Static Image
Houston Kicks Off the 2019 National Juvenile Arthritis Conference Today!

Houston Kicks Off the 2019 National Juvenile Arthritis Conference Today!

Houston Kicks Off the 2019 National Juvenile Arthritis Conference Today!  Over 800 kids, teens, young adults and their families from across the country are landing in Houston, Texas, for the first of two National Juvenile Arthritis (JA) Conferences the Arthritis Foundation is hosting this year. This week’s conference will kick off our 35th annual gathering of JA families during JA Awareness Month, and offers a variety of events and informational program tracks focused on education, connecting with others and fun. The JA Conference is a unique opportunity to bring together families of kids, teens and young adults affected by JA and other rheumatic diseases. Over ...more
What’s Important to Juvenile Idiopathic Arthritis (JIA) Families: the JIA Voice of the Patient Report

What’s Important to Juvenile Idiopathic Arthritis (JIA) Families: the JIA Voice of the Patient Report

Arthritis patients have spoken: “We want safer, more effective, easier-to-use and less-painful-to-administer treatments that are less likely to cause potential long-term side effects. We need solutions to the challenges of dealing with comorbidities and multiple treatment changes.” The Arthritis Foundation and leadership at the Childhood Arthritis and Rheumatology Research Alliance (CARRA) are pleased to announce the release of the Voice of the Patient Report.This report was created to summarize results from the externally-led Patient-Focused Drug Development (PFDD) meeting about Juvenile Idiopathic Arthritis (JIA), hosted August 2, 2018.  This meeting gave the U.S. Food and Drug Administration (FDA), drug developers, health ...more

Wisconsin Step Therapy Reform Bill Signed into Law

WI Governor Tony Evers Signs Step Therapy Bill with Arthritis Foundation Advocates Looking On On July 9th, 2019, Wisconsin joined the ranks of 27 states that have passed legislation to curb step therapy. This legislation places important guardrails to protect patients from the inappropriate use of burdensome step therapy protocols making patients “fail first” before they can take the medication originally prescribed. This would not have happened without our WI Step Therapy Coalition partners and the amazing arthritis Advocates and Ambassadors that stepped up to share their stories through testimony, public media, phone calls and in-person legislative visits in Madison. It was ...more
Researchers on the Path to a Cure – Spotlight on Dr. Xiaojuan Li

Researchers on the Path to a Cure – Spotlight on Dr. Xiaojuan Li

Last year we introduced you to Dr. Xiaojuan Li and her Osteoarthritis (OA) Center of Excellence demonstration research project. The project, “Multi-site Multi-Vendor Cross-validation of Cartilage T1rho and T2 imaging”, was completed by investigators from four sites: the Cleveland Clinic Foundation (CCF) in Ohio; the University of California, San Francisco; the University of Kentucky; and the Montefiore Hospital and Albert Einstein College of Medicine in New York. They worked to quantify biomarker assessments in cartilage images obtained through magnetic resonance imaging (MRI). Currently, X‑rays are the “gold standard” for diagnosing OA. However, X-rays are not very sensitive and only show differences ...more
July Is JA Awareness Month: Help Give Kids  the Chance to Feel Included

July Is JA Awareness Month: Help Give Kids the Chance to Feel Included

The school year is an opportunity to enjoy some of the best memories with friends. But for many kids with juvenile arthritis (JA) and other rheumatic conditions, being in school can sometimes bring feelings of isolation. Many kids with JA have never met a friend with the same diagnosis. They never get to take a break from a serious illness that’s often quite painful, makes the immune system go haywire and can be downright lonely at times. Summer break, however, is another story! The Arthritis Foundation provides camp programs and our National Juvenile Arthritis Conference in two locations, giving kids with ...more
Advocates Gather in Harrisburg to Advocate for Patient Protections

Advocates Gather in Harrisburg to Advocate for Patient Protections

In Pennsylvania, we’re working on legislation to streamline patient access to care. And we can’t do it alone. On June 5, Arthritis Foundation Advocates traveled to Harrisburg for a state legislative day. They shared their stories with legislators and asked for support on two important bills. Attendees of the legislative day had a morning training session where they learned about the issues and skills needed for the meetings. They saw how these bills would make a difference for people with arthritis and why it’s important to tell your story to lawmakers. Then they met with elected officials to talk about their ...more
Chicago Area Firefighter Goes All Out to Help Extinguish Arthritis

Chicago Area Firefighter Goes All Out to Help Extinguish Arthritis

Matt Pierce, a 45-year-old firefighter in the Chicago area, is on a mission. After years of participating in the Arthritis Foundation’s Jingle Bell Run with his team, the Red Nosed R-A-ndeers, Matt has set his sights on something quite a bit longer than a 5K: riding his bike 525 miles from San Francisco to Los Angeles this September with the California Coast Classic Bike Tour (CCC). Matt has also committed to raising at least $3,500 for the fight against arthritis, as does every CCC participant. Last year, this flagship fundraising event, presented by Amgen, raised over a million dollars. “I saw a video ...more
Prior Authorization Becomes Law in KY

Prior Authorization Becomes Law in KY

Governor Bevin signs law on March 26, 2019 Imagine you’re diagnosed with a chronic condition like rheumatoid arthritis, which rocks your world and changes life as you have known it. With the help of a good physician, you develop a treatment plan that will hopefully improve your condition and make the tasks of daily life manageable. However, your shock comes when you learn it may take weeks to get approval by your insurance company for your treatment plan to go into effect. The chance looms that you may not get covered. Permanent joint damage can occur while you’re waiting. Patients ask: Who ...more
Decision Aid for Women With Lupus Nephritis

Decision Aid for Women With Lupus Nephritis

Lupus, a chronic, systemic, autoimmune disease, can affect many parts of the body. It affects people of all races and far more women are affected than men. Lupus nephritis (kidney disease) is seen to some degree in about 60% of lupus patients and can lead to kidney failure and the need for dialysis if not treated appropriately. Until recently, there were no patient decision aids available to help those with lupus make medication decisions. With this in mind, researchers at the University of Alabama-Birmingham, working with the Arthritis Foundation and in collaboration with partner researchers from the Lupus Foundation of America, ...more
California Coast Classic Named Best Charity Bike Tour

California Coast Classic Named Best Charity Bike Tour

The Arthritis Foundation’s California Coast Classic (CCC) Bike Tour was recently named Best Charity Bike Tour by the Gran Fondo Guide! Mark Harding, founder of Gran Fondo Guide, North America's largest cycling events site, commented: "Every year we recognize and reward those rides that have innovated, achieved, inspired and encouraged cyclists, supported worthy causes and contributed to the growth of cycling." “Recently, we have seen an increased interest in charity rides, especially multiday events. We considered several factors in choosing the Best Charity Bike Tour, including ride organization; social, community and training aspects available to participants leading up to the tour; participant ...more