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Learn About the ACR Arthritis Foundation Patient Representative Program

Learn About the ACR Arthritis Foundation Patient Representative Program

There is growing evidence to support the value of patient engagement in research and healthcare activities. Case studies from drug and device development, academic research, and other healthcare sectors cite the impact of engaging expert patient partners in the design, conduct, and dissemination of research, discovery, and delivery initiatives.  Encouraged and facilitated by entities like the Patient-Centered Outcomes Research Institute (PCORI), academic and clinical professional societies are beginning to adopt more patient-engaged strategies as well, like the inclusion of patient representatives at annual meetings and scientific conferences.  In 2017, the Arthritis Foundation is partnering with the American College of Rheumatology ...more
Highlighting a Thought Leader: Bing Chang

Highlighting a Thought Leader: Bing Chang

The Arthritis Foundation champions the fight against arthritis and we are excited to have thought leaders, such as Rowland W. (Bing) Chang, MD, MPH, as a partner in this fight. Dr. Chang is a rheumatologist, epidemiologist and health services researcher. He was named chair of the Arthritis Foundation’s board of directors in November 2016. With more than 34 years of practice and research experience, Dr. Chang is one of the leaders of the Arthritis Center at Northwestern University Feinberg School of Medicine (NU-FSM). “I am proud to be a part of the Arthritis Foundation because the organization is the voice of the more ...more
Supplements Vs. Food for Arthritis

Supplements Vs. Food for Arthritis

Good-for-you foods provide a vast spectrum of nutrients important to battling arthritis inflammation, strengthening bones, fighting disease and generally helping you feel your best. So why not load up on vitamin and mineral supplements to make sure you’re getting enough of these nutrients? Food trumps supplements for several important reasons: If you don’t eat a well-balanced diet, you’re missing out on countless nutrients you’d never get in a pill, or even a handful of different pills. For example, “Fatty fish also gives you other types of fat, protein, iron, zinc – you’re getting all these other lovely nutrients that are ...more
When A Back or Neck Ache Means You Have OA

When A Back or Neck Ache Means You Have OA

Maybe you overdid it cleaning the house or sprucing up your garden this weekend. Or you’re using a hot or cold pack on your lower back more often over the past few months. Does the pain come and go or seem to be getting worse? Then, it might be time ask your doctor if you have osteoarthritis (OA) in your spine (that runs from the neck to the lower back). As you age, the cartilage lining the joints of your spine wears down, allowing the bones to rub together, causing back pain and stiffness. Other causes of spinal OA include injury, ...more
Infection Alert for People With Arthritis

Infection Alert for People With Arthritis

If you have arthritis or take medications to treat it, a cough, fever or fatigue may be signs of infection. That’s because you may be more vulnerable to infections than the general population, says Dee Dee Wu, MD, a rheumatologist at the Hospital for Special Surgery in Paramus, New Jersey. Plus, infections can become serious, so treating them promptly is important. Corticosteroids, methotrexate, leflunomide (Arava) and biologics, suppress or modify your immune system, affecting your body’s ability to fight off germs, says Dr. Wu. “We advise patients to stop these drugs and call us right away if they develop signs of ...more
Your Patient, Our Focus: Arthritis Foundation at ACR

Your Patient, Our Focus: Arthritis Foundation at ACR

The Arthritis Foundation is excited to participate in #ACR17, the Annual Meeting of the American College of Rheumatology. This year, the 2017 ACR Annual Meeting is taking place Nov. 3-8 in San Diego, California! Close to 17,000 rheumatologists, rheumatology health professionals, fellows-in-training, and exhibitors from more than 100 countries are expected to attend to discuss the latest scientific advances, clinical issues, professional development, and more. We are proud to be amongst the thought leaders in the field of rheumatology. In addition to serving as speakers for several workshops we will also be showcasing our patient engagement efforts.  Patients are at the center of ...more
You Said It: The Most Unexpected Side Effects of RA

You Said It: The Most Unexpected Side Effects of RA

We asked our readers and followers this question: “What was the most unexpected side effect of your rheumatoid arthritis or RA treatment?” Here are their answers. I was shocked to be diagnosed at 47. I have an immensely high pain tolerance, but the shocker to me is how high the pain level is during a flare. I also have been surprised at how long it takes to find the right treatment combo. — Karyn Corson, Saratoga Springs, New York For me, I was surprised to get scleritis, the inflammation of the white part of the eye, which they treat with prednisone drops. Then ...more
Victory in New York! Biosimilar Legislation Signed Into Law

Victory in New York! Biosimilar Legislation Signed Into Law

On behalf of the more than 3.6 million New Yorkers (including 18,400 children) with doctor-diagnosed arthritis, the Arthritis Foundation thanks Governor Andrew Cuomo for signing biosimilar legislation into law. The new law, A.7509/S.4788, enhances patient access to new and innovative medications while ensuring that pharmacists are communicating critical and up-to-date medical information about patients to physicians. "This biosimilar bill will enhance communication between the pharmacists and doctors who will be on the same page as far as what medication is being filled,” said Kathy Wooten an Arthritis Foundation Platinum Ambassador, “therefore safeguarding the patient's health and safety.” As a result of this bill ...more
AOII: Celebrating 50 Years as a “Champion of Yes”

AOII: Celebrating 50 Years as a “Champion of Yes”

This year marks the 50th anniversary of the Arthritis Foundation’s partnership with Alpha Omicron Pi (AOII) women’s fraternity. AOII’s unwavering commitment has helped the foundation serve millions of adults and children with arthritis through research, advocacy and community-based programs. “We are so honored and proud to partner with such a worthy organization,” says Gayle Fitzpatrick, AOII’s International President. “For 50 years, we’ve stayed committed to the Foundation’s cause; raising money and providing hands-on support for camps, community initiatives and fundraising events.” Community service is one of AOII’s founding principles. They adopted the Arthritis Foundation as its international philanthropy in 1967 because of ...more
Researchers on the Path to a Cure – Spotlight on Dr. Jordan Orange

Researchers on the Path to a Cure – Spotlight on Dr. Jordan Orange

Chances are you haven’t heard of COPA syndrome. That’s because it wasn’t identified as a form of arthritis until 2015. So, what is COPA syndrome? It is a rare, inherited autoimmune disease that is caused by mutation of the COPA gene. It usually appears in early childhood. Patients show symptoms of severe lung disease and arthritis. Dr. Jordan Orange was one member of a large research team that first identified COPA syndrome in 2015. The team’s published work in Nature Genetics won the Arthritis Foundation’s 2015 Howley Award prize for significantly advancing the understanding of an arthritis-related disease. Dr. Orange’s 3-year Arthritis ...more