Tag Archives: advocate for arthritis

Iowa State Capitol

Victory in Iowa! Governor Branstad Signs into Law a Bill to Curb Step Therapy!

The Iowa arthritis community is celebrating Governor Branstad signing into law House File 233 on May 10, 2017.

The bill, unanimously passed by both chambers, puts limits on an insurance industry protocol known as step therapy which requires patients to try and fail medications identified by the insurance company before agreeing to cover medications prescribed by the treating physician. The bill will increase access to care for arthritis patients by limiting step therapy practices in Iowa.
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Washington DC Arthritis Advocacy Victory

The Nation’s Capital Caps the Out-of-Pocket Costs of Medications

Congratulations D.C. Advocates! Because of your efforts, Washington, D.C. Mayor Muriel Bowser signed the Specialty Drug Copayment Limitation Act. In the law, “specialty drug” means a prescription drug that is prescribed for a person with a physical, behavioral, or developmental condition that may have no known cure, is progressive, or can be debilitating or fatal if left untreated or undertreated, such as multiple sclerosis, hepatitis C and rheumatoid arthritis.
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Pennsylvania Capitol Day

35 Attend Capitol Day in Pennsylvania Advocating for Prior Authorization and Copay Cap Bills

Families, physicians and patients gathered in Harrisburg, PA on March 28 to learn more about potential legislation that could affect access to care and meet with their legislators to enlist their help. They shared their stories with legislators and asked them to cosponsor the prior authorization bill and the copay cap bill. It was an impactful day of relationship building using personal stories to communicate the urgent need for support and passage of these bills.
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West Virginia Step Therapy

Step Therapy Win in West Virginia!

Step therapy is a cost saving tactic used by insurers that requires people with arthritis and other potentially debilitating conditions to try and fail lower-cost medications before covering more expensive treatments. In other words, insurance companies oftentimes disregard treating physicians’ knowledge of their patients and related expertise, forcing patients to try cheaper medications, all to save a few dollars.
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2017 Advocacy Summit Highlights

Success at Summit! Advocates Meet with Congress as American Health Care Act Released

The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.

Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
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Iowa Biosimilar Substitution Law Signed

Victory in Iowa: Biosimilar Legislation Signed Into Law!

Iowa has recently joined 27 other states that have passed biosimilars legislation.  On behalf of the 619,000 adults (plus 2,800 children) in Iowa with doctor-diagnosed arthritis, we’d like to thank Governor Branstad for signing House File 305 into law on Friday, March 10, 2017.

The bill allows Iowa pharmacists the ability to dispense safe and potentially less expensive biologic medications to patients, by substituting an FDA approved interchangeable biosimilar for a prescribed biologic product.  The law also requires that the prescriber and patient be notified when there is a substitution.
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adv-summit-day2

Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories

Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.

Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
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2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
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Clark Middleton Arthritis Advocacy Summit

Advocacy Summit 2017: Up Close with Actor and Foundation Advocate Clark Middleton

Clark Middleton, the talented actor currently on NBC’s “The Blacklist” and Hulu’s “The Path,” is packing his bags and heading to Washington, DC, with hundreds of other Arthritis Foundation Advocates – to raise his voice and share his story at the Advocacy Summit.

Clark’s journey with juvenile rheumatoid arthritis (JRA) started as a young child, helping shape who he is today – and why he’s extremely passionate about patient rights and access to affordable health care for those with chronic diseases. Clark opened up about his lifelong journey with JRA.
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2016 Arthritis Foundation Platinum Ambassadors

Record Number of Advocates Earn Platinum Ambassador Status

A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.

Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.

“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
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