Mark your calendars! This year’s Live Yes! Advocacy Summit will take place on March 11-12, 2019 in Washington, D.C. and it won’t be a success without your voices from across the country. Join us in the nation’s capitol and share your story with policymakers to break down barriers to care for people with arthritis.
The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.
Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast. More than 400 people from 45 states attended.
Continue reading Success at Summit! Advocates Meet with Congress as American Health Care Act Released
Day two of the Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.
Several aspects of the bill align with our Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
Continue reading Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories
They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.
People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
Continue reading 400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights
A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.
Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.
“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
Continue reading Record Number of Advocates Earn Platinum Ambassador Status
Arthritis is not just your grandparent’s disease, and at this year’s Advocacy Summit, our young participants will tell Members of Congress that kids get arthritis, too!
On March 6 and 7, more than 400 people affected by arthritis from all across the country will convene in Washington, DC, as part of the Arthritis Foundation’s 2017 Advocacy Summit.
Attendees will include an estimated 100 kids and teens who will participate in a special Kids and High School Summit track. Uniquely designed for kids/teens who are affected by juvenile arthritis and childhood rheumatic diseases, this track includes interactive activities that will empower them with the skills and confidence they need to raise awareness for the arthritis community, young and old, and help change perceptions of this disease. Then they will meet with Members of Congress, educating them about barriers to health care and motivating them to consider all people who live with arthritis when they design health care legislation.
Continue reading More than 100 Kids and Teens to Meet with Members of Congress at Advocacy Summit
They came from small towns, big towns, places you’ve never heard of before, and places you dream to visit. Places like North Newton, Kansas, which is home to Bethel College and roughly 1,700 people. And places like New York, New York, home to 8.4 million people, Broadway and Times Square. But they all had one thing in common – arthritis!
On March 14-15, 2016, more than 390 people affected by arthritis traveled to Washington, D.C. to participate in our Advocacy Summit.
Continue reading Stellar Results for Arthritis Community Achieved at the 2016 Advocacy Summit!
Anna and Graci Diggs are on their way home. And they feel pretty good.
Anna and Graci are from Tipton, Missouri, and, along with 388 other people from all parts of the country, they traveled to Washington, D.C., March 14-15, for the Arthritis Foundation’s Advocacy Summit.
“We came to Advocacy Summit because we are dealing with some issues with my daughter’s arthritis that can be changed here at the Capital,” said Anna. “So we feel it’s important that our voices be heard. Hopefully we can make a difference.”
Graci is 10-years-old and has juvenile polyarticular arthritis.
The two-day event started on Monday with welcome remarks by Ann Palmer, president and CEO of the Arthritis Foundation, who was followed by Sandie Preiss, vice president of Advocacy & Access, who introduced attendees to the advocacy program and key issues that would be discussed. Christopher Kush, CEO of the political consulting group, Soapbox, walked guests through a lively do’s and don’ts of communicating with legislators.
Continue reading Empowered Advocates of All Ages Share Their Stories at the Advocacy Summit
Day 1 of the 2016 Advocacy Summit has wrapped and featured learning and training sessions ranging from mock meetings on the Hill, to ways to use social media to advocate, to sessions for advocates to learn how to begin their Capital Hill journeys. Like most attendees, April McCaslin and her daughter, Nora, and Meredith Meyer and her daughter, Sophie, are both excited and nervous for their meetings with Congress members tomorrow.
April and Nora are from East Syracuse, New York, and Meredith and Sophie are from Hilton, New York. Both kids have juvenile polyarticular arthritis and, while this is their first Arthritis Foundation Advocacy Summit, they are no strangers to Foundation activities.
Continue reading Finding Their Voices: Advocates Prepare for Meetings on the Hill
From the frosty snowbanks of Fairbanks, Alaska to the salty shores of Cape Elizabeth, Maine and everywhere in between, nearly 400 Arthritis Foundation Advocates from 48 states are converging on Washington, D.C. over the next two days for the Foundation’s 2016 Advocacy Summit.
While in Washington, these Advocates will learn about issues affecting people living with arthritis, then meet with members of Congress, telling their personal arthritis stories, and asking for support. Advocates will ask Congress members to support legislation that will address the severe shortage of pediatric rheumatologists (H.R. 1859, Ensuring Children’s Access to Specialty Care Act of 2015) and to establish $20 million in dedicated Department of Defense funding for arthritis programs and research.
Continue reading Nearly 400 Advocates Arrive in D.C. for 2016 Arthritis Foundation Advocacy Summit