July may be best known for watching fireworks, eating ice cream and splashing in the pool. But it’s also the month when we recognize that one out of every 250 kids in the United States lives with some form of juvenile arthritis (JA).
As we prepare for the 2017 National Juvenile Arthritis Conferences, here are five things to know from our Conference Chair, Katy Carter, if you’re getting ready to join us this summer!
Calling All JA Warriors!
With the theme of the 2017 JA Conference being JA Warriors, we want to know how YOU are #StrongerThanJA! We are JA Warriors. Every day, we deal with the challenges of juvenile arthritis. While our situations are unique, we’re in this together. Bold, brave and bright. Battling whatever gets in our way and celebrating our victories. As JA Warriors, we stick together, determined to win the fight against JA.
The Arthritis Foundation is excited to announce the launch of the iPeer2Peer Mentorship Program, a new initiative that aims to provide help and support for teens with juvenile arthritis and related childhood rheumatic diseases.
The iPeer2Peer Program was developed by the iOUCH (improving Outcomes in Child Health through Technology) research team at the Hospital for Sick Children in Ontario, Canada to help teens with chronic disease better manage their condition.
Continue reading Arthritis Foundation to Pilot Peer Mentorship Program
From Mobile, Alabama to the shores of Waialua, Hawaii, the Arthritis Foundation is proud to host camp programs for kids with juvenile arthritis and related childhood rheumatic diseases. Camp programs provide a safe and secure camping experience for both children and teens. Some locations also offer family camps – an opportunity for the entire family to attend together.
Katy Carter of Los Angeles says, “When our daughter Rhiannon was seven years old, she wanted to meet other kids with arthritis. She wanted to know that she wasn’t alone, that there were other kids just like her. This was a defining moment in our lives. Of course she wanted to meet other kids. Of course she was feeling isolated. She had this strange disease that none of her friends had ever heard of and didn’t understand. As her mother, I wanted to make everything perfect for her little life and protect her from the reality of her diagnosis. But, I couldn’t be that friend her age that ‘gets it’.”
Continue reading Juvenile Arthritis Camps: Why JA Camp is an Experience You Can’t Miss
The assignment was to write a memoir on the most influential moment in your life. As simple as it sounds, for 16-year-old Kimberly Vieau, the task wasn’t that easy.
“We were supposed to pick a happy memory,” said Kimberly. “But I don’t have many happy memories from my childhood.”
Continue reading Turning Pain into Inspiration: Arthritis Memoir Earns an “A”
We are JA Warriors! Every day over 300,000 children, teens, young adults and their families deal with the challenges of juvenile arthritis and related rheumatic diseases. While each situation is unique, we’re in this together. All-in. Battling whatever gets in our way and celebrating our victories, large and small. We stick together, determined to win the fight against JA. We are bold, brave and bright. And we are proud to announce the 2017 National Juvenile Arthritis Conference theme: JA Warriors!
Continue reading Announcing the 2017 National Juvenile Arthritis Conference Theme: JA Warriors!
The scholarship application process for the 2017 National Juvenile Arthritis Conference is now open! Interested families and young adults (ages 18-25) are welcome to apply for a scholarship award that will assist in the cost of traveling to or attending this year’s conference in Houston, Texas or Indianapolis, Indiana. Applications must be submitted by February 26, 2017 to be considered, and all applicants will be notified by April 24, 2017.
Continue reading JA Conference Scholarship Applications Now Being Accepted!
The National Juvenile Arthritis Conference is well known for its ability to bring kids with rheumatic diseases and their families together for a weekend full of hope, inspiration and connections. The one question that gets asked the most is – “but how do we afford to get there?” For many families dealing with a constant stream of medical expenses, it may not be feasible to plan for a weekend conference that, depending on where you may live, might include extensive travel.
Continue reading Juvenile Arthritis Conference Scholarships Offer A Helping Hand
Dr. Timothy Beukelman, a pediatric rheumatologist, has been looking at the safety of a group of drugs that are successfully used to treat children with juvenile idiopathic arthritis (JIA). One of his current research projects, called “Tumor Necrosis Factor (TNF) Inhibitors and the Risk of Malignancy in the Treatment of JIA”, was presented at the 2016 ACR conference in Washington, DC.
Continue reading Pediatric Rheumatologist & Researcher Dr. Timothy Beukelman Evaluates Cancer Risk for JIA Patients Taking TNF Inhibitors
What makes you stronger than arthritis? We asked this question to the kids, siblings, parents and caregivers that attended this year’s National Juvenile Arthritis Conference this summer. We know that any victory is worth celebrating, whether it is being able to tie your shoes in the morning or walking the Walk to Cure Arthritis course. Sometimes it’s not a physical feat that is accomplished, but being able to attend school more or finding a new passion for music and art.
Continue reading JA Conference Teens Shares Stories of Being Stronger Than Arthritis