Tag Archives: advocate

Safe Step Act Needs Your Support

Read about what step therapy put a young arthritis patient through.

My name is Sophie Sherman, and I am a rising high school senior from Brookline, Massachusetts. When I was 11, my parents started to notice that I wasn’t acting like myself. Instead of spending time with my friends after school, I would take four-hour-long naps on the living room sofa. Instead of asking for seconds on pasta night, I would barely touch my plate. It seemed like everything I did, be it physical or mental, consumed every ounce of my energy. Continue reading Safe Step Act Needs Your Support

pediatric rheumatologist shortage

Bringing The Fight For Families To Capitol Hill

JA-Conference-fingerprints-arthritis-foundation-briefingThis week, the Arthritis Foundation, alongside the American College of Rheumatology (ACR) and the National Psoriasis Foundation (NPF), advocated for the arthritis community on Capitol Hill by raising awareness concerning the shortage of pediatric rheumatologists across the country and the difficulties families face in obtaining treatment for juvenile arthritis.

Acting as moderator of the presentation, AF CEO Ann Palmer initiated the meeting with Hill staffers by focusing on the lack of pediatric rheumatologists in the United States; she also offered an anecdote from the JA Conference in July where children expressed their desires to plead to members of Congress for their assistance obtaining improved access to doctors in order to feel less pain and to help find a cure for JA.

Continue reading Bringing The Fight For Families To Capitol Hill