Tag Archives: advocate for arthritis

21st Century Cures Act

Answering Your Questions About the New Tax Reform Legislation

On Wednesday, December 20, Congress passed the Tax Cuts and Jobs Act (TCJA). There were several health-related changes included in the legislation, such as a repeal of the Affordable Care Act’s individual mandate, and changes to the medical expenditure tax deduction. Below we explain the key health provisions that made it into the final law, how it may impact you, and what’s next.

Let’s start with the individual mandate.
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rebecca gillett

Platinum Ambassador Spotlight—Rebecca Gillett, Colorado

In 2016, I was fortunate to attend the Arthritis Foundation Advocacy Summit in Washington D.C. alongside some seasoned advocacy veterans from Denver. I had never met with my legislators or shared my story before, so it was a new experience. It was easy to “catch the bug” for advocacy being surrounded by so many other fellow arthritis patient advocates who want to make a difference for all of us. Raising awareness and fundraising for arthritis has been an integral part of my life for the past several years, but advocacy has become an even greater passion. This year, I achieved the Platinum Ambassador Award and will attend the Arthritis Foundation’s Platinum Ambassador Assembly this March 12-13, 2018.

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lori fagan arthritis ambassador spotlight

Ambassador Spotlight – Lori Fagan, Virginia

From Lori Fagan

I have been living with rheumatoid arthritis (RA) for over a decade. As a full-time working mom and wife living with a chronic condition, the last thing I need is the added strain of fighting with my health insurer.

Unfortunately, because of a common health insurance practice known as “step therapy,” the last 10 years have been a constant and stressful battle.

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biosimilars win in new work

Victory in New York! Biosimilar Legislation Signed Into Law

On behalf of the more than 3.6 million New Yorkers (including 18,400 children) with doctor-diagnosed arthritis, the Arthritis Foundation thanks Governor Andrew Cuomo for signing biosimilar legislation into law. The new law, A.7509/S.4788, enhances patient access to new and innovative medications while ensuring that pharmacists are communicating critical and up-to-date medical information about patients to physicians.

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american health care act

Answering Your Questions About the Latest Administration Actions on Health Care

On Thursday, October 12, 2017, the Administration took two actions on health care that could affect coverage for people who have health insurance through the exchanges.

President Trump signed an executive order that opens the door for the expansion of association health plans, which aren’t subject to the same level of patient protections as required by the Affordable Care Act (ACA). Second, the Administration announced the discontinuation of cost-sharing reduction payments, which are payments to health insurers that help reduce out-of-pocket costs for low income people who purchase insurance on the health exchanges.

Read on to learn more about the Administration’s actions and their potential impacts on the arthritis community.

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american health care act advocacy

Senate Health Bills Fall Short for Arthritis Community

The Senate is expected to open debate today on two bills that repeal and replace the Affordable Care Act. Tell your senator to vote no and work to write a health bill that serves patients!

Not getting health insurance because you have a pre-existing condition.

Thousands upon thousands of dollars in out-of-pocket costs every year with no end in sight.

Fear of reaching your maximum lifetime benefit because you take expensive drugs or had multiple surgeries and hospital stays.

This is what life looked like for many people before the Affordable Care Act (ACA) was passed into law in 2010. While the ACA is far from perfect, it offers critical protections like caps on annual out-of-pocket spending, a ban on lifetime coverage limits, a prohibition on pre-existing conditions exclusions and minimum essential health benefits like prescription drugs and hospitalizations.

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Texas Step Therapy Win

Victory in Texas – Legislation Limits Step Therapy

Exciting news in Texas! On May 23, Governor Greg Abbott signed Senate Bill 680 into law, limiting the use of step therapy. Texas now joins a growing number of states that have enacted laws that regulate the use of step therapy. With over 4 million adults and 24,900 kids with doctor-diagnosed arthritis in Texas, this is a major victory!

Step therapy is used by health insurance providers to control the order and use of prescriptions drugs. A patient could be required to try and fail lower-cost or other drugs selected by their insurance provider before coverage is granted for the drug prescribed by the patient’s treating physician. For patients, this barrier to care prevents timely access to doctor prescribed treatments and can be the difference between full mobility and joint damage.
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Maryland Biosimilars Advocacy

Victory for Maryland! Biosimilar Bill Signed by the Governor!

We applaud Maryland Governor Larry Hogan for joining 28 other states in creating a pathway for the substitution of biologic medications with biosimilars by signing the Pharmacists – Substitution and Dispensing of Biological Products bill into law.

Biologics are life altering drugs for people with arthritis and are very complex products made with living cells. Because of this complexity they are expensive. Biosimilars, are a new class of drugs that are similar to biologics. They have the potential to lower medication costs.
Continue reading Victory for Maryland! Biosimilar Bill Signed by the Governor!