Tag Archives: arthritis foundation advocacy summit

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Empowered Advocates of All Ages Share Their Stories at the Advocacy Summit

Anna and Graci Diggs are on their way home. And they feel pretty good.

Anna and Graci are from Tipton, Missouri, and, along with 388 other people from all parts of the country, they traveled to Washington, D.C., March 14-15, for the Arthritis Foundation’s Advocacy Summit.

“We came to Advocacy Summit because we are dealing with some issues with my daughter’s arthritis that can be changed here at the Capital,” said Anna. “So we feel it’s important that our voices be heard. Hopefully we can make a difference.”

Graci is 10-years-old and has juvenile polyarticular arthritis.

The two-day event started on Monday with welcome remarks by Ann Palmer, president and CEO of the Arthritis Foundation, who was followed by Sandie Preiss, vice president of Advocacy & Access, who introduced attendees to the advocacy program and key issues that would be discussed. Christopher Kush, CEO of the political consulting group, Soapbox, walked guests through a lively do’s and don’ts of communicating with legislators.
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Yes Flags Advocacy Summit

Finding Their Voices: Advocates Prepare for Meetings on the Hill

sophie-norah-advocate-arthritisDay 1 of the 2016 Advocacy Summit has wrapped and featured learning and training sessions ranging from mock meetings on the Hill, to ways to use social media to advocate, to sessions for advocates to learn how to begin their Capital Hill journeys. Like most attendees, April McCaslin and her daughter, Nora, and Meredith Meyer and her daughter, Sophie, are both excited and nervous for their meetings with Congress members tomorrow.

April and Nora are from East Syracuse, New York, and Meredith and Sophie are from Hilton, New York. Both kids have juvenile polyarticular arthritis and, while this is their first Arthritis Foundation Advocacy Summit, they are no strangers to Foundation activities.
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2016 Arthritis Advocacy Summit

Nearly 400 Advocates Arrive in D.C. for 2016 Arthritis Foundation Advocacy Summit

From the frosty snowbanks of Fairbanks, Alaska to the salty shores of Cape Elizabeth, Maine and everywhere in between, nearly 400 Arthritis Foundation Advocates from 48 states are converging on Washington, D.C. over the next two days for the Foundation’s 2016 Advocacy Summit.

While in Washington, these Advocates will learn about issues affecting people living with arthritis, then meet with members of Congress, telling their personal arthritis stories, and asking for support. Advocates will ask Congress members to support legislation that will address the severe shortage of pediatric rheumatologists (H.R. 1859, Ensuring Children’s Access to Specialty Care Act of 2015) and to establish $20 million in dedicated Department of Defense funding for arthritis programs and research.
Continue reading Nearly 400 Advocates Arrive in D.C. for 2016 Arthritis Foundation Advocacy Summit

Virtual Arthritis Advocacy Summit

What is the Virtual Advocacy Summit and How Can I Participate?

Your voice matters! And this month, you’ll have the opportunity to tell Congress exactly what you think — even though you might not be able to join us on Capitol Hill.

The Arthritis Foundation’s Virtual Summit provides people who are not attending the 2016 Advocacy Summit an easy and effective way to share their arthritis story and ask Congress for support – without actually being in Washington, DC. The Virtual Summit consists of two different components. Continue reading What is the Virtual Advocacy Summit and How Can I Participate?

2016 Arthritis Foundation Advocacy Summit

Find Your Voice: Registration for the 2016 Advocacy Summit is Now Open

Each year, the Arthritis Foundation hosts its Advocacy Summit, which allows people from all around the nation to come together and learn how to communicate with lawmakers and advocate for people with arthritis. The Advocacy Summit creates opportunities to meet with and build relationships with members of Congress while telling your story and taking tangible steps to improve access to care and awareness of the issues and barriers facing the arthritis community.

Find your voice. You can help us conquer arthritis!

Video: Hear From Our Advocates & Community Why You Should Join Us

The 2016 Advocacy Summit is March 14th – March 15th at the Crystal Gateway Marriott in Arlington, Virginia! For more information and to register, visit: www.arthritis.org/advocacysummit.