Tag Archives: arthritis advocacy

american health care act advocacy

Senate Health Bills Fall Short for Arthritis Community

The Senate is expected to open debate today on two bills that repeal and replace the Affordable Care Act. Tell your senator to vote no and work to write a health bill that serves patients!

Not getting health insurance because you have a pre-existing condition.

Thousands upon thousands of dollars in out-of-pocket costs every year with no end in sight.

Fear of reaching your maximum lifetime benefit because you take expensive drugs or had multiple surgeries and hospital stays.

This is what life looked like for many people before the Affordable Care Act (ACA) was passed into law in 2010. While the ACA is far from perfect, it offers critical protections like caps on annual out-of-pocket spending, a ban on lifetime coverage limits, a prohibition on pre-existing conditions exclusions and minimum essential health benefits like prescription drugs and hospitalizations.

Since January, Congress has been focused on repealing and/or replacing the ACA. Today, the Senate is expected to open debate to repeal or replace the ACA with either the Better Care Reconciliation Act of 2017 (BCRA) or the Obamacare Repeal Reconciliation Act of 2017 (ORRA). Either of these bills will be damaging for people with chronic diseases like arthritis, as they fail to meet our principles for health reform and will result in lost coverage for tens of millions of people.

Simply put, these two bills, crafted without input from patient advocates, are not the answer.

We need your help to make sure the BCRA and ORRA bills do not get passed by the Senate. We’ve done all the hard work for you by creating a templated email that you can use to tell lawmakers that access to prescription drugs, continuous health coverage, and caps on annual out-of-pocket spending are important to you, and to vote no on these bills. All you have to do is click a few buttons. It’s quick and easy, but more important, it gives your legislators the feedback needed to understand that these bills do not adequately serve people with chronic conditions like arthritis. Send your email now!

Visit our website to learn more about these bills and how they might affect you, including a FAQ, letter to Congress and a webinar we co-hosted with the American College of Rheumatology. Also check out resources from the National Health Council.

Patients are the ultimate stakeholders in health care and your voice matters now more than ever. Use your voice. Tell your story. Help us secure a bipartisan solution that demands accessible and affordable healthcare for the arthritis community!

california-advocacy-summit

California Advocates Work for Passage of Bill That Will Improve Continuity of Care When Insurance Carrier Changes

It’s not uncommon for patients to change their insurance carriers. Sometimes it’s by choice, perhaps because they find a carrier that better suits their needs. Other times, it might be out of their control, like when their employment changes. Regardless of why carriers are changed, should patients be required to restart the utilization management process with their new insurance carrier, essentially starting over and potentially undoing years of effective and consistent care? Continue reading California Advocates Work for Passage of Bill That Will Improve Continuity of Care When Insurance Carrier Changes

Pennsylvania Capitol Day

35 Attend Capitol Day in Pennsylvania Advocating for Prior Authorization and Copay Cap Bills

Families, physicians and patients gathered in Harrisburg, PA on March 28 to learn more about potential legislation that could affect access to care and meet with their legislators to enlist their help. They shared their stories with legislators and asked them to cosponsor the prior authorization bill and the copay cap bill. It was an impactful day of relationship building using personal stories to communicate the urgent need for support and passage of these bills.
Continue reading 35 Attend Capitol Day in Pennsylvania Advocating for Prior Authorization and Copay Cap Bills

2017 Advocacy Summit Highlights

Success at Summit! Advocates Meet with Congress as American Health Care Act Released

The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.

Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
Continue reading Success at Summit! Advocates Meet with Congress as American Health Care Act Released

adv-summit-day2

Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.

Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
Continue reading Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
Continue reading 400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

Arthritis 101 Congressional Briefing

Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!

Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
Continue reading Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!