Category Archives: Featured

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Junior Ambassador Spotlight – Ethan Berkovitz, Ohio

From Ethan Berkovitz

My name is Ethan Berkovitz, I am a 16-year-old high school sophomore  and my favorite sports are soccer and futsal, a type of indoor soccer with five players per team.  I play on the U.S. Youth Futsal 16-and-under National Team, and this summer I got to compete and represent our country in Costa Rica.  I have been playing soccer since I was 3 years old – and I have juvenile arthritis.

I didn’t always have juvenile arthritis. It all started when I was 8 years old,  when I started having pain in my legs, hands and wrists. I thought I was having growing pains, but it got worse and worse in just a few short months. I couldn’t even walk down the stairs, or to the bus stop, so my dad had to carry me.  Sometimes, I didn’t make it to school because I didn’t feel very well and I would get fevers, so I felt really sick.  I loved playing all kinds of sports back then with my friends and I was on lots of different teams.  I also would ride my bike, skateboard, rollerblade and much more.

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Washington DC Arthritis Advocacy Victory

The Nation’s Capital Caps the Out-of-Pocket Costs of Medications

Congratulations D.C. Advocates! Because of your efforts, Washington, D.C. Mayor Muriel Bowser signed the Specialty Drug Copayment Limitation Act. In the law, “specialty drug” means a prescription drug that is prescribed for a person with a physical, behavioral, or developmental condition that may have no known cure, is progressive, or can be debilitating or fatal if left untreated or undertreated, such as multiple sclerosis, hepatitis C and rheumatoid arthritis.
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ICER RA Treatment Review

Arthritis Foundation Leads the Way in Patient Engagement with the Institute for Clinical and Economic Review

On Friday March 24, after many months of review, the Institute for Clinical and Economic Review (ICER) held a public meeting in Boston, MA to discuss evidence findings on treatments for rheumatoid arthritis (RA). ICER is a non-profit organization that reviews the effectiveness of medications and their costs.
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2017 Arthritis Foundation Advocacy Summit Day 1

400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights

They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.

Lydia and Susanna
Lydia and Susanna Meyer, NV

People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
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2016 Arthritis Foundation Platinum Ambassadors

Record Number of Advocates Earn Platinum Ambassador Status

A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.

Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.

“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
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2017 Kids and Teen Advocacy Summit

More than 100 Kids and Teens to Meet with Members of Congress at Advocacy Summit

Arthritis is not just your grandparent’s disease, and at this year’s Advocacy Summit, our young participants will tell Members of Congress that kids get arthritis, too!

On March 6 and 7, more than 400 people affected by arthritis from all across the country will convene in Washington, DC, as part of the Arthritis Foundation’s 2017 Advocacy Summit.

Attendees will include an estimated 100 kids and teens who will participate in a special Kids and High School Summit track. Uniquely designed for kids/teens who are affected by juvenile arthritis and childhood rheumatic diseases, this track includes interactive activities that will empower them with the skills and confidence they need to raise awareness for the arthritis community, young and old, and help change perceptions of this disease. Then they will meet with Members of Congress, educating them about barriers to health care and motivating them to consider all people who live with arthritis when they design health care legislation.
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Arthritis 101 Congressional Briefing

Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!

Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
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Arthritis Foundation Advocate Awards

Staci Penner and Graci Diggs Selected for Advocacy & Access High Honors

Staci Penner and Graci Diggs have devoted their voices, stories and wholehearted advocacy efforts to helping the arthritis community live better lives. Today, we celebrate their advocacy efforts by announcing their selection for the Arthritis Foundation’s Edward M. Kennedy Advocacy Leadership Award and Emerging Leader Award, respectively.
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