Tag Archives: arthritis advocacy

Arthritis 101 Congressional Briefing

Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!

Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
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Arthritis Patients Access Treatment

Arthritis Foundation Meets with Centers for Medicare and Medicaid Services & America’s Health Insurance Plans to Continue the Fight in Improving Patient Access

Our work in identifying and addressing issues that are affecting your access to care and drug costs continued this past month as we met with the Centers for Medicare and Medicaid Services (CMS), and America’s Health Insurance Plans (AHIP).
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Medicare Part B Demonstration Proposal Withdrawn

21st Century Cures Act Passes House of Representatives – A Big Win for the Arthritis Community

Thanks in large part to the hard work of our Advocates, the 21st Century Cures Act passed the House of Representatives on Nov. 30, clearing a major hurdle as the bill moves closer to enactment. If enacted, this comprehensive bill will improve access to life-changing care through several initiatives including: Continue reading 21st Century Cures Act Passes House of Representatives – A Big Win for the Arthritis Community

Arthritis Industry Forum

Patient Voice Has Strong Representation at 2016 Arthritis Industry Forum

Representatives from the employee benefits and pharmaceutical fields convened with members of the arthritis patient community, Arthritis Foundation and the federal government in Washington, DC, on October 5-6, 2016, to discuss issues related to arthritis patient barriers to health care. The two-day event featured insightful presentations from industry experts covering topics from how employers make employee benefit decisions to the evolution of healthcare reform.
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Advocate for Arthritis August Recess

Arthritis Advocates Meet with Members of Congress During August Recess: Push for Support of the Ensuring Access to Children’s Specialty Care Act

Every summer Congress takes a break and each member of Congress departs Washington, D.C. for their home district. This break dates back to a time when most members of Congress had other responsibilities back home, most notably returning to their farms for harvest. The break, often referred to as August Recess, has evolved into an opportunity for the members to head home and meet with their constituents.
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Arthritis Step Therapy Illinois

Victory in Illinois! Bill to Curb Step Therapy Signed into Law by Governor Bruce Rauner!

Imagine going to your healthcare provider and being told that your medication is no longer covered by your insurance. Kim and Gary Kitowski, of Columbia, IL, have faced that reality more than once. Kim, an Arthritis Foundation Ambassador, has lived with arthritis for more than 30 years and her husband, Gary, was diagnosed with multiple sclerosis eight years ago. Because of step therapy, both have fought for access to medications that were prescribed by their doctors.
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Arthritis Biosimilars Pennsylvania

Pennsylvania Arthritis Advocates Achieve Biosimilar Substitution Success!

Devon SalasinDevon Salasin is a junior at Penn State University and a talented snow skier. So good, that she recently placed 23rd out of 107 skiers at the National Collegiate Alpine Race. But skiing wasn’t always fun or easy for Devon.

In 2011, Devon was diagnosed with juvenile rheumatoid arthritis (JRA). Overnight she went from a carefree kid pursuing her snow ski racing passion to a kid burdened with pain, swollen and deteriorating joints, and fatigue.
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Arthritis Foundation State Advocacy

Arthritis Foundation Collaborates with Providers at the State Level to Advocate for the Arthritis Community

Our advocacy team is incredibly active at the state level, leading the way to make sure that arthritis patients have access to critical medications. Our volunteer Advocates make a significant impact and help achieve tangible results by sharing their stories and asking elected officials to support legislation that is important to them and their families. But beyond fighting for key legislative changes and being vocal in raising awareness and sharing stories that help put faces with arthritis, we also make strides for the arthritis community when we link the voices of patient with the provider community – as we have done recently and successfully in New York and Ohio.
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2016 Arthritis Advocacy Summit

Nearly 400 Advocates Arrive in D.C. for 2016 Arthritis Foundation Advocacy Summit

From the frosty snowbanks of Fairbanks, Alaska to the salty shores of Cape Elizabeth, Maine and everywhere in between, nearly 400 Arthritis Foundation Advocates from 48 states are converging on Washington, D.C. over the next two days for the Foundation’s 2016 Advocacy Summit.

While in Washington, these Advocates will learn about issues affecting people living with arthritis, then meet with members of Congress, telling their personal arthritis stories, and asking for support. Advocates will ask Congress members to support legislation that will address the severe shortage of pediatric rheumatologists (H.R. 1859, Ensuring Children’s Access to Specialty Care Act of 2015) and to establish $20 million in dedicated Department of Defense funding for arthritis programs and research.
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