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Looking Back, Looking Ahead

Looking Back, Looking Ahead

It’s been a busy year for patient advocacy – with significant wins at the federal and state levels. Read on to get the scoop on the results of the midterm elections, our 2018 year in review, and a look at what 2019 has in store. In 2018, our advocacy community was essential to securing many victories for people with arthritis. Whether you engaged in a state legislative day, testified before decision makers, or even sent a letter through our Action Center, your actions made a difference. Here are some highlights that we accomplished together this year: We reached a milestone when ...more
No One Should Be in Debilitating Pain, Especially at 10 Years Old

No One Should Be in Debilitating Pain, Especially at 10 Years Old

Support the Arthritis Foundation and the 54 million Americans with arthritis. Meet Shane Cox When you meet Shane Cox of Petaluma, California, his quiet, calm demeanor gives little away about this young man. But whether he is speaking as an honoree at his local Jingle Bell Run or at the California Coast Classic, it’s easy to realize he has experienced more in his young life than most his age. Shane was only 10 years old when he was diagnosed with polyarticular juvenile arthritis (JA). His mom, Jenn, became Shane’s nurse and had to learn how to administer his medication injections. Now 18, Shane ...more
Patient Partner’s Words of Wisdom About Living With Gout & OA

Patient Partner’s Words of Wisdom About Living With Gout & OA

As part of our vetting process for Arthritis by the Numbers – a collection of verified arthritis facts and figures – we invited patients to comment on the disease section that most affected their lives. After all, they are the experts on how arthritis changes and challenges everyday living. Meet Craig Buhr, who is challenged by gout and OA. Following, in his own words, are his thoughts about the statistics he reviewed in Arthritis by the Numbers – and how they relate to him personally. Question: How did you get involved with the Arthritis Foundation’s mission to stop arthritis? Craig: I first noticed ...more
RA Research Briefs: Lung Disease, Remission, Children of RA Patients

RA Research Briefs: Lung Disease, Remission, Children of RA Patients

Keep up-to-date on the latest rheumatoid arthritis (RA) research with our brief research summaries. Lung Disease More Likely with RA Rheumatoid arthritis may increase the risk of chronic obstructive pulmonary disease (COPD), an inflammatory lung disease that makes breathing difficult, a new study shows. A Canadian study, which analyzed data from 24,265 patients with RA and 25,396 controls, found that people with RA had a 47% greater risk of being hospitalized for COPD than members of the general population. SOURCE: Arthritis Care & Research, published online October, 2017 Remission Less Likely in Overweight, Obese Patients A multicenter observational study found that in the first 3 ...more
No One Should Be in Debilitating Pain, Especially at 8 Years Old

No One Should Be in Debilitating Pain, Especially at 8 Years Old

Support the Arthritis Foundation and the 54 million Americans with arthritis. Meet Cassidy Middleton Cassidy Middleton is a happy, thriving 8-year-old who has a loving affinity for Minnie Mouse and spending her days horseback riding in the warm, Tucson, Arizona, sun. In December 2013, Cassidy was diagnosed with autism, and that’s when the Middleton family’s world changed. Most weeks were filled with therapists and appointments, and just when things started to settle down, Cassidy’s mother, Kari, noticed Cassidy was a “bit knock-kneed” and “walking funny” for a 3-year-old. After consulting with their pediatrician, who referred the family to a pediatric rheumatologist, Cassidy was ...more
TAKE CARE: Advocacy Blog Series Bringing It All Together

TAKE CARE: Advocacy Blog Series Bringing It All Together

We’ve reached the end of our advocacy blog series, and now it really is time to say “take care”! Throughout this series, we’ve shined a spotlight on some of the hot button issues in health policy that can have an impact on your health care. The blog series was meant to help you take care when it comes to important arthritis care and coverage issues. With open enrollment for Medicare and the health care exchanges closing soon, we wanted to close out the year’s blog series reminding you of those important deadlines for health care. You can check out the year’s ...more
Alayna Travaglione: Her Dreams of Studying Abroad Came True

Alayna Travaglione: Her Dreams of Studying Abroad Came True

Studying abroad can be an exciting but nerve-wracking experience. The comfort zones you are so used to back home become non-existent as you make your way through an unknown country meeting new people and immersing yourself into different cultures. For a college student with Rheumatoid Arthritis, there are a few extra challenges I have to face and while doing so, I often question if choosing to travel for a semester was the best option for me. As someone who has Arthritis in all of their joints and still undergoing surgical procedures, the idea of being in an unfamiliar place away ...more
JA Mom: “I Know Just Enough to Know I Don’t Know Enough.”

JA Mom: “I Know Just Enough to Know I Don’t Know Enough.”

Among patient partners who reviewed Arthritis by the Numbers – a collection of verified arthritis facts and figures – was the Soler family of Georgia. Robin Soler has been active with the Arthritis Foundation ever since her younger daughter, Isabela, was diagnosed with juvenile idiopathic arthritis (JIA). At the time she was one of the youngest children in the state to be diagnosed with JIA at just 12 months old. Over the past 15 years, mother and daughter have seen about 50 different doctors and scores of other medical experts. Isabela has taken at least 20 different types of prescription drugs ...more
Best Approach to Managing Osteoarthritis

Best Approach to Managing Osteoarthritis

According to a study in Arthritis Care & Research, people with hip and knee OA use oral pain medications far more than nondrug alternatives. Of the nearly 1,200 patients in the study, 70 to 82 percent took pain relievers; fewer than half tried physical therapy or other nondrug options. Most were overweight, and none got the minimum 150 minutes of physical activity a week the Centers for Disease Control and Prevention recommends for good health. That’s a problem, says Laith Jazrawi, MD, an orthopedic surgeon and chief of sports medicine at NYU Langone Medical Center in New York City. “We know ...more
RA Research Briefs: Vitamin D, Shingles, Jobs

RA Research Briefs: Vitamin D, Shingles, Jobs

Keep up-to-date on the latest rheumatoid arthritis (RA) research with our brief research summaries.  Vitamin D Deficiency Associ­ated with Neuropathic Pain People with RA who suffer from neuro­pathic pain – or, understandably, are try­ing to avoid it – may do well to have their vitamin D levels checked. A study examined neuropathic pain indicators as well as blood samples of 93 patients with RA. The researchers found the prevalence of neuro­pathic pain was almost six times higher in patients with serum vitamin D levels below 20 nanograms per milliliter (ng/mL) than in patients with vitamin D levels ≥ 30 ng/mL. Anything below ...more