Right now, somewhere nearby, there’s a child who longs to run and play and have the same kind of fun other kids his age are having. Who dreams about being pain-free without having to swallow a cocktail of pills, or feel the sting of injections, or go through hours of infusions at the doctor’s office. A kid who longs for an end to the trial-and-error approach of treating juvenile arthritis (JA) – seeing what works and what doesn’t, often with unpleasant side effects along the way. Continue reading World Juvenile Arthritis Day: Help Shine a Light on JA
From Cooper Landing, Alaska, to the beaches of West Palm Beach, Florida, the Arthritis Foundation is proud to host camp programs for kids and teens with juvenile arthritis and related childhood rheumatic diseases. Besides providing a safe and secure camping experience for children and teens, some locations also offer family camps – an opportunity for the entire family to attend together. Continue reading JA Camps Make a Life-changing Difference for Kids With Arthritis
Year after year, the Arthritis Foundation’s National Juvenile Arthritis Conference has brought kids with rheumatic diseases and their families together for a weekend full of education, inspiration and connecting with others on a similar journey. Continue reading Deadline Fast Approaching for JA Conference Travel Awards!
In 2018, the Arthritis Foundation launched its Live Yes! Connect pilot program for parents of children living with juvenile arthritis and other childhood rheumatic disease. In addition to providing emotional and social support, the program offers educational resources and seminars to help parents improve the quality of life for their children. Jessica Ward, whose 11-year-old daughter Mercy was diagnosed with JA at age 4, is the sole parent facilitator for the JA parent group in Columbus, Ohio. We chatted with her to hear her insights about the parent group, including benefits, future plans and the best ways to get involved. Continue reading Live Yes! Connect for JA Parents: Q&A with Jessica Ward, JA Parent Facilitator
The Arthritis Foundation is proud to announce that the 2019-2020 Winterhoff Arthritis Scholarship application process opens January 31, 2019. Continue reading Winterhoff Arthritis Scholarship Applications Now Being Accepted
Hundreds of patients and their families, FDA staff, industry leaders, and researchers convened in Washington, D.C. to participate in the externally-led JIA Patient-Focused Drug Development (PFDD) meeting on August 2, 2018. The meeting served as a kickoff event to the 4-day Arthritis Foundation JA Conference East. Juvenile idiopathic arthritis (JIA) is the most common type of juvenile arthritis (JA). In many children, it’s a life-long illness with a high risk of disease and treatment-related morbidity. There is no cure, and treatments for children are limited.
This meeting, which is part of our strategy to help find a cure for this serious disease, provided an opportunity for patients, patient advocates, and caretakers to talk about the symptoms and issues that matter most to them. JIA parents and their families shared information about the impact of JIA on daily life, the symptoms that are most challenging, experiences with currently available treatments and the need for new and different treatments.
JIA patients and their families were invited to attend in-person and via a live webcast. They shared their experiences by responding to a live poll and discussion questions. Three patients and nine parent panelists told stories about how JIA impacts their daily lives and discussed the wide range of treatments they have tried.
Each summer as school lets out and the weather starts to get warmer, there’s an excitement in the air felt all the way from Long Beach, California to the shores of Long Island, New York. There are always good reasons to be excited for some time off, but for many children, teens, young adults and their families affected by juvenile arthritis and related rheumatic diseases – the Arthritis Foundation’s National Juvenile Arthritis Conference has become the summer event to look forward to.
Over two long weekends in late June and early August, more than 1,800 attendees made their way to Seattle, Washington and Washington, DC to take part the 2018 JA Conference. As done in previous years, the Arthritis Foundation hosted two JA Conference locations to serve even more kids, families and young adults affected by childhood rheumatic diseases across the country, while also welcoming home returning veteran families.
In both cities, more than half of conference participants were first time attendees to the JA Conference, experiencing everything the four-day conference had to offer. Kids and teens were treated to their own specialized programming including peer-led activities, educational sessions and fun social happenings. At the same time, parents choose their own breakout sessions throughout the day – from disease-specific sessions hosted by top doctors and health care experts to topics such as educational rights in schools and transitioning from adolescent to adult medicine. This year, we also live-streamed two of our most popular sessions for those that were not able to join us in person.
Superheroes Seen in Washington DC – the 2018 National Juvenile Arthritis Conference Begins Today!
Nearly 900 superheroes – kids, teens, young adults and their families – from across the country, have been seen banding together in Washington DC!
DC serves as the second location of the Arthritis Foundation’s signature National Juvenile Arthritis (JA) Conference. The JA Conference is a unique opportunity for families, kids, teens and young adults affected by JA and other rheumatic diseases to connect with others and spend the weekend networking, learning, sharing tips and forming friendships.
Join us at the externally-led JIA Patient-Focused Drug Development meeting
We are hosting, along with our partner, the Childhood Arthritis and Rheumatology Research Alliance (CARRA), the Juvenile Idiopathic Arthritis Patient-Focused Drug Development (PFDD) meeting. This meeting, driven by our patients and caregivers, will provide the U.S. Food and Drug Administration (FDA) and industry personnel with input directly from you on how this disease affects your life, your experiences with current treatments, and the need for newer and better treatments.
On June 28th, friends and families from all over the United States flocked to Bellevue, Washington, to connect, play and learn at the 2018 National Juvenile Arthritis Conference. With a turnout of over 1,000 people, the event began with a bang and was a massive success!
Now that the Conference has wound down, it is officially July, which is Juvenile Arthritis Awareness Month! And the Arthritis Foundation wants YOU to join the fight!