Tag Archives: arthritis advocacy

2017 Advocacy Summit Highlights

Success at Summit! Advocates Meet with Congress as American Health Care Act Released

The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.

Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
Continue reading Success at Summit! Advocates Meet with Congress as American Health Care Act Released

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Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.

Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
Continue reading Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
Continue reading 400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

Arthritis 101 Congressional Briefing

Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!

Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
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Arthritis Patients Access Treatment

Arthritis Foundation Meets with Centers for Medicare and Medicaid Services & America’s Health Insurance Plans to Continue the Fight in Improving Patient Access

Our work in identifying and addressing issues that are affecting your access to care and drug costs continued this past month as we met with the Centers for Medicare and Medicaid Services (CMS), and America’s Health Insurance Plans (AHIP).
Continue reading Arthritis Foundation Meets with Centers for Medicare and Medicaid Services & America’s Health Insurance Plans to Continue the Fight in Improving Patient Access

Medicare Part B Demonstration Proposal Withdrawn

21st Century Cures Act Passes House of Representatives – A Big Win for the Arthritis Community

Thanks in large part to the hard work of our Advocates, the 21st Century Cures Act passed the House of Representatives on Nov. 30, clearing a major hurdle as the bill moves closer to enactment. If enacted, this comprehensive bill will improve access to life-changing care through several initiatives including: Continue reading 21st Century Cures Act Passes House of Representatives – A Big Win for the Arthritis Community

Arthritis Industry Forum

Patient Voice Has Strong Representation at 2016 Arthritis Industry Forum

Representatives from the employee benefits and pharmaceutical fields convened with members of the arthritis patient community, Arthritis Foundation and the federal government in Washington, DC, on October 5-6, 2016, to discuss issues related to arthritis patient barriers to health care. The two-day event featured insightful presentations from industry experts covering topics from how employers make employee benefit decisions to the evolution of healthcare reform.
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Advocate for Arthritis August Recess

Arthritis Advocates Meet with Members of Congress During August Recess: Push for Support of the Ensuring Access to Children’s Specialty Care Act

Every summer Congress takes a break and each member of Congress departs Washington, D.C. for their home district. This break dates back to a time when most members of Congress had other responsibilities back home, most notably returning to their farms for harvest. The break, often referred to as August Recess, has evolved into an opportunity for the members to head home and meet with their constituents.
Continue reading Arthritis Advocates Meet with Members of Congress During August Recess: Push for Support of the Ensuring Access to Children’s Specialty Care Act

Arthritis Step Therapy Illinois

Victory in Illinois! Bill to Curb Step Therapy Signed into Law by Governor Bruce Rauner!

Imagine going to your healthcare provider and being told that your medication is no longer covered by your insurance. Kim and Gary Kitowski, of Columbia, IL, have faced that reality more than once. Kim, an Arthritis Foundation Ambassador, has lived with arthritis for more than 30 years and her husband, Gary, was diagnosed with multiple sclerosis eight years ago. Because of step therapy, both have fought for access to medications that were prescribed by their doctors.
Continue reading Victory in Illinois! Bill to Curb Step Therapy Signed into Law by Governor Bruce Rauner!