Tag Archives: advocacy

California Advocacy

Arthritis Foundation Advocates Help Achieve 3 Big Victories in California!

Recently, the Arthritis Foundation lead the charge in the passage of three new laws in the state of California that will ensure patient care and continue to keep prescription costs low. The laws focused on issues dealing with Biosimilar Substitution, Step Therapy, and controlling out-of-pocket costs for residents of California.

With specific regard to the new legislation regulating the step therapy process, Krystin Herr, vice president of government affairs and advocacy in the pacific region for the Arthritis Foundation, stated, “Many patients with complex chronic conditions, such as rheumatoid arthritis, do not always fit a ‘one size fits all’ approach to medication. However, step therapy protocols do not reflect that.”

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California Advocacy

Victory in California – Breaking Down Step Therapy Barriers!

For those living with arthritis and those fighting to conquer it, there are no shortage of barriers, bottlenecks and even days where No becomes the norm. As part of our efforts to fully support the arthritis community and break down those barriers to achieve more moments of Yes, we fight on many levels, including legislative, to make real change that impacts the lives of the over 50 million people living with this disease. Today, we celebrate a big victory for the 5.9 million people (38,000 of whom are children) in California living with arthritis.

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Arthritis Advocacy in Illinois

Advocates in Illinois Get a Big Win for Biosimilars

Illinois SB 455Thanks in large part to the many letters, calls and visits made by Arthritis Foundation Advocates in Illinois, on July 30, Gov. Bruce Rauner (R – IL) signed Senate Bill 455 into law.

The law creates a pathway for the introduction and use of biosimilars into the mainstream marketplace. Biosimilar medications have the potential to provide safe and effective treatment to people with arthritis at a potentially lower cost than name-brand biologic medications.

Biologics are carefully engineered, and they can never truly be duplicated. This means that even biosimilars deemed interchangeable are not generic replicas of original biologics. Nationwide, states are now enacting legislation to create a pathway for biosimilars because current laws on generic substitution do not have jurisdiction on biosimilars.

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Advocates Keep Arthritis Research Funding From Being Eliminated!

Thanks to the efforts of Arthritis Foundation Advocates, an amendment that could cut vital arthritis research in the Senate Defense Authorization bill will not go to the floor of the Senate for a vote! Over 58 letters and phone calls were made to senators last week by Arthritis Foundation Advocates to preserve the research program.  Last week, Sen. John McCain (R-AZ) filed an amendment to the National Defense Authorization Act asking that all research not directly related to deployment, combat, recovery and rehabilitation be defunded.  The amendment could have cut some of the arthritis research currently being conducted by the Department of Defense, and made researchers more cautious in the type of research they pursue.  Even research that gets funded would have had to go through extra hoops to ensure it is related to specific military functions.

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21st Century Cures Act

Arthritis Foundation Continues the Dialog on Capitol Hill to Remove Barriers to Care!

One week ago, the House Energy and Commerce Committee unanimously approved the bipartisan 21st Century Cures Act 51-0. The legislation will “help to modernize and personalize health care, encourage greater innovation, support research, and streamline the system to deliver better, faster cures to more patients.”

The Arthritis Foundation and its volunteers have been actively involved in pushing this legislation forward, sending letters to key parties and making visits to the Hill in support of the initiative.

The most recent version of the 21st Century Cures legislation includes three new provisions that are important to the Arthritis Foundation and the arthritis community, covering topics ranging from easing restrictions on off-label uses of drugs to including age groupings in research studies, along with a provision that addresses the extension of exclusivity periods, which is important to ensure even those with rare diseases gain access to top-notch treatments and care.

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