Category Archives: Featured

2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
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Clark Middleton Arthritis Advocacy Summit

Advocacy Summit 2017: Up Close with Actor and Foundation Advocate Clark Middleton

Clark Middleton, the talented actor currently on NBC’s “The Blacklist” and Hulu’s “The Path,” is packing his bags and heading to Washington, DC, with hundreds of other Arthritis Foundation Advocates – to raise his voice and share his story at the Advocacy Summit.

Clark’s journey with juvenile rheumatoid arthritis (JRA) started as a young child, helping shape who he is today – and why he’s extremely passionate about patient rights and access to affordable health care for those with chronic diseases. Clark opened up about his lifelong journey with JRA.
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2016 Arthritis Foundation Platinum Ambassadors

Record Number of Advocates Earn Platinum Ambassador Status

A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.

Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.

“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
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2017 Kids and Teen Advocacy Summit

More than 100 Kids and Teens to Meet with Members of Congress at Advocacy Summit

Arthritis is not just your grandparent’s disease, and at this year’s Advocacy Summit, our young participants will tell Members of Congress that kids get arthritis, too!

On March 6 and 7, more than 400 people affected by arthritis from all across the country will convene in Washington, DC, as part of the Arthritis Foundation’s 2017 Advocacy Summit.

Attendees will include an estimated 100 kids and teens who will participate in a special Kids and High School Summit track. Uniquely designed for kids/teens who are affected by juvenile arthritis and childhood rheumatic diseases, this track includes interactive activities that will empower them with the skills and confidence they need to raise awareness for the arthritis community, young and old, and help change perceptions of this disease. Then they will meet with Members of Congress, educating them about barriers to health care and motivating them to consider all people who live with arthritis when they design health care legislation.
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Arthritis 101 Congressional Briefing

Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!

Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
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Arthritis Foundation Advocate Awards

Staci Penner and Graci Diggs Selected for Advocacy & Access High Honors

Staci Penner and Graci Diggs have devoted their voices, stories and wholehearted advocacy efforts to helping the arthritis community live better lives. Today, we celebrate their advocacy efforts by announcing their selection for the Arthritis Foundation’s Edward M. Kennedy Advocacy Leadership Award and Emerging Leader Award, respectively.
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New York Arthritis Biosimilars

New York Step Therapy Reform Legislation Signed into Law by Governor Cuomo

As we ring in the new year, we celebrate a major step therapy legislative win in New York! An increasing number of health insurers around the country are utilizing fail first or step therapy practices that require patients to try and fail one or more formulary medications before providing coverage for the originally prescribed non-formulary medication. Rather than taking into account the needs of the individual patient, insurers are determining drug sequences based on cost. These practices can vary wildly insurer to insurer with no consistency on how to establish or apply these fail first protocols.
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Medicare Part B Demonstration Proposal Withdrawn

Victory – Medicare Part B Demonstration Proposal Withdrawn!

Arthritis Advocate Medicare Part B Demonstration Proposal
Arthritis Foundation Advocate, Amy Barron, along with Senator Rob Portman (R-OH).

Amy Barron lives with rheumatoid arthritis and osteoporosis. Her treatment includes biologic infusions that are administered under careful supervision by her physician. When Amy receives her infusion, she is in a familiar environment – her rheumatologist’s office – and her care is supervised by someone who knows her unique medical history, understands the complicated nature of her condition and can monitor her treatment and knowingly respond to adverse reactions.
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Ohio Arthritis Biosimilars

Ohio Biosimilar Substitution bill signed into Law by Governor Kasich

Imagine that your pharmacist substituted the biologic drug prescribed by your physician for a different drug, an interchangeable biologic product, without your physician being informed. For many people in Ohio who are taking biologic drugs, this scary scenario was a potential reality.
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