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July Is JA Awareness Month: Help Give Kids  the Chance to Feel Included

July Is JA Awareness Month: Help Give Kids the Chance to Feel Included

The school year is an opportunity to enjoy some of the best memories with friends. But for many kids with juvenile arthritis (JA) and other rheumatic conditions, being in school can sometimes bring feelings of isolation. Many kids with JA have never met a friend with the same diagnosis. They never get to take a break from a serious illness that’s often quite painful, makes the immune system go haywire and can be downright lonely at times. Summer break, however, is another story! The Arthritis Foundation provides camp programs and our National Juvenile Arthritis Conference in two locations, giving kids with ...more
Advocates Gather in Harrisburg to Advocate for Patient Protections

Advocates Gather in Harrisburg to Advocate for Patient Protections

In Pennsylvania, we’re working on legislation to streamline patient access to care. And we can’t do it alone. On June 5, Arthritis Foundation Advocates traveled to Harrisburg for a state legislative day. They shared their stories with legislators and asked for support on two important bills. Attendees of the legislative day had a morning training session where they learned about the issues and skills needed for the meetings. They saw how these bills would make a difference for people with arthritis and why it’s important to tell your story to lawmakers. Then they met with elected officials to talk about their ...more
Chicago Area Firefighter Goes All Out to Help Extinguish Arthritis

Chicago Area Firefighter Goes All Out to Help Extinguish Arthritis

Matt Pierce, a 45-year-old firefighter in the Chicago area, is on a mission. After years of participating in the Arthritis Foundation’s Jingle Bell Run with his team, the Red Nosed R-A-ndeers, Matt has set his sights on something quite a bit longer than a 5K: riding his bike 525 miles from San Francisco to Los Angeles this September with the California Coast Classic Bike Tour (CCC). Matt has also committed to raising at least $3,500 for the fight against arthritis, as does every CCC participant. Last year, this flagship fundraising event, presented by Amgen, raised over a million dollars. “I saw a video ...more
Prior Authorization Becomes Law in KY

Prior Authorization Becomes Law in KY

Governor Bevin signs law on March 26, 2019 Imagine you’re diagnosed with a chronic condition like rheumatoid arthritis, which rocks your world and changes life as you have known it. With the help of a good physician, you develop a treatment plan that will hopefully improve your condition and make the tasks of daily life manageable. However, your shock comes when you learn it may take weeks to get approval by your insurance company for your treatment plan to go into effect. The chance looms that you may not get covered. Permanent joint damage can occur while you’re waiting. Patients ask: Who ...more
Delaware Governor Signs Step Therapy Bill Into Law

Delaware Governor Signs Step Therapy Bill Into Law

It was a historic day for Delaware residents as Gov. John Carney signed the state’s step therapy legislation into law. Sometimes referred to as “fail first,” step therapy is a process insurance companies use to require patients to try and fail on their preferred drugs before getting the medication originally prescribed by their doctor. This can happen in the middle of a plan year, even if a patient is currently stable on the medication. Arthritis Foundation Advocates came to the Statehouse to help pass this legislation. Carol Reilly, chair of the Foundation’s state advocacy committee, testified at both the House and Senate ...more
Reality TV Let Meg Maley Open Up About Living With Psoriatic Arthritis

Reality TV Let Meg Maley Open Up About Living With Psoriatic Arthritis

Meg Maley isn’t one to let an opportunity slip by or negativity dim her joy. If you have any doubt about her optimism, just check the tattoo on her foot: “Always Yes.” That attitude – and maybe her infectious smile – landed her a spot on the CBS reality TV show Big Brother in 2015, which changed the course of her life. But despite her buoyant outlook, “Always Yes” isn’t always easy. Meg, 29, has psoriatic arthritis (PsA), which causes persistent joint pain, bouts of fatigue and vision problems that make it impossible to drive some days. “It’s hard for people to ...more
Our Global Message to Strengthen Patient Voices Is Heard at EULAR

Our Global Message to Strengthen Patient Voices Is Heard at EULAR

Patient voices are critical to finding a cure for OA and other forms of arthritis. That’s the message Arthritis Foundation Osteoarthritis (OA) Programs Director Angie Botto-van Bemden, PhD, is sharing at the 2019 annual European Congress of Rheumatology (EULAR) in Madrid, June 12-15. More than 16,000 delegates from around the world are expected to attend. Her message is more important than ever because many organizations and regulators are already shifting to approval of research programs and medicines only if patients have been included in the design of trials and the development of new treatments to help determine benefit versus risk ratios. “People ...more
You Said It: Handling Parenting with Arthritis

You Said It: Handling Parenting with Arthritis

Arthritis Today readers share how they have handled parenting when they have arthritis.   You have to tell yourself to keep going. Memories only come once in a lifetime. —LINDA’S RA STOMPER  My 29-year-old daughter has grown up with JIA and continues to battle it, so she can understand my pain from psoriatic arthritis. I try to educate my 10-year-old granddaughter. She is sensitive and accommodating when she knows I am having a tough day. I am a blessed Grammie! —GRAMMIE’S DOUBLE WHAMMY   We learn to get creative in the energy we expend, taking the time to enjoy and focusing on things that matter and letting the rest go. —SARAH CLOUD  I raised two girls into beautiful, caring young women with my amazing husband. When ...more
Do It Yourself: A Simple & Satisfying Way to Make Your Mark

Do It Yourself: A Simple & Satisfying Way to Make Your Mark

  Our DIY fundraising initiative helps you do it your way with ease. To raise money for arthritis research and resources, the Arthritis Foundation hosts signature events throughout the year, like Walk to Cure Arthritis, Jingle Bell Run, galas and other fundraisers. Now you’re empowered to fundraise and raise awareness however you want to in the way that works best for you. Read on to see how Dru did it! Unstoppable Against Arthritis is our DIY (do-it-yourself) fundraising program with an online platform and resources that will help you take charge of your own independent fundraiser. Whether you’re observing a special occasion, honoring a ...more
Improve Your Daily Health With These Digital Tools

Improve Your Daily Health With These Digital Tools

When something goes wrong with your car, you can check the owner’s manual to find out what it might be. But when something seems wrong in your body, you have no owner’s manual to turn to. That’s why internist and pain specialist Jacob Teitelbaum, MD, decided to create one.  His creation, a smartphone app called Cures A-Z, can help identify common causes of certain symptoms and what to do for them. It is one of a growing number of digital tools designed to promote wellness and complement the care you receive from your doctor.  Various tools help you rate and describe your pain, track your symptoms and gauge arthritis severity, or store medical test results. Sharing them with your doctor may help her better assess your ...more