From Mobile, Alabama to the shores of Waialua, Hawaii, the Arthritis Foundation is proud to host camp programs for kids with juvenile arthritis and related childhood rheumatic diseases. Camp programs provide a safe and secure camping experience for both children and teens. Some locations also offer family camps – an opportunity for the entire family to attend together.
Katy Carter of Los Angeles says, “When our daughter Rhiannon was seven years old, she wanted to meet other kids with arthritis. She wanted to know that she wasn’t alone, that there were other kids just like her. This was a defining moment in our lives. Of course she wanted to meet other kids. Of course she was feeling isolated. She had this strange disease that none of her friends had ever heard of and didn’t understand. As her mother, I wanted to make everything perfect for her little life and protect her from the reality of her diagnosis. But, I couldn’t be that friend her age that ‘gets it’.”
Continue reading Juvenile Arthritis Camps: Why JA Camp is an Experience You Can’t Miss
The assignment was to write a memoir on the most influential moment in your life. As simple as it sounds, for 16-year-old Kimberly Vieau, the task wasn’t that easy.
“We were supposed to pick a happy memory,” said Kimberly. “But I don’t have many happy memories from my childhood.”
Continue reading Turning Pain into Inspiration: Arthritis Memoir Earns an “A”
We are JA Warriors! Every day over 300,000 children, teens, young adults and their families deal with the challenges of juvenile arthritis and related rheumatic diseases. While each situation is unique, we’re in this together. All-in. Battling whatever gets in our way and celebrating our victories, large and small. We stick together, determined to win the fight against JA. We are bold, brave and bright. And we are proud to announce the 2017 National Juvenile Arthritis Conference theme: JA Warriors!
Continue reading Announcing the 2017 National Juvenile Arthritis Conference Theme: JA Warriors!
The scholarship application process for the 2017 National Juvenile Arthritis Conference is now open! Interested families and young adults (ages 18-25) are welcome to apply for a scholarship award that will assist in the cost of traveling to or attending this year’s conference in Houston, Texas or Indianapolis, Indiana. Applications must be submitted by February 26, 2017 to be considered, and all applicants will be notified by April 24, 2017.
Continue reading JA Conference Scholarship Applications Now Being Accepted!
The National Juvenile Arthritis Conference is well known for its ability to bring kids with rheumatic diseases and their families together for a weekend full of hope, inspiration and connections. The one question that gets asked the most is – “but how do we afford to get there?” For many families dealing with a constant stream of medical expenses, it may not be feasible to plan for a weekend conference that, depending on where you may live, might include extensive travel.
Continue reading Juvenile Arthritis Conference Scholarships Offer A Helping Hand
Dr. Timothy Beukelman, a pediatric rheumatologist, has been looking at the safety of a group of drugs that are successfully used to treat children with juvenile idiopathic arthritis (JIA). One of his current research projects, called “Tumor Necrosis Factor (TNF) Inhibitors and the Risk of Malignancy in the Treatment of JIA”, was presented at the 2016 ACR conference in Washington, DC.
Continue reading Pediatric Rheumatologist & Researcher Dr. Timothy Beukelman Evaluates Cancer Risk for JIA Patients Taking TNF Inhibitors
What makes you stronger than arthritis? We asked this question to the kids, siblings, parents and caregivers that attended this year’s National Juvenile Arthritis Conference this summer. We know that any victory is worth celebrating, whether it is being able to tie your shoes in the morning or walking the Walk to Cure Arthritis course. Sometimes it’s not a physical feat that is accomplished, but being able to attend school more or finding a new passion for music and art.
Continue reading JA Conference Teens Shares Stories of Being Stronger Than Arthritis
Marina Gomez of Wichita, KS has been a gymnast since she was just 4-years-old. In 2012 and 2013 she won consecutive gold medals at the Junior Olympic National Championship in competitive trampoline. Marina was looking forward to a long gymnastics career but after she was diagnosed with juvenile arthritis (JA) in 2013, her gymnastics career was cut short.
Continue reading From Gymnastics Gold to JA: How Gymnastics & Juvenile Arthritis Changed Marina Gomez’s Life
When a child or teen is diagnosed with juvenile arthritis (JA), they might feel alone or not able to do activities they’ve done easily in the past. Art for Arthritis, an Arthritis Foundation fundraising event being held in three cities in September, gives children and teens diagnosed with JA or a rheumatic disease a feeling of togetherness and creative expression. Through these life-changing events, kids are paired with a professional artist and together, they turn a potentially challenging and painful situation into beautiful and inspiring pieces of art.
Continue reading Art for Arthritis: Getting Creative in the Fight Against Juvenile Arthritis
In 2015, the Arthritis Foundation committed to offering two National Juvenile Arthritis Conferences in hopes of serving more families affected by JA and related childhood rheumatic diseases. In 2016, the conferences brought in record numbers – more than half of which were families that attended the JA Conference for the very first time. This means that more children, teens, parents, caregivers and young adults were able to connect with others that share the same concerns, struggles, triumphs and Yes moments!
Continue reading Veteran Families Continue to Benefit from the JA Conference