The 2017 Advocacy Summit was held March 6-7 in Washington, DC, and while the outcome is still developing, we are very pleased with the results thus far.
Arthritis affects people regardless of age or origin, so it was no surprise that this year’s Summit attendees were a mix of all ages from coast to coast.
More than 400 people from 45 states attended.
Continue reading Success at Summit! Advocates Meet with Congress as American Health Care Act Released
Day two of the
Advocacy Summit started with lots of chatter about the Trump administration’s unveiling of repeal and replace health care legislation.
Several aspects of the bill align with our
Patient Principles for Health Care which outlines four principles that, if adopted, will result in a transparent health care system that allows easier access to more affordable care. The bill includes language that prevents denying coverage for people with preexisting conditions, bans lifetime coverage caps and allows young people to remain on their parent’s insurance plans until they turn 26-years-old – all good news for the arthritis community!
Continue reading Advocacy Summit Day 2 Highlights: Advocates Meet with State and Federal Policymakers to Share Their Stories
They came from places like Runnels, a small town in Iowa with 507 residents, and New York City, the second largest city in the world.
Lydia and Susanna Meyer, NV
People like Leticia Hugues and her son, Ashton, from Smiths Grove Kentucky, Lydia Meyer and her daughter Susanna from Reno, Nevada, and Kelli Carlson from Woodbury Minnesota and her friend Kelli Dwyer from La Crosse, Wisconsin.
Continue reading 400 Volunteers Prepare for Meetings with Congress: Advocacy Summit Day 1 Highlights
Clark Middleton, the talented actor currently on NBC’s “The Blacklist” and Hulu’s “The Path,” is packing his bags and heading to Washington, DC, with hundreds of other
Arthritis Foundation Advocates – to raise his voice and share his story at the Advocacy Summit.
Clark’s journey with
juvenile rheumatoid arthritis (JRA) started as a young child, helping shape who he is today – and why he’s extremely passionate about patient rights and access to affordable health care for those with chronic diseases. Clark opened up about his lifelong journey with JRA.
Continue reading Advocacy Summit 2017: Up Close with Actor and Foundation Advocate Clark Middleton
A record number of individuals have achieved the Arthritis Foundation’s highest advocacy honor in 2016 and became Platinum
Ambassadors. At the 2017 Advocacy Summit, March 6-7, in Washington, DC, 41 new Platinum Ambassadors will be recognized for their outstanding advocacy accomplishments on behalf of the arthritis community.
Platinum Ambassadors are an elite group of Advocates who go above and beyond the call of duty by accomplishing a challenging list of advocacy assignments along with four bonus activities, all while raising funds to support the Foundation’s mission to conquer and cure arthritis.
“Platinum Ambassadors are the special forces of our Advocate army,” said Sandie Preiss, national vice president, Advocacy & Access. “They use their voice and arthritis stories, at an elevated level of frequency and sophistication, to help knock down barriers to health care.”
Continue reading Record Number of Advocates Earn Platinum Ambassador Status
Arthritis is not just your grandparent’s disease, and at this year’s Advocacy Summit, our young participants will tell Members of Congress that kids get arthritis, too!
On March 6 and 7, more than 400 people affected by arthritis from all across the country will convene in Washington, DC, as part of the Arthritis Foundation’s
2017 Advocacy Summit.
Attendees will include an estimated 100 kids and teens who will participate in a special
Kids and High School Summit track. Uniquely designed for kids/teens who are affected by juvenile arthritis and childhood rheumatic diseases, this track includes interactive activities that will empower them with the skills and confidence they need to raise awareness for the arthritis community, young and old, and help change perceptions of this disease. Then they will meet with Members of Congress, educating them about barriers to health care and motivating them to consider all people who live with arthritis when they design health care legislation.
Continue reading More than 100 Kids and Teens to Meet with Members of Congress at Advocacy Summit
Arthritis knows no political affiliation. It affects more than 50 million adults and an estimated 300,000 kids in the U.S., regardless of where they live or for whom they voted. We want to assure you that your voice is being heard by both Republicans and Democrats, especially as lawmakers consider changes to our healthcare system.
Continue reading Arthritis 101 and Prescription for Access – Making Sure Your Voice is Heard!
Staci Penner and Graci Diggs have devoted their voices, stories and wholehearted advocacy efforts to helping the arthritis community live better lives. Today, we celebrate their advocacy efforts by announcing their selection for the Arthritis Foundation’s Edward M. Kennedy Advocacy Leadership Award and Emerging Leader Award, respectively.
Continue reading Staci Penner and Graci Diggs Selected for Advocacy & Access High Honors
School is out, so now what do you do to engage your kids? On June 29, a number of parents took their families to Harrisburg, PA, to participate in the 2016 Pennsylvania Advocacy and Access Day. Some of the youth were already pros having attended previous advocacy days and our
Advocacy Summit in Washington, DC. For others it was a first time experience.
Continue reading Young Advocates in Pennsylvania Speak Out
They came from small towns, big towns, places you’ve never heard of before, and places you dream to visit. Places like North Newton, Kansas, which is home to Bethel College and roughly 1,700 people. And places like New York, New York, home to 8.4 million people, Broadway and Times Square. But they all had one thing in common – arthritis!
On March 14-15, 2016, more than 390 people affected by arthritis traveled to Washington, D.C. to participate in our
Continue reading Stellar Results for Arthritis Community Achieved at the 2016 Advocacy Summit!