Tag Archives: #advocateforarthritis

2017 Advocacy Summit Highlights

Success at Summit! Advocates Meet with Congress as American Health Care Act Released

The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.

Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
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Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.

Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
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2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
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Clark Middleton Arthritis Advocacy Summit

Advocacy Summit 2017: Up Close with Actor and Foundation Advocate Clark Middleton

Clark Middleton, the talented actor currently on NBC’s “The Blacklist” and Hulu’s “The Path,” is packing his bags and heading to Washington, DC, with hundreds of other Arthritis Foundation Advocates – to raise his voice and share his story at the Advocacy Summit.

Clark’s journey with juvenile rheumatoid arthritis (JRA) started as a young child, helping shape who he is today – and why he’s extremely passionate about patient rights and access to affordable health care for those with chronic diseases. Clark opened up about his lifelong journey with JRA.
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2016 Arthritis Foundation Platinum Ambassadors

Record Number of Advocates Earn Platinum Ambassador Status

A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.

Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.

“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
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2017 Kids and Teen Advocacy Summit

More than 100 Kids and Teens to Meet with Members of Congress at Advocacy Summit

Arthritis is not just your grandparent’s disease, and at this year’s Advocacy Summit, our young participants will tell Members of Congress that kids get arthritis, too!

On March 6 and 7, more than 400 people affected by arthritis from all across the country will convene in Washington, DC, as part of the Arthritis Foundation’s 2017 Advocacy Summit.

Attendees will include an estimated 100 kids and teens who will participate in a special Kids and High School Summit track. Uniquely designed for kids/teens who are affected by juvenile arthritis and childhood rheumatic diseases, this track includes interactive activities that will empower them with the skills and confidence they need to raise awareness for the arthritis community, young and old, and help change perceptions of this disease. Then they will meet with Members of Congress, educating them about barriers to health care and motivating them to consider all people who live with arthritis when they design health care legislation.
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Empowered Advocates of All Ages Share Their Stories at the Advocacy Summit

Anna and Graci Diggs are on their way home. And they feel pretty good.

Anna and Graci are from Tipton, Missouri, and, along with 388 other people from all parts of the country, they traveled to Washington, D.C., March 14-15, for the Arthritis Foundation’s Advocacy Summit.

“We came to Advocacy Summit because we are dealing with some issues with my daughter’s arthritis that can be changed here at the Capital,” said Anna. “So we feel it’s important that our voices be heard. Hopefully we can make a difference.”

Graci is 10-years-old and has juvenile polyarticular arthritis.

The two-day event started on Monday with welcome remarks by Ann Palmer, president and CEO of the Arthritis Foundation, who was followed by Sandie Preiss, vice president of Advocacy & Access, who introduced attendees to the advocacy program and key issues that would be discussed. Christopher Kush, CEO of the political consulting group, Soapbox, walked guests through a lively do’s and don’ts of communicating with legislators.
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Yes Flags Advocacy Summit

Finding Their Voices: Advocates Prepare for Meetings on the Hill

sophie-norah-advocate-arthritisDay 1 of the 2016 Advocacy Summit has wrapped and featured learning and training sessions ranging from mock meetings on the Hill, to ways to use social media to advocate, to sessions for advocates to learn how to begin their Capital Hill journeys. Like most attendees, April McCaslin and her daughter, Nora, and Meredith Meyer and her daughter, Sophie, are both excited and nervous for their meetings with Congress members tomorrow.

April and Nora are from East Syracuse, New York, and Meredith and Sophie are from Hilton, New York. Both kids have juvenile polyarticular arthritis and, while this is their first Arthritis Foundation Advocacy Summit, they are no strangers to Foundation activities.
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