At this year’s 2019 Advocacy Summit, the Arthritis Foundation was excited to welcome Meg Maley, CBS’ “Big Brother” Season 17 houseguest, as a first-time Advocate.
Meg was diagnosed with psoriatic arthritis (PsA) when she was just 12 years old. After her time on “Big Brother” came to a close, Meg decided to use her newly-found platform as an opportunity to share her story of living with PsA and uveitis. Since then, she has emceed the Walk to Cure Arthritis in New York City and hosted a multitude of fundraisers to benefit the Arthritis Foundation.
Did you know that the Empowered to Live Yes! Advocacy Summit is taking place in Washington, DC this March 11-12? There, our Advocates and Ambassadors will gather together to be the voice for arthritis on Capitol Hill. We’re calling on you to help amplify the impact of our in-person meetings with legislators by participating virtually in our #AdvocateforArthritis social media campaign on Tuesday, March 12.
You have an important role to play in making sure these messages stand out to our members of Congress—you can help us #AdvocateforArthritis by participating in our social media campaign. With over 97% of Congress using social media platforms like twitter and facebook to connect with their constituents and learn about what is important to them, we have an enormous power to influence our policymakers by uniting online!
You can take action in five easy steps:
Create your sign: Print out this sign and in one sentence, written large and legible, tell us why you #AdvocateforArthritis!
Take your picture: Hold your sign and snap a picture- it’s important that your words are large and easy to read in the picture. Ask a friend to take your picture so they can help make sure your message is clear!
Set an alarm: Our goal is to flood the internet with our messages of hope and determination at 12:00 pm Eastern Time on March 12. Coordinating our posts will help our hashtag gain traction on social media. Set an alarm on your phone or calendar right now to remind yourself to post your picture online at 12:00 pm eastern on March 12!
Send it live: On March 12 at 12:00 pm Eastern Time, your alarm will ring to tell you it’s time to share your story online. You can view all of the posts in our social media aggregator on our Advocate 101 web page.
If you want to take your post to the next level, you can:
Tag your members of Congress. Your post can tell them why you #AdvocateforArthritis and to keep an eye out for our Advocacy Champions on the Hill that day.
Example tweet: “I #AdvocateforArthritis with the @ArthritisFdn because patients are the ultimate stakeholders in health care. @ SenatorCantwell& @PattyMurray, look out for our Arthritis Advocates on Capitol Hill this March 12!”
Share a Link to our Action Center. Encourage your friends to take action by your side by sharing a link to org/actioncenter. There they’ll be able to pick an action alert of their choice that will allow them to send a pre-formatted letter to Congress,emphasizing the asks from our Advocacy Summit. This will help us amplify the voices on Capitol Hill an encourage members of Congress to support our arthritis priorities.
Example tweet: “I #AdvocateforArthritis with the @ArthritisFdn because patients are the ultimate stakeholders in health care. Take action with me by sharing your story with Congress at arthritis.org/actioncenter
Raise Awareness for your Walk to Cure Arthritis Team Page.By posting your reason to #AdvocateforArthritis with a link to your team or donation page, you have an opportunity to reach new people with your message and motivate them to help contribute to research for a cure.
Example tweet, “I #AdvocateforArthritis because I am one of the 300,000 children in the United States with juvenile arthritis. You can support my @ArthritisFdn advocacy by joining or contributing to my Walk to Cure Arthritis Team. [Include a link to your team page]”
Post your pictures with our #AdvocateforArthritis hashtag and we will show the world that we are Empowered to Live Yes!
Here are some sample signs to help you brainstorm:
I #AdvocateforArthritis because sharing my story gives me hope and purpose in my daily battle with this disease.
I #AdvocateforArthritis because people with arthritis deserve a cure.
I #AdvocateforArthritis because my child lives with JA & because of the Arthritis Foundation, she knows she/he is not alone.
I #AdvocateforArthritis because I need to protect my access to my medications so that I can continue to walk.
I #AdvocateforArthritis because I am the 1 in 3 military veterans that came home with this disease.
“Advocacy is really important to me because it gave me back the voice I thought I’d lost,” says Kwiecien, who was diagnosed with juvenile rheumatoid arthritis (now known as juvenile idiopathic arthritis) when she was 18 months old. During her elementary and middle school years, Kwiecien’s peers were unfazed by her condition and her teachers were understanding. But high school was different.
Scores of the most passionate and vocal champions of the arthritis community recently descended on the nation’s capital to hone their advocacy skills and share their personal stories with each other and with their members of Congress. Attended by nearly 130 participants from 32 states, the Arthritis Foundation’s new Platinum Ambassadors Assembly was held March 12-13.
Platinum Ambassadors are top grassroots volunteers who complete six annual advocacy assignments and raise at least $1,000 to support the Foundation’s mission to conquer and cure arthritis. Forty-eight of our fifty-one Platinum Ambassadors participated in the first-of-its-kind event, along with 25 Junior Ambassadors, young people ages 13 to 17 who speak out for the estimated 300,000 kids in the U.S. who battle arthritis. Also attending were 30 future advocacy leaders, highly-engaged Arthritis Foundation volunteers who have committed to achieving Platinum Ambassador status in 2018.
Earlier this week, we held our first ever Platinum Ambassador Assembly in Washington, D.C. The Assembly is a meeting for our most highly engaged advocacy volunteers to hone their skills, meet other Platinum Ambassadors from around the country and share their stories with members of Congress. Our Junior Ambassadors and future leaders – volunteers committed to achieving Platinum Ambassador status in 2018 – were also in attendance to learn, share their stories and fight for the over 54 million Americans who are living with arthritis. Continue reading Platinum Ambassador Assembly – Highlights from Capitol Hill→
A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.
Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.