July may be best known for watching fireworks, eating ice cream and splashing in the pool. But it’s also the month when we recognize that one out of every 250 kids in the United States lives with some form of juvenile arthritis (JA).
As we prepare for the 2017 National Juvenile Arthritis Conferences, here are five things to know from our Conference Chair, Katy Carter, if you’re getting ready to join us this summer!
Calling All JA Warriors!
With the theme of the 2017 JA Conference being JA Warriors, we want to know how YOU are #StrongerThanJA! We are JA Warriors. Every day, we deal with the challenges of juvenile arthritis. While our situations are unique, we’re in this together. Bold, brave and bright. Battling whatever gets in our way and celebrating our victories. As JA Warriors, we stick together, determined to win the fight against JA.
The assignment was to write a memoir on the most influential moment in your life. As simple as it sounds, for 16-year-old Kimberly Vieau, the task wasn’t that easy.
“We were supposed to pick a happy memory,” said Kimberly. “But I don’t have many happy memories from my childhood.”
Continue reading Turning Pain into Inspiration: Arthritis Memoir Earns an “A”
Dr. Timothy Beukelman, a pediatric rheumatologist, has been looking at the safety of a group of drugs that are successfully used to treat children with juvenile idiopathic arthritis (JIA). One of his current research projects, called “Tumor Necrosis Factor (TNF) Inhibitors and the Risk of Malignancy in the Treatment of JIA”, was presented at the 2016 ACR conference in Washington, DC.
Continue reading Pediatric Rheumatologist & Researcher Dr. Timothy Beukelman Evaluates Cancer Risk for JIA Patients Taking TNF Inhibitors
Marina Gomez of Wichita, KS has been a gymnast since she was just 4-years-old. In 2012 and 2013 she won consecutive gold medals at the Junior Olympic National Championship in competitive trampoline. Marina was looking forward to a long gymnastics career but after she was diagnosed with juvenile arthritis (JA) in 2013, her gymnastics career was cut short.
Continue reading From Gymnastics Gold to JA: How Gymnastics & Juvenile Arthritis Changed Marina Gomez’s Life
When a child or teen is diagnosed with juvenile arthritis (JA), they might feel alone or not able to do activities they’ve done easily in the past. Art for Arthritis, an Arthritis Foundation fundraising event being held in three cities in September, gives children and teens diagnosed with JA or a rheumatic disease a feeling of togetherness and creative expression. Through these life-changing events, kids are paired with a professional artist and together, they turn a potentially challenging and painful situation into beautiful and inspiring pieces of art.
Continue reading Art for Arthritis: Getting Creative in the Fight Against Juvenile Arthritis
From the San Francisco bay to the shores of Boston, Massachusetts, over 1,000 children and their families, young adults and health care professionals descended upon the desert of Phoenix, Arizona for the 32nd Annual National Juvenile Arthritis Conference. The first of two JA Conferences this year hosted by the Arthritis Foundation brought together first time attendees and veteran families who have returned to the annual conference.
Continue reading 2016 Juvenile Arthritis Conference West a Success!
As the iconic voice and host of NBC’s American Ninja Warrior, Matt Iseman cheers on athletes every day as they weave their way through different obstacle courses and challenges. Last night at the Opening Dinner of the 2016 National Juvenile Arthritis Conference West in Phoenix, Arizona, Matt sent a touching video message to our JA Warriors full of hope and well wishes.
Continue reading Matt Iseman Shares Touching Video With Families at Juvenile Arthritis Conference
Every day we come across kids and their families who are stronger than arthritis. We hear about their accomplishments, whether it is smiling through soreness, or receiving the game ball from a well-pitched baseball game. Earlier this year we came across a photo of two bright eyed, smiling faces enjoying their time together at a previous JA Conference.
Continue reading Stronger Than JA: Strength In Numbers
Did you know that July is Juvenile Arthritis (JA) Awareness month? An estimated 300,000 children in the U.S. — that’s 1 in 250 kids — are affected by some form of JA. This disease takes a unique physical and emotional toll on kids, often resulting in debilitating pain and feelings of loneliness or depression. JA can make it especially challenging for kids to say Yes — Yes to playing, Yes to hanging out with friends, Yes to spending time with family, Yes to being a kid!
Continue reading July Is Juvenile Arthritis Awareness Month