Tag Archives: juvenile arthritis

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Junior Ambassador Spotlight – Ethan Berkovitz, Ohio

From Ethan Berkovitz

My name is Ethan Berkovitz, I am a 16-year-old high school sophomore  and my favorite sports are soccer and futsal, a type of indoor soccer with five players per team.  I play on the U.S. Youth Futsal 16-and-under National Team, and this summer I got to compete and represent our country in Costa Rica.  I have been playing soccer since I was 3 years old – and I have juvenile arthritis.

I didn’t always have juvenile arthritis. It all started when I was 8 years old,  when I started having pain in my legs, hands and wrists. I thought I was having growing pains, but it got worse and worse in just a few short months. I couldn’t even walk down the stairs, or to the bus stop, so my dad had to carry me.  Sometimes, I didn’t make it to school because I didn’t feel very well and I would get fevers, so I felt really sick.  I loved playing all kinds of sports back then with my friends and I was on lots of different teams.  I also would ride my bike, skateboard, rollerblade and much more.

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Juvenile Arthritis Advocates

Young Advocates in Pennsylvania Speak Out

School is out, so now what do you do to engage your kids? On June 29, a number of parents took their families to Harrisburg, PA, to participate in the 2016 Pennsylvania Advocacy and Access Day. Some of the youth were already pros having attended previous advocacy days and our Advocacy Summit in Washington, DC. For others it was a first time experience.
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pediatric rheumatologist shortage

Bringing The Fight For Families To Capitol Hill

JA-Conference-fingerprints-arthritis-foundation-briefingThis week, the Arthritis Foundation, alongside the American College of Rheumatology (ACR) and the National Psoriasis Foundation (NPF), advocated for the arthritis community on Capitol Hill by raising awareness concerning the shortage of pediatric rheumatologists across the country and the difficulties families face in obtaining treatment for juvenile arthritis.

Acting as moderator of the presentation, AF CEO Ann Palmer initiated the meeting with Hill staffers by focusing on the lack of pediatric rheumatologists in the United States; she also offered an anecdote from the JA Conference in July where children expressed their desires to plead to members of Congress for their assistance obtaining improved access to doctors in order to feel less pain and to help find a cure for JA.

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