies. “And while we have a basic understanding about how lupus affects various organs, we need to better understand how it affects the lungs to better manage and treat it.”
Dr. Jefferies is focusing on the lungs with her 3-year Arthritis Foundation-funded project, “Inflammatory neutrophils in lupus lung disease – novel cellular target”.
Continue reading Researchers on the Path to a Cure – Spotlight on Dr. Caroline Jefferies
Biotech giant Sanofi Genzyme has initiated a voluntary product recall for one lot of Synvisc-One, a brand of hyaluronic acid. The lot, which was found to contain contamination, has been linked to an unexpected increase in side effects. In an urgent “product hold” letter, doctors, clinics and pharmacies who received syringes from that lot were instructed to immediately stop using the injections on patients until the company can investigate.
Continue reading Synvisc-One Injections Recalled
Raquel Masco is no stranger to making the most out of a difficult situation. In fact, she’s made an entire career from dusting herself off and getting back on her feet. After leaving an unhealthy relationship to raise her child alone, Raquel decided she would help others in similar situations. She co-founded the nonprofit SingleMothers4Change and has spent the last several years ensuring single moms in her Texas community have the resources they need to build an amazing life.
With her can-do attitude, it’s no surprise that an arthritis diagnosis didn’t keep her down. She’s determined to make the best of her life, even if it means working through the pain and acknowledging her limitations.
“Some days I feel like I’m being held up by a string,” she says. “I work through the pain, but also have learned how to pace myself, and that I am often more effective if I acknowledge my limitations.”
Donate today to help those like Raquel – Every ONE, Every DOLLAR can make a difference.
Continue reading Raquel Masco: Working Through the Pain
Arthritis might be far more common in the United States than previously thought, especially among adults younger than 65. That’s according to a new study published online in Arthritis & Rheumatology in November.
Researchers at Boston University School of Medicine (BUSM) undertook the study because they suspected the current estimate from the Centers for Disease Control and Prevention (CDC) – which puts the number of adults with arthritis in the U.S. at around 54 million – might be too low.
Continue reading Study Finds Many More U.S. Adults Have Arthritis Than Previously Thought
Why is my immune system attacking my joints? What is the cause? If you have rheumatoid arthritis (RA), this is something you have probably wondered at some point. It’s something Dr. Edward Doherty has wondered as well, and is currently studying. Dr. Doherty and his co-investigator, Dr. Pathricia Tilstam are studying key cells that drive inflammation in their 2-year Arthritis Foundation-funded project, “MIF/CD74 signaling as a new candidate for immunotherapy of rheumatoid arthritis”. With autoimmune disorders like RA, something triggers the immune system to malfunction and attack healthy cells, causing inflammation and disease. Dr. Doherty and Dr. Tilstam are looking for some of the triggers to help develop more effective treatments to stop progression and joint destruction.
Continue reading Researchers on the Path to a Cure – Spotlight on Dr. Edward Doherty
There is always a certain degree of guesswork that goes into year-end tax planning, but this year there is the added uncertainty surrounding what the tax code will look like after Washington completes the overhaul of our tax system. The income tax rates for many individuals and businesses may decrease; the definition of income subject to tax may change considerably as well. Many itemized deductions that we have become so used to, such as the deduction for qualified medical expenses, state and local income taxes and real estate taxes may be eliminated.
However, if the resulting new rules resemble the proposals, there will be a doubling of the standard deduction and the possible elimination of the controversial Alternative Minimum Tax. Below are some tax-planning suggestions, including suggestions related to charitable gifts, which consider both the typical year-end planning techniques as well as planning for a potential overhaul:
Continue reading Year-End Tax Planning in Uncertain Times
It’s 500 miles door to door. Sixteen hours of driving time roundtrip, sometimes in treacherous conditions. Three days lost … at least twice every year.
That’s what Mason Merager and his mom have experienced over the past decade, just so they could see a specialist trained to treat childhood arthritis. They’ve had to plan their trips to coincide with summer school breaks and end-of-year holidays. Without financial support, they would have had to sacrifice Mason’s health because of the overwhelming costs.
Continue reading Three Days Lost and 1,000 Miles to See a Doctor
It’s no secret that obesity is associated with a higher risk of developing rheumatic diseases and worse outcomes. Three new studies, presented recently at the 2017 Annual Meeting of the American College of Rheumatology, characterize in greater detail the harmful effects of excess weight in people who have rheumatoid arthritis (RA) or axial spondyloarthropathy (axSpA).
Continue reading Three New Studies Show How Extra Weight Worsens Inflammatory Arthritis
On #GivingTuesday, You Can Support Our New Rheumatology Fellowship Program
Imagine waking up every morning feeling so tired and sick that you can’t get out of bed. Your joints so swollen that you can’t put on socks or shoes. A waiting list for your doctor so long, it will be months before you’re able to get care.
That’s the reality for millions of Americans, including hundreds of thousands of children, who face a steadily shrinking pool of rheumatologists to provide care. This severe shortage means that patients often spend months waiting for appointments, with many traveling hundreds of miles for the specialized care they need.
But on November 28, #GivingTuesday, you can help change that by donating to the Arthritis Foundation and supporting our new rheumatology fellowship program.
Continue reading Every ONE, Every DOLLAR, Can Make Healthcare Accessible to All!
Last week at the Conference of Champions, Andrea Avery, author and Arizona-based Foundation volunteer, shared her gripping story, intertwining her love for piano and the reality of her arthritis. Beyond sharing her personal story with hundreds of volunteers in Phoenix, she also met and performed with her inspiration, Byron Janis, master and renowned pianist. See below for an excerpt from her book, Sonata: A Memoir of Pain and the Piano.
Continue reading Andrea Avery: Composing My Life