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Benched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

Benched by RA, Pro Hoops Player ShaRae Mansfield Still Shoots to Win

ShaRae Mansfield vividly remembers getting the call 17 years ago saying the Houston Comets had drafted her to play in the Women’s National Basketball Association (WNBA). For the Western Kentucky University (WKU) student, the chance to play professional basketball was a dream come true. But her WNBA career was short-lived. While she had mad skills on the court, excelling at both points and rebounds, she also had frequent pain in her shoulders, hips and especially her left knee, made worse by a torn anterior cruciate ligament (ACL). ShaRae had undergone six surgeries on it, but her continued knee problems led the ...more
MN Governor Dayton Signs Legislation for Step Therapy Guardrails

MN Governor Dayton Signs Legislation for Step Therapy Guardrails

On May 19, Minnesota Gov. Mark Dayton signed HB 3196 into law! Step therapy legislation gives physicians a clear path toward getting their patients the medications they need. Having access to affordable, effective and specialized medication is critical for the 54 million Americans living with doctor-diagnosed arthritis nationwide, including over 900,000 in Minnesota. The Arthritis Foundation thanks the bill’s sponsors and Gov. Dayton for helping provide these patient protections to Minnesotans. Step Therapy is a practice used by insurers that requires people with arthritis to try lower-cost medications before allowing more expensive treatments, despite a physician’s recommendation. Ted Cadwell, Minnesota resident and advocacy chair ...more
TAKE CARE: Advocacy Blog Series

TAKE CARE: Advocacy Blog Series

Short-Term Health Plans We are continuing our advocacy blog series meant to help you take care when it comes to important arthritis health care and coverage issues. If you’re now just tuning into this series, check out previous advocacy blog posts here. Our last take care blog kicked off a focus on health insurance benefits and open enrollment. Today we explore short-term health plans, a type of insurance that has been on the market for some time but is receiving attention due to new actions taken by the administration. Read on to learn about these plans and why they are an ...more
From Washington State to Washington DC, the 2018 National Juvenile Arthritis Conference Welcomed Over 1,800 Participants

From Washington State to Washington DC, the 2018 National Juvenile Arthritis Conference Welcomed Over 1,800 Participants

Each summer as school lets out and the weather starts to get warmer, there’s an excitement in the air felt all the way from Long Beach, California to the shores of Long Island, New York. There are always good reasons to be excited for some time off, but for many children, teens, young adults and their families affected by juvenile arthritis and related rheumatic diseases – the Arthritis Foundation’s National Juvenile Arthritis Conference has become the summer event to look forward to. Over two long weekends in late June and early August, more than 1,800 attendees made their way to Seattle, ...more
TAKE CARE: Advocacy Blog Series

TAKE CARE: Advocacy Blog Series

It’s Never Too Early to Think About Open Enrollment We are continuing our advocacy blog series meant to help you take care when it comes to important arthritis health care and coverage issues. If you are just now tuning into this series, check out our previous blog posts on accumulator adjustment programs, pharmacist gag orders, President Trump’s drug pricing blueprint, drug rebates, premium increases, and an update on the Affordable Care Act. This week, we kick off our focus on health insurance benefits – it’s never too early to think about open enrollment! Whether you receive health insurance through an employer, Medicare, ...more
JA Conference Washington, DC - Kickoff

JA Conference Washington, DC - Kickoff

Superheroes Seen in Washington DC – the 2018 National Juvenile Arthritis Conference Begins Today! Nearly 900 superheroes – kids, teens, young adults and their families – from across the country, have been seen banding together in Washington DC! DC serves as the second location of the Arthritis Foundation’s signature National Juvenile Arthritis (JA) Conference. The JA Conference is a unique opportunity for families, kids, teens and young adults affected by JA and other rheumatic diseases to connect with others and spend the weekend networking, learning, sharing tips and forming friendships. Held at the Grand Hyatt in the heart of Washington DC, superheroes of ...more
You Said It: Making Diet Changes for Arthritis

You Said It: Making Diet Changes for Arthritis

Eating a good balance of healthy food is always a good lifestyle plan. But many people with  inflammatory forms of arthritis like psoriatic arthritis and rheumatoid arthritis may make more specific food choices. So we asked our readers and followers, “What diet changes have you made for your PsA?” I found that eliminating dairy and gluten really make a positive difference! I know this because every time I consume any I get swelling and pain especially in my hands. — Debbie Schwendler, Ahwatukee, Arizona I’ve eliminated refined sugar, cut out simple carbs and reduced gluten intake. When I do have pasta, I have ...more
Your Disease, Your Voice

Your Disease, Your Voice

Join us at the externally-led JIA Patient-Focused Drug Development meeting We are hosting, along with our partner, the Childhood Arthritis and Rheumatology Research Alliance (CARRA), the Juvenile Idiopathic Arthritis Patient-Focused Drug Development (PFDD) meeting. This meeting, driven by our patients and caregivers, will provide the U.S. Food and Drug Administration (FDA) and industry personnel with input directly from you on how this disease affects your life, your experiences with current treatments, and the need for newer and better treatments. The meeting takes place in Washington, D.C. on August 2, 2018 from 9am to 3:15pm ET and will be held at the ...more
Global Survey Will Help Us Understand Patient Perceptions

Global Survey Will Help Us Understand Patient Perceptions

Globally, osteoarthritis (OA) is the third most rapidly rising condition associated with disability. We know the disease affects people of all ages, and given the current rate of population aging, it is estimated that the number of people who suffer from this disease will double in the next three decades. These are staggering statistics that we are actively trying to change. Science holds the key to finding better treatments for everyone with arthritis. It’s essential we learn more about what’s important to patients from the patients themselves, so future healthcare options are most effective. We’ve partnered with other organizations in the ...more
Life Doesn’t Stop with RA: How Three People Keep Doing What They Love

Life Doesn’t Stop with RA: How Three People Keep Doing What They Love

Mark Rucker: “Adopt a healthier lifestyle” When Mark Rucker was diagnosed in 2015 with rheumatoid arthritis (RA) at 44, he had mixed emotions. He was glad to know what had been causing the often unbearable pain in his hands, feet, jaw and toes for the past year. But, he recalls, “I always thought RA was a disease that only affected elderly women, not someone who was in the midst of training for their second Ironman competition.” A real estate attorney in Lexington, Kentucky, Mark in the past had been a self-described “385-pound couch potato.” Being told in 2011 that he was too ...more