Static Image
Brothers to Swim Across Lake Erie in Honor of their Mother and to Support the Arthritis Community

Brothers to Swim Across Lake Erie in Honor of their Mother and to Support the Arthritis Community

Competitive swimming is a difficult sport. Athletes spend hours every day going back and forth in a pool with their heads mostly under water honing their skills and techniques hoping to shave tenths of a second off their times. For brothers Tom and Greg Van Volkenburg, this is what they did throughout their formative years – and they did it very well. Both were exceptional athletes on their high school swimming teams and later on their college teams; Tom at the University of Notre Dame and Greg at Lafayette College. Now adults and living in different parts of the country, Tom and ...more
The 2017 National Juvenile Arthritis Conference in “Space City” Houston Blasts Off Today!

The 2017 National Juvenile Arthritis Conference in “Space City” Houston Blasts Off Today!

Today, kids, teens, young adults and their families from across the country are landing in Houston, Texas, for the first of two national Juvenile Arthritis (JA) Conferences the Arthritis Foundation is hosting this year. The JA Conference is a unique opportunity to connect families, kids, teens and young adults affected by JA and other rheumatic diseases who spend the weekend networking, learning, sharing tips and forming bonds that can last a lifetime. Almost 1,000 people are attending the first of two JA Conference events – held at the beautiful Hilton Americas Houston, a property that sits next to Discovery Green park, George R. Brown ...more
Ambassador Spotlight: Kerry Wong, New York

Ambassador Spotlight: Kerry Wong, New York

From Kerry Wong Nearly 10 years ago, I began feeling a variety of symptoms that didn’t seem to make much sense. I was exhausted and sore without doing anything strenuous, frequently weak, dizzy and nauseous. I couldn’t sleep. I soon learned about a condition called fibromyalgia, but it took 4 years and a dozen doctors before one believed me and diagnosed it.  Over that time, I developed new symptoms, including skin rashes and painful swollen joints.  It took another 4 years and several misdiagnoses before my doctors realized that this inflammatory arthritis was part of a disease called sarcoidosis. These illnesses have taken ...more
Fighting the Fatigue of RA

Fighting the Fatigue of RA

Symptoms of rheumatoid arthritis (RA) don’t stop at joint pain and swelling. Most people with RA also experience mental and physical exhaustion, a symptom known as fatigue. Studies show that up to 80% of people with RA have at least some sense of feeling run down, and more than 50% have high levels of fatigue. Terence Starz, MD, a rheumatologist at the University of Pittsburgh Medical Center, says the feeling can be described as overwhelming or different from just being tired because it is extreme and seems to come from nowhere. In fact, fatigue may have a greater impact on daily ...more
Salute JA Warriors During Juvenile Arthritis Awareness Month

Salute JA Warriors During Juvenile Arthritis Awareness Month

July may be best known for watching fireworks, eating ice cream and splashing in the pool. But it’s also the month when we recognize that one out of every 250 kids in the United States lives with some form of juvenile arthritis (JA). Yes, July is Juvenile Arthritis Awareness Month, dedicated to making everyone aware that kids get arthritis, too – and a reminder that, while a lot of progress has been made in treating it, there’s still a lot more to do to get to the bottom of this painful and debilitating disorder. So this month, help spread awareness about the ...more
Five Things to Know About the JA Conference

Five Things to Know About the JA Conference

As we prepare for the 2017 National Juvenile Arthritis Conferences, here are five things to know from our Conference Chair, Katy Carter, if you’re getting ready to join us this summer! Calling All JA Warriors! With the theme of the 2017 JA Conference being JA Warriors, we want to know how YOU are #StrongerThanJA! We are JA Warriors. Every day, we deal with the challenges of juvenile arthritis.  While our situations are unique, we’re in this together. Bold, brave and bright. Battling whatever gets in our way and celebrating our victories. As JA Warriors, we stick together, determined to win the fight ...more
Nine Major Wins in 6 Months!

Nine Major Wins in 6 Months!

Our Advocates have been busy. Very busy. And the results are fantastic! Due in part to tireless work by our volunteer Advocates, 9 states passed legislation within the first six months of 2017 to address issues with biosimilar medications. Biosimilars are a new class of medications that are similar in effect but not identical to biologic medications. With their introduction to the marketplace, patients have more treatment options that could be less expensive. However, there has been no clear path for regulating and monitoring substitution of biologic drugs with biosimilar drugs. These new laws require pharmacists, when substituting biologics with biosimilars, to ...more
Voices: Are You a Self-Care Slacker?

Voices: Are You a Self-Care Slacker?

Q. Are you a slacker when it comes to self-care? Taking care of yourself is so important, but who hasn’t dealt with the self-care burnout that comes with having a chronic condition? For the first in a new series featuring some of the leading social media voices on life with arthritis, we asked these bloggers about their struggles with self-care. Mariah Leach http://www.fromthispointforward.com/ Making self-care a priority can often be a real challenge – especially if you are also a mom! Children are dependent on their parents, so it’s really easy to feel like their needs are more important. But, in my experience, when I ...more
Clark Middleton: Role of His Life

Clark Middleton: Role of His Life

Actor Clark Middleton has spent a lifetime defying limits and arthritis. Art imitates life imitates art. Actor Clark Middleton, of NBC’s The Blacklist and Hulu’s The Path, is keenly aware of the parallels between his on-camera and off-camera lives. “Acting is dealing with obstacles and problems, and I think I’ve learned how to be creative that way,” says Clark, 60. The New York City-based character actor, known for eccentric supporting roles in films from Birdman to Kill Bill: Vol. II (in a role Quentin Tarantino wrote specifically for him), earned his resilience and acting chops by living with juvenile arthritis since age ...more
Hand OA Risk Higher for Women, Caucasians, Overweight People

Hand OA Risk Higher for Women, Caucasians, Overweight People

About 40 percent of adults in the United States are likely to develop osteoarthritis (OA) in at least one hand by age 85, and some people are more at risk than others, according to researchers at the Centers for Disease Control and Prevention (CDC). Their findings were published recently in the journal Arthritis & Rheumatology. Hand OA gets less publicity than knee or hip arthritis, but it can be just as debilitating. Painful, stiff, sometimes-bent fingers can make it hard to eat, dress or type. Although it’s commonly associated with old age, hand OA often starts in midlife, affecting a person’s ability ...more