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Advocating During a Pandemic: Advocacy and Arthritis Go Hand in Hand

Advocating During a Pandemic: Advocacy and Arthritis Go Hand in Hand

Patrice Johnson, Platinum Ambassador, CA California State Advocacy Committee Member | Live Yes! Online Community Forum Moderator The COVID-19 pandemic has radically affected all our lives. On the advocacy front, Arthritis Foundation Advocates and Ambassadors were concerned that we could not meet in person with our legislators to advocate for our priorities, especially as the pandemic made legislative changes even more necessary. Many of us came to the solution of meeting virtually.In April, my State Director, Steven Schultz, arranged a virtual meeting over Zoom for myself and other members of the California State Advocacy Committee with our Senator. Inspired by this meeting, ...more
Keep on Movin’ – Don’t Stop!

Keep on Movin’ – Don’t Stop!

By Rebecca Gillett, MS OTR/L – Live Yes! With Arthritis Podcast Co-Host We are already in the middle of summer. Where did the time go? It seems like the stay at home orders early in the pandemic just made time feel like it was going so slow, but here we are in July. Prime summertime to get outdoors (if it’s not too hot) and get moving. We know all the research supports staying physically active as one of the best strategies for managing arthritis, no matter what type you may have. But it’s not always easy. Especially when some options to stay ...more
Bringing Together the Best in Osteoarthritis Clinical Research

Bringing Together the Best in Osteoarthritis Clinical Research

The Arthritis Foundation kicked off a new forum series focused on osteoarthritis (OA) clinical studies – OACS Virtual Forum Series & Conference – on June 17 with leading research experts across the globe who specialize in OA. The focus of these forums is to gather thought leaders in OA from the clinical research areas to discuss the future of how OA can be treated to improve patient outcomes. This inaugural program focused on the topic of “Does Strong Muscle Matter in OA?”, which can be viewed online here. According to experts participating in this forum, the resounding answer is YES. Whether ...more
LA Step Therapy Win

LA Step Therapy Win

The Arthritis Foundation is pleased to announce that Gov. John Bel Edwards has signed HB 263 into law as Act 181. This law strengthens protections for Louisianans who are living with arthritis and cements Louisiana as having one of the strongest step therapy laws in the country. Act 181 was prioritized and passed during the COVID-19 pandemic and will improve the state’s existing step therapy law. Also known as “fail first,” step therapy is a process that forces patients to try and fail drugs insurance companies choose, before the patient gets to use the medication their doctor originally prescribed. This may ...more
June Arthritis News Roundup

June Arthritis News Roundup

The Arthritis Foundation is your trusted source for information, and we’re staying on top of the latest arthritis-related news that could affect you. Here’s what you need to know about some of the headlines from this past month. Coronavirus and Arthritis News The new coronavirus pandemic has created a new normal for us and has changed the way you manage your arthritis. We’re keeping you updated on the latest developments, and talking to top experts to get credible, reliable information you need to know about COVID-19 and how it may impact you. Get the latest in our Care & Connect resource center. FDA ...more
Fight or Flight? TeleMental Health to the Rescue!

Fight or Flight? TeleMental Health to the Rescue!

By: Julie Eller, Live Yes! With Arthritis Podcast Co-Host  If you are anything like me, these past few months have put you into a prolonged state of “fight or flight” — where your body and your mind are responding to the world and trying to determine if it is best to stay put and fend off the evils of the moment or flee to safety.   When I was a biology student, I was fascinated by the concept of a negative feedback loop — the biological mechanism that makes things like the fight or flight response happen. Essentially, your body perceives a stressor that causes distress, and your brain responds ...more
We are Camp Stronger than JA, virtually!

We are Camp Stronger than JA, virtually!

This summer may look different, but we will still have opportunities to connect at JA Camp. Our new virtual JA Camp experience brings the magic of summer camp to all campers with JA, wherever you happen to be!  While we cannot replace being in person together, we are excited to give campers an alternative option for connection and fun. The Arthritis Foundation is proud to offer free, at-home summer camp experiences across the United States for kids and teens with juvenile arthritis and related childhood rheumatic diseases. Juvenile arthritis (JA) camps are sponsored nationally by Alpha Omicron Pi Fraternity and Foundation (AOII), ...more
COVID-19: What Do We Know Now?

COVID-19: What Do We Know Now?

By Julie Eller, co-host of the Live Yes! With Arthritis Podcast  In the past three months, people in our country and across the world have experienced so much change. We have worked together by staying isolated at home. We have supported our health care workers by forgoing elective medical procedures, sewing protective masks and even joining those rounds of applause we have heard in the streets. We have come together to stand as a united community, vocally advocating for those at high risk, like the immunocompromised, elderly and people of color who are disproportionately impacted by medical crises like this pandemic. Importantly, we have taken these three months to learn as much as we can ...more
Episode 14: Arthritis Pain & Surgery

Episode 14: Arthritis Pain & Surgery

Is Surgery the Answer to Arthritis Pain? - On the latest Live Yes! With Arthritis Podcast  By Rebecca Gillett, MS OTR/L, Podcast Host  On the latest episode of the Live Yes! With Arthritis Podcast, we discuss arthritis pain and surgery with Dr. Alan Beyer, MD. Listen today.  Living with pain from arthritis can be debilitating at times — whether it’s osteoarthritis or an autoimmune, inflammatory type of arthritis. When all your go-to treatments start to fail and the pain is too unbearable, the best option to decrease pain and improve your joint health might be surgery. But at what point should you consider surgery for your arthritis? What kind of questions should you be asking? Should you get more than one opinion? The pandemic forced most elective surgeries — including ...more
Step Therapy

Step Therapy

I started having symptoms of Juvenile Rheumatoid Arthritis at just 14 years old. I knew something was wrong when I started having swelling in my knee. It took two years of misdiagnoses and treatments before being diagnosed with juvenile rheumatoid arthritis. As a teenager I went from managing my academic and social calendar to also managing an incurable chronic illness. By graduation, my arthritis had spread to over 5 joints affecting my hands, knees, ankles, and feet. As I started college, I also started weekly injections and a collegiate soccer career. I was told by many that maintaining my health and ...more