In 1989, eight-year-old Gina Yocum attended Camp MASH in Wisconsin for the first time. She had so much fun at JA Camp that she went back the next summer – and then 28 more after that. For the first 10 years, Gina attended camp as a camper; this June will be her 20th year as a staff member.
The Arthritis Foundation is funding a new program to help support the Childhood Arthritis and Rheumatology Research Alliance (CARRA) and the CARRA Registry (registry). Eight sites were selected to receive funding to support the salary of a dedicated registry research coordinator for one year. Until now, some sites have been short-handed for this important research position.
Researchers collect information through studies on many pediatric patients with rheumatic diseases over time and store it in the registry. Research coordinators play a critical role in making sure research studies run smoothly. Those supported by this program will:
Every family whose child receives a diagnosis of a rheumatic disease (such as juvenile idiopathic arthritis (JIA), lupus, dermatomyositis and scleroderma) wants the best treatment and care. The doctors who treat your child also want to provide the best treatment and care for their patients. Over the past 20 years, new discoveries and medicines have greatly improved the lives of children with rheumatic diseases. Many new treatment choices are good, but how can we know which medication will work the best for each child? What if we can learn the answer to this question by simply collecting information on how usual care and treatment work for a lot of children with the same disease?
Leaping tall buildings may not be what we actually do but overcoming the daily challenges of juvenile arthritis takes a SUPER kid. By learning how to overcome obstacles and connecting with others, families use their super powers to fight arthritis.
Each day over 300,000 children, teens, young adults and their families deal with the daily pain of juvenile arthritis and related childhood rheumatic diseases. The Arthritis Foundation is here to empower our kids, teens, young adults and their families through support, education and forging connections. Together, we are determined to win the fight against JA. And together, we are unstoppable against arthritis.
Now, more than ever, we need you to become involved with research about your disease. Without the participation of patients and parents, research cannot advance toward a cure.
Specifically, in Juvenile Arthritis (JA), parents and patients play a critical role in research – you are experts when it comes to the issues that are important to you or your child’s health and daily quality of life.
Today is the last day to apply for a JA Conference travel award!
In its 34th year, the Arthritis Foundation’s National Juvenile Arthritis Conference has brought kids with rheumatic diseases and their families together for a weekend full of education, inspiration and connecting with others on a similar journey.
For many families managing with a constant stream of medical expenses, it may not be feasible to plan for a weekend conference that, depending on where you may live, might include extensive travel. The Arthritis Foundation is pleased to offer limited financial assistance to families wishing to attend the JA Conference who meet certain criteria.
Travel Award applications (formerly scholarships) for the 2018 National Juvenile Arthritis Conference are now being accepted! Interested families and young adults (ages 18-25) are welcome to apply for a travel award that will assist in the cost of traveling to or attending this year’s conference in Seattle, Washington or Washington, D.C. Applications must be submitted by February 26, 2018 to be considered, and all applicants will be notified by March 30, 2018.
Juvenile arthritis (JA) affects nearly 300,000 kids and families in the United States. Of all the forms of arthritis, juvenile idiopathic arthritis (JIA) is the most common type of arthritis in children. For almost seven decades, the Arthritis Foundation has upheld our unwavering promise to assist them and their caregivers. In an ongoing effort to include the patient voice in everything we do, we’re asking you – patients, parents, loved ones and others with a connection to JIA – to tell us what JIA research matters to you.
This year marks the 50th anniversary of the Arthritis Foundation’s partnership with Alpha Omicron Pi (AOII) women’s fraternity. AOII’s unwavering commitment has helped the foundation serve millions of adults and children with arthritis through research, advocacy and community-based programs.
“We are so honored and proud to partner with such a worthy organization,” says Gayle Fitzpatrick, AOII’s International President. “For 50 years, we’ve stayed committed to the Foundation’s cause; raising money and providing hands-on support for camps, community initiatives and fundraising events.”
Over the weekend, Indianapolis, Indiana played host to the second location of the two 2017 National Juvenile Arthritis Conferences. The Arthritis Foundation welcomed almost 1,000 kids, teens, young adults and their families to an exciting and spirited weekend of education, networking and fun.
For the second year in a row, the Arthritis Foundation hosted two JA Conference locations to serve more kids, families and young adults affected by JA and related childhood rheumatic diseases across the country, while also welcoming back returning veteran families. More than 60 percent of Indianapolis attendees were able to experience the JA Conference for the first time and came from 39 US states, Puerto Rico and Canada.