Tag Archives: Childhood Arthritis & Rheumatology Research Alliance

carra registry

Funding Juvenile Research Coordinators Across the County

The Arthritis Foundation is funding a new program to help support the Childhood Arthritis and Rheumatology Research Alliance (CARRA) and the CARRA Registry (registry). Eight sites were selected to receive funding to support the salary of a dedicated registry research coordinator for one year. Until now, some sites have been short-handed for this important research position.

Researchers collect information through studies on many pediatric patients with rheumatic diseases over time and store it in the registry.  Research coordinators play a critical role in making sure research studies run smoothly. Those supported by this program will:

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carra treatment plans

A New Way to Compare How Different Treatments Work for Patients with Pediatric Rheumatic Diseases

Every family whose child receives a diagnosis of a rheumatic disease (such as juvenile idiopathic arthritis (JIA), lupus, dermatomyositis and scleroderma) wants the best treatment and care. The doctors who treat your child also want to provide the best treatment and care for their patients.  Over the past 20 years, new discoveries and medicines have greatly improved the lives of children with rheumatic diseases.  Many new treatment choices are good, but how can we know which medication will work the best for each child?  What if we can learn the answer to this question by simply collecting information on how usual care and treatment work for a lot of children with the same disease?

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