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Increasing Allopurinol Dose May Better Control Gout

Increasing Allopurinol Dose May Better Control Gout

In addition to being treated with medication for symptoms of an acute flare, should a person with gout be put on long-term uric acid-lowering medication to reduce future flares? And is it safe to keep raising the dose of the medication until uric acid drops below a specified target? Rheumatologists and other physicians are currently grappling with those questions, and a new study may help lead to some answers. What Is Gout? Gout is the most common form of inflammatory arthritis in the United States, affecting more than 8 million adults. It develops in some people who have high levels of uric acid ...more
The Nation’s Capital Caps the Out-of-Pocket Costs of Medications

The Nation’s Capital Caps the Out-of-Pocket Costs of Medications

Congratulations D.C. Advocates! Because of your efforts, Washington, D.C. Mayor Muriel Bowser signed the Specialty Drug Copayment Limitation Act. In the law, “specialty drug” means a prescription drug that is prescribed for a person with a physical, behavioral, or developmental condition that may have no known cure, is progressive, or can be debilitating or fatal if left untreated or undertreated, such as multiple sclerosis, hepatitis C and rheumatoid arthritis. This is a significant win for the Washington D.C. arthritis community because the law caps specialty drug copayment or coinsurance out-of-pocket costs to no more than $150 for up to a 30-day ...more
Up Close and Personal with our Walk to Cure Arthritis National Adult Honoree Tom Walker

Up Close and Personal with our Walk to Cure Arthritis National Adult Honoree Tom Walker

As a believer in living a full life and being a Champion of Yes, we asked Tom Walker – who has experienced highs and lows and endured it all – a few lighthearted, personal questions. When did you realize you wanted to play baseball professionally? Growing up in Florida, there were several great baseball players. I was around baseball a lot and loved it. I couldn’t think of doing anything else. I thought if things went well, maybe I could play in the big leagues, which I did in 1972 when I joined the Montreal Expos. Do you think your willpower ...more
Champions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis

Champions of Yes: Amy and Kylie McCormick Form a Dynamic Duo to Tackle Juvenile Arthritis

When you meet Amy McCormick and her daughter, Kylie, of Hauppauge, New York, you instantly feel as though you’ve known them for years. They both consistently greet you with warm smiles and joyful hellos, chatting about their love of Hamilton, the arts and their newly adopted rescue puppy named Autumn. Kylie was only seven years old when she was performing in a year-round production of Annie, acting and dancing heavily through rehearsals and plays week after week. Kylie started experiencing foot and ankle pain so severe she couldn’t walk, and eventually told her mother she couldn’t attend rehearsals. Alarmed by Kylie’s ...more
Researchers on the Path to a Cure - Spotlight on Dr. Tuhina Neogi

Researchers on the Path to a Cure - Spotlight on Dr. Tuhina Neogi

If you have osteoporosis you’ve probably heard of, and may have been treated with, a class of drugs that are used to prevent and treat bone loss: bisphosphonates. Dr. Tuhina Neogi and her research team are using new methods to look at how the long-term effects of using these drugs may be related to the progression of knee osteoarthritis (OA). Dr. Neogi’s 2-year Arthritis Foundation-funded project, “Bisphosphonate Effects in Knee Osteoarthritis,” is looking at the relationship of bisphosphonate treatment and the structural changes in the knee associated with OA progression. To do this, Dr. Neogi and her team are looking at ...more
Wrong Hydroxychloroquine Dose Is Common, Putting Eyes at Risk

Wrong Hydroxychloroquine Dose Is Common, Putting Eyes at Risk

Up to half of patients treated with the arthritis drug hydroxychloroquine (Plaquenil) are prescribed more than the recommended maximum amount, according to new research. In separate studies, Canadian and U.S. researchers found that 30 to 50 percent of patients didn’t receive the dose outlined in treatment guidelines; a smaller percentage didn’t get recommended eye exams. Hydroxychloroquine is an antimalarial drug commonly used to treat rheumatoid arthritis (RA), lupus and other autoimmune diseases, either alone or as a part of combination therapy. Unlike some of the other traditional disease-modifying antirheumatic drugs (DMARDs) and biologics, it affects the immune response without suppressing the ...more
Pedal For A Purpose – The Arthritis Foundation’s Bike Classic Events

Pedal For A Purpose – The Arthritis Foundation’s Bike Classic Events

The Arthritis Foundation is proud to host signature events across the country such as the Walk to Cure Arthritis and Jingle Bell Run. However, if walking or running isn’t in your repertoire, we also host four different Arthritis Bike Classic events – all of them currently held on the west coast in Oregon and California – though riders have come from near and far to take part in these wonderful events. In an article about cycling, the Arthritis Foundation YES tool says, “Cycling offers efficient, low-impact exercise for millions of Americans. It is a good cardiovascular exercise that strengthens leg muscles ...more
Arthritis Foundation Leads the Way in Patient Engagement with the Institute for Clinical and Economic Review

Arthritis Foundation Leads the Way in Patient Engagement with the Institute for Clinical and Economic Review

On Friday March 24, after many months of review, the Institute for Clinical and Economic Review (ICER) held a public meeting in Boston, MA to discuss evidence findings on treatments for rheumatoid arthritis (RA). ICER is a non-profit organization that reviews the effectiveness of medications and their costs. Throughout the RA treatment review, we continuously engaged with ICER, pushing ICER to consider the unique perspectives of individual patients, their caregivers and providers. During the March 24 meeting, we played a vital role, presenting patient-centered research, asserting the patient voice and displaying strong leadership on behalf of the arthritis community. To kick the ...more
Juvenile Arthritis Camps: Why JA Camp is an Experience You Can't Miss

Juvenile Arthritis Camps: Why JA Camp is an Experience You Can't Miss

From Mobile, Alabama to the shores of Waialua, Hawaii, the Arthritis Foundation is proud to host camp programs for kids with juvenile arthritis and related childhood rheumatic diseases. Camp programs provide a safe and secure camping experience for both children and teens. Some locations also offer family camps – an opportunity for the entire family to attend together. Katy Carter of Los Angeles says, “When our daughter Rhiannon was seven years old, she wanted to meet other kids with arthritis. She wanted to know that she wasn’t alone, that there were other kids just like her. This was a defining moment in our ...more
35 Attend Capitol Day in Pennsylvania Advocating for Prior Authorization and Copay Cap Bills

35 Attend Capitol Day in Pennsylvania Advocating for Prior Authorization and Copay Cap Bills

Families, physicians and patients gathered in Harrisburg, PA on March 28 to learn more about potential legislation that could affect access to care and meet with their legislators to enlist their help. They shared their stories with legislators and asked them to cosponsor the prior authorization bill and the copay cap bill. It was an impactful day of relationship building using personal stories to communicate the urgent need for support and passage of these bills. If enacted, the prior authorization bill will standardize prior authorization protocols and streamline access to vital medications. The copay cap bill will limit the cost of ...more