CARRA study enrollment complete

New Large-scale Study to Make Personalized Medicine a Reality for Kids With JIA

Personalized treatments for children with arthritis will soon be a reality, thanks to a new research study supported by the Arthritis Foundation.

The study, the largest of its kind, is being done by the Childhood Arthritis and Rheumatology Research Alliance (CARRA), a North American research network that conducts collaborative research to find treatments and a cure for pediatric rheumatic diseases. The Arthritis Foundation has worked closely with CARRA since it was formed in 2002. Together, we’ve aligned our scientific agendas, and the Foundation has committed millions of dollars toward expanding juvenile arthritis research through CARRA.

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CVS partner for Let's Get Grip Arthritis

An Ancient Disease That Needs More Visibility

 The earliest traces of arthritis date back to prehistoric times, detected in the fossils of dinosaurs. The first signs of arthritis in humans were found in the skeletal remains of Native Americans, going back as far as 4500 BC. Ever since, this insidious disease has fanned out across the world. Some estimates put the number of those affected globally at approximately 350 million. Continue reading An Ancient Disease That Needs More Visibility

Giving Tuesday 2018

On This Day of Global Giving, Help Cure Arthritis

Today is the day – it’s time to join the fight against arthritis by participating in #GivingTuesday! November 27, 2018, is a global day dedicated to giving back and celebrating generosity. When you give to the Arthritis Foundation, you help support our commitment to helping the 54 million Americans with arthritis. Give, so the 300,000 children who struggle with arthritis pain daily can say Yes to childhood. Give, so we can fund research for better treatments and a cure. Give, to help make possible more life-changing tools and resources. Continue reading On This Day of Global Giving, Help Cure Arthritis

Giving Tuesday Shannan Ohara

No One Should Be in Debilitating Pain, Especially at 3 Years Old

Meet Shannan O’hara-Levi

When Shannan O’hara-Levi was only 7 months old, her mother noticed that she would wake up from naps crying and grabbing at her knees. Mrs. O’hara took her to the doctor, only to be brushed off and told it was just “growing pains” that would eventually go away. Ironically, a few years later at a routine checkup, the pediatrician asked Mrs. O’hara why Shannan wasn’t brought in earlier for her red, swollen knees. That’s when Shannan was finally diagnosed with juvenile arthritis (JA). Continue reading No One Should Be in Debilitating Pain, Especially at 3 Years Old

2018 fellow recipient Margaret Guthrie

Meet Dr. Guthrie: One of Our Newest Foundation-Sponsored Fellows!

Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. In June, we announced five new fellowship awards for 2018. One of those grant awards was offered to the University of Alabama at Birmingham (UAB) adult rheumatology program. Doctors at UAB help their community in several ways, including pilot programs in telecare, disease specific clinics, and a clinic for uninsured patients. Continue reading Meet Dr. Guthrie: One of Our Newest Foundation-Sponsored Fellows!

2018 Fellow recipient Dr. Sani

Meet Sara Sani: One of Our Newest Foundation-Sponsored Fellows!

Because access to care is not always guaranteed, we’ve been working to help close the gap on the nation’s rheumatologist shortage through our fellowship initiative. In June, we announced five new fellowship awards for 2018. One of those grant awards was offered to the University of California, San Francisco’s (UCSF) adult rheumatology program. This globally recognized program serves more than 6,000 arthritis patients each year. Continue reading Meet Sara Sani: One of Our Newest Foundation-Sponsored Fellows!

evening of honors

2018 Evening of Honors: Paying Tribute to Top Supporters

pete scaliaAn annual highlight of the Arthritis Foundation’s Conference of Champions is our Evening of Honors – a time when we celebrate outstanding achievements of our most engaged volunteers and partners.

This year’s ceremony was hosted by Pete Scalia, co-anchor of WBNS 10TV’s “This Morning” news program in Columbus, Ohio. Diagnosed with severe rheumatoid arthritis at age 30, Pete has been very open about the challenges of living with RA and is actively involved with the Arthritis Foundation.

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conference of champions

2018 Conference of Champions: Moving the Movement Forward

This weekend, the Arthritis Foundation’s most engaged volunteers from around the country are gathering in Baltimore’s East Harbor for the 2018 Conference of Champions. This annual national event is where hundreds of volunteers – joined by other committed Foundation partners and staff – network with each other, share ideas and get energized around plans that will help more people with arthritis live their best life.

Kicking off the conference is Rob Wicall, former San Antonio Spurs Coyote Mascot and chair of that market’s local leadership board for the Arthritis Foundation. Rob will share his own outlook about making others happy and how to convince them that they really can make a difference. We’ll also explore how data collection is helping shape local programs and services for people with arthritis through the new Live Yes! Arthritis Network.

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Welcome to Campus: A New Community for Students with Arthritis

Going off to college can be a tough transition for anyone. But if you’re a teen with arthritis, starting college can pose unique challenges: leaving behind family and friends who understand and support your health needs, navigating campus on foot when every step causes pain, watching roommates go out at night when you need sleep just to function and feeling like you’re the only young person in the world with a disease associated with old age.

Rachel Mershon and Caroline Bailey know the feeling all too well. Diagnosed with arthritis at age 14, Mershon left home for the first time two years ago to pursue a degree in nutrition at Cal Poly, San Luis Obispo. Bailey was diagnosed with ankylosing spondylitis just months before the start of her freshman year at the University of Mississippi. Both young women say the transition to college life was a difficult – and lonely at times.

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acr 2018

Patients Report on the Final ACR Conference Sessions

More than 15,000 doctors, nurses, physical therapists, researchers, scientists and others with interest and/or expertise in rheumatology gathered in Chicago in late October for the American College of Rheumatology’s Annual Meeting. The Arthritis Foundation had a contingent of “patient representatives” attending to  provide the perspective and voice of people living with arthritis. They fanned out to attend sessions, view and present posters and collect information about exciting new developments in the field. Here are their notes from the final sessions of the meeting.

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