accumulator adjustment programs

TAKE CARE: Advocacy Blog Series

Accumulator Adjustment Programs

We’re excited to present a new advocacy blog series meant to help you take care when it comes to important arthritis health care and coverage issues. Over the next two months, we’ll post a blog every other week to help patients like you know what access issues we are watching and what you can do about them. This week we’ll tell you about a new policy many pharmacy benefit managers (PBMs) are using called accumulator adjustment programs, which could especially impact people in high deductible health plans. Read on to learn more about these programs and why they are being implemented. Continue reading TAKE CARE: Advocacy Blog Series

arthritis foundation platinum ambassador assembly

2018 Arthritis Platinum Ambassador Assembly Makes a Big Impact

Scores of the most passionate and vocal champions of the arthritis community recently descended on the nation’s capital to hone their advocacy skills and share their personal stories with each other and with their members of Congress. Attended by nearly 130 participants from 32 states, the Arthritis Foundation’s new Platinum Ambassadors Assembly was held March 12-13.

Platinum Ambassadors are top grassroots volunteers who complete six annual advocacy assignments and raise at least $1,000 to support the Foundation’s mission to conquer and cure arthritis. Forty-eight of our fifty-one Platinum Ambassadors participated in the first-of-its-kind event, along with 25 Junior Ambassadors, young people ages 13 to 17 who speak out for the estimated 300,000 kids in the U.S. who battle arthritis. Also attending were 30 future advocacy leaders, highly-engaged Arthritis Foundation volunteers who have committed to achieving Platinum Ambassador status in 2018.

Continue reading 2018 Arthritis Platinum Ambassador Assembly Makes a Big Impact

2018 Platinum Ambassador Assembly Highlights

Platinum Ambassador Assembly – Highlights from Capitol Hill

Earlier this week, we held our first ever Platinum Ambassador Assembly in Washington, D.C. The Assembly is a meeting for our most highly engaged advocacy volunteers to hone their skills, meet other Platinum Ambassadors from around the country and share their stories with members of Congress. Our Junior Ambassadors and future leaders – volunteers committed to achieving Platinum Ambassador status in 2018 – were also in attendance to learn, share their stories and fight for the over 54 million Americans who are living with arthritis.
Continue reading Platinum Ambassador Assembly – Highlights from Capitol Hill

shanna new mexico legislation

NM Governor Martinez Signs Senate Bill 11 into Law to Curb Step Therapy

On Wednesday, February 28th, New Mexico joined 17 other states across the country in passing legislation to curb step therapy. Senate Bill 11, which was signed into law by New Mexico Governor Susana Martinez, reforms the process that forces patients to try drugs that insurance companies choose, making patients “fail first” before the patient gets to use the medicine that their doctor originally prescribed.

Step therapy is an insurance practice that requires patients to use a lower-cost drug before permitting more expensive drugs – regardless of what your doctor prescribed. This may occur even if you are already taking that pricier medication and doing well on it.  Senate Bill 11 placed limits on this practice and helps get the right medicine to patients faster.

Continue reading NM Governor Martinez Signs Senate Bill 11 into Law to Curb Step Therapy

platinum ambassador assembly social media campaign

Show Us How YOU #AdvocateforArthritis

Platinum Ambassador Assembly Social Campaign

Did you know that the first ever Platinum Ambassador Assembly is taking place in Washington, DC this March 12-13? There, our most highly engaged grassroots Ambassadors will gather together to be the voice for arthritis on Capitol Hill.

We’re calling on you to help amplify the voice of our Platinum Ambassador Assembly by participating virtually in our #AdvocateforArthritis social media campaign on Tuesday, March 13. On that day Platinum Ambassador Assembly participants will be on Capitol Hill to meet their elected officials and their staff in person to discuss legislative priorities like reforming burdensome step therapy practices, addressing the pediatric rheumatologist shortage, and even securing funding for research for a cure!

Continue reading Show Us How YOU #AdvocateforArthritis

amy barron platinum arthritis ambassador

Platinum Ambassador Spotlight: Amy Barron, OHIO

ADVOCACY COMMITTEE REACHES GOAL!

 By Amy Barron, Platinum Ambassador, OH Advocacy Committee

I am privileged to serve as a member of the Arthritis Foundation’s Ohio State Advocacy Committee. Advocacy committees like mine help to chart the course of local and state-wide advocacy action for our arthritis community. Many of our committee members serve as Arthritis Foundation Advocates and Ambassadors, at both the state and federal level.

Continue reading Platinum Ambassador Spotlight: Amy Barron, OHIO

arthritis foundation hill briefing US economy

Arthritis Foundation to Host a Hill Briefing on the Rising Cost of Arthritis to the U.S. Economy

On Thursday, February 1, the Arthritis Foundation and American College of Rheumatology (ACR) – along with seven other health advocacy organizations – will host a briefing on Capitol Hill urging lawmakers to increase research funding at the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH) and the U.S. Department of Defense (DoD) to combat the nation’s leading cause of disability.

New data reveals the stunning impact of arthritis on the U.S. economy. Between 2003 and 2013, the annual cost of arthritis more than doubled and now totals $304 billion in direct and indirect costs, according to a CDC-sponsored study published in the September 2017 edition of Arthritis Care & Research. These figures include both higher medical costs to patients, as well as lost earnings from individuals who are unable to work due to their condition.

Continue reading Arthritis Foundation to Host a Hill Briefing on the Rising Cost of Arthritis to the U.S. Economy

danielle highley state of union

Danielle Highley: CHIP Recipient and Special Guest at the State of the Union Address

On Monday, Danielle Highley of Deer Lodge, Montana, and her mother flew over 2,200 miles to Washington, D.C. with Montana Sen. Steve Daines to attend today’s State of the Union address. Sen. Daines invited Dani, age 9, and her mother, Glory, to join him after he told Dani’s story on the floor of the U.S. Senate earlier this month, urging his colleagues to support long-term CHIP funding.

CHIP, the Children’s Health Insurance Program, was created over two decades ago with overwhelming bipartisan support. The program insures vital health care for nearly 9 million children across the country. In September 2017, Congress allowed funding to expire, and the program was in danger of ending coverage for those children. Last week, Congress extended funding to CHIP for six years.

Continue reading Danielle Highley: CHIP Recipient and Special Guest at the State of the Union Address

21st Century Cures Act

Answering Your Questions About the New Tax Reform Legislation

On Wednesday, December 20, Congress passed the Tax Cuts and Jobs Act (TCJA). There were several health-related changes included in the legislation, such as a repeal of the Affordable Care Act’s individual mandate, and changes to the medical expenditure tax deduction. Below we explain the key health provisions that made it into the final law, how it may impact you, and what’s next.

Let’s start with the individual mandate.
Continue reading Answering Your Questions About the New Tax Reform Legislation

rebecca gillett

Platinum Ambassador Spotlight—Rebecca Gillett, Colorado

In 2016, I was fortunate to attend the Arthritis Foundation Advocacy Summit in Washington D.C. alongside some seasoned advocacy veterans from Denver. I had never met with my legislators or shared my story before, so it was a new experience. It was easy to “catch the bug” for advocacy being surrounded by so many other fellow arthritis patient advocates who want to make a difference for all of us. Raising awareness and fundraising for arthritis has been an integral part of my life for the past several years, but advocacy has become an even greater passion. This year, I achieved the Platinum Ambassador Award and will attend the Arthritis Foundation’s Platinum Ambassador Assembly this March 12-13, 2018.

Continue reading Platinum Ambassador Spotlight—Rebecca Gillett, Colorado