Tag Archives: Arthritis Foundation advocacy

2017 Advocacy Summit Highlights

Success at Summit! Advocates Meet with Congress as American Health Care Act Released

The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.

Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
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adv-summit-day2

Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.

Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
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2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
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2016 Arthritis Foundation Platinum Ambassadors

Record Number of Advocates Earn Platinum Ambassador Status

A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.

Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.

“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
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California Advocacy

Arthritis Foundation Advocates Help Achieve 3 Big Victories in California!

Recently, the Arthritis Foundation lead the charge in the passage of three new laws in the state of California that will ensure patient care and continue to keep prescription costs low. The laws focused on issues dealing with Biosimilar Substitution, Step Therapy, and controlling out-of-pocket costs for residents of California.

With specific regard to the new legislation regulating the step therapy process, Krystin Herr, vice president of government affairs and advocacy in the pacific region for the Arthritis Foundation, stated, “Many patients with complex chronic conditions, such as rheumatoid arthritis, do not always fit a ‘one size fits all’ approach to medication. However, step therapy protocols do not reflect that.”

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California Advocacy

Victory in California – Breaking Down Step Therapy Barriers!

For those living with arthritis and those fighting to conquer it, there are no shortage of barriers, bottlenecks and even days where No becomes the norm. As part of our efforts to fully support the arthritis community and break down those barriers to achieve more moments of Yes, we fight on many levels, including legislative, to make real change that impacts the lives of the over 50 million people living with this disease. Today, we celebrate a big victory for the 5.9 million people (38,000 of whom are children) in California living with arthritis.

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Advocate for Arthritis

Improve the Lives of Those with Arthritis: Become an Advocate

Help us win the fight against arthritis! Join the Arthritis Foundation’s army of over 125,000 Advocates and help us make positive changes on Capitol Hill and across the nation. Through powerful grassroots advocacy, our Advocates make their opinions and stories known on numerous arthritis-related policy priorities, including:

  • Out-of-pocket medication costs
  • Access to timely, affordable patient care
  • Research and prevention of arthritis and related diseases
  • And building a strong Congressional Arthritis Caucus

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Advocates Keep Arthritis Research Funding From Being Eliminated!

Thanks to the efforts of Arthritis Foundation Advocates, an amendment that could cut vital arthritis research in the Senate Defense Authorization bill will not go to the floor of the Senate for a vote! Over 58 letters and phone calls were made to senators last week by Arthritis Foundation Advocates to preserve the research program.  Last week, Sen. John McCain (R-AZ) filed an amendment to the National Defense Authorization Act asking that all research not directly related to deployment, combat, recovery and rehabilitation be defunded.  The amendment could have cut some of the arthritis research currently being conducted by the Department of Defense, and made researchers more cautious in the type of research they pursue.  Even research that gets funded would have had to go through extra hoops to ensure it is related to specific military functions.

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